I'm 17 and have Chiari And Syringomyelia can you help?

Posted , 9 users are following.

I'm 17 years old and 3 months ago became very ill.  They tried telling me I had glandular fever so they gave me painkillers to ease my pain, the head aches were terrible, I was constantly tired I haven't had a decent nights sleep since this all started,  a few weeks went by and I was getting worse I had servere back aches to the point I was bent over (still am now) I couldn't straighten my back as the pressure it put on my head was to much to handle. It would make my dizzy and light headed. They took me in to hospital and I stayed there for a week. This is when they found the syringomyelia but they said the cyst is to low to cause my problems. I suffer with head aches, back aches, neck pain, anxiety, the left side of my body completely goes numb, I never have no energy, I have fallen a couple of times because my left leg gives way and I now walk with a limp. So I went to a private doctor and he found that I had chiari but he found it on a spinal MRI and said he didn't know how bad it was.. I am now waiting till the 37th of July to see another neurologist. Now to make things worst I am now having seizures that are lasting for 10-15 minutes and I when I wake up I know nothing about?.

im sorry that was also long but it's just hard to go through on your own as no one understands what it actually feels like to live with just wondering if any one could share some information with me.

thank you, Daniellerolleyes

0 likes, 20 replies

20 Replies

Prev
  • Posted

    Glad your in the uk, my chiari specialist is Dr Adrian Casey in london, look him up on google hes brilliant and hopefully your GP can get you refered to see him,if not contact his PA and see what they can do, if you are interested i can get you the numbers and address...

    Hope this helps

    Stacey x

  • Posted

    im sorry but you should suggest the surgery i has a super high success rate and since your in the ater state you should definitely suggest it

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.