I'm 22 and Stomach Pain makes me want to die, I don't know what to do. Neither does Doctor

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Hey so I just want to start by saying don't mind my grammar and rambling, and thank you in advance for taking the time to try and help me it really means a lot. So I've been having this severe stomach pain for over 2 years now. The pain started off not so bad and I've always hated going to the doctors because I always believed they were way to much money and never helped at finding problems other than obvious ones. Well after about 6 months of going thru the pain and trying to self medicate with weed I realized it wasn't getting better so I had to get Insurence which is way overpriced I pay $250 a month because they assume I make a decent living. But I live on my own with my Fiancé and 2 year old daughter who I love more than anything and really there the only thing keeping me fighting. Problem is I don't know what I'm fighting. Any time I sit/stand up my heart starts racing at about 125 bpm and then I get the worst stomach pain all over. When when I actually push on my stomach there's no pain except for the right side under rib . Any time I move the pain starts off at about a 5 then rises up to a 10 in a matter of 5 minutes and I just start throwing up for about 20 minutes and I just have to be in fetal position while sitting in so much pain for awhile until the pain starts going down again. Then I get back up and it starts all over and over. My dad owns a paving company so I used to labor, pain got so bad I couldn't do that so I started estimating. Driving around all day then measuring up a driveway for 10 minutes in the worst pain and having to manage for an hour to get pain relief just throwing up and sitting in my truck. I did this for about a year and a half just getting by, while going to the doctors it has been the worst years of my life when they should be my best. They first tested me for kidney stones now keep in mind every appointment is over a month -two month wait in Washington state (thanks obama for nothing) so while so when they first told me it had to be kidney stones I did a complete lifestyle change, drank a gallon of water a day ate everything healthy. A month later I had a CT, another week goes by and my primary Doctor (young new kid because every doctor is taken because everyone's forced to have Insurence) thinks it's still Kindney stones because there's was a tiny tiny tiny white dot in my kidney, another 2 weeks goes by while still drinking a gallon a day. I see a urologist who immediately dismisses me saying there is no way I have kidney stones and if I did they were so so small the amount of pain I was having would never match. So another month goes by doing blood tests / urine tests. All clear, another month goes by and they wanted me to cut out dairy and gluten. Now I'm in terrible pain every day trying to only only eat whole healthy foods. Pretty much gave me an eating disorder. I lost over 20 pounds. I was 6' 167 unfit then I got to 143 just changing my diet and throwing up so much because I was still working. Now times starting to really play an affect on my mind because I was still in pain for so long, my work performance decreased, my relationships all started taking big tolls on them because I couldn't go out and do anything. Including with my fiancé and daughter. I had an ultrasound done for my gallbladder and all was normal. They tested me for celiacs disease, they started trying out all sorts of pills for ibs / muscle spasms. Nothing worked, they would never give me pain pills or any relief because they said I was young and could get addicted. After all that it was probably another 3 months. They had me do a Colonoscopy and Endoscopy and everything came back normal. My Insurence lapsed for 2 months and they cancelled my Insurence which I've already paid 5000$ toward my premium and was really starting to get in debt. I also have a 2014 pickup I bought when i was healthy making money, so money is really starting to take a toll on me. Doctor bill after Doctor bill coming in the mail. My Insurence was lapsed for 2 months and wasn't able to re sign up with them until ObamaCare re opened. I then had about a month worth of doctor bills with no Insurence help what so ever. I got Insurence again but this time with a different company and tried going to the hospital in the richest city in Washington hoping for better doctors. When I got there they were convinced I had anxiety because I had all tests done. Makes sense after living in pain for so long that's all I think about, everything I do revolves around my pain. They had me see a phycologist and psychiatrist. I started meditating and doing yoga which was really hard for me and still is and no relief. The put me on Zolof for a month for anxiety / depression , and didn't work, they tried just giving me hydroxyzine which just made me sleep. They tried amitriptyline for a month and didn't work. I tried muscle relaxers Cyclobenzaprine and nothing. I tried Dicyclomine Ibs for month and nothing. I tried Nortiptyline ibs/functional dyspepsia for a month and nothing. I've tried taking multi vitamins, magnesium, iron, b12, all sorts. They tried Ondansetron for nausea and nothing. I gave up on work about a month ago because I was getting very very depressed just being in pain so much. So now I just sit in bed pretty much all day which takes the pain away a little but even brushing my teeth or getting food just gets me so sick. I went to the doctors and told them to give me a HIDA scan which the Doctor didn't think was the problem but we did it anyways and came back normal. I tried taking a trigger point injection shot in my side and nothing. The Doctor put me on Librax hoping it is Functional Dyspepsia which is $400 for a month and nothing. I had enough and kind of forced my primary to give me pain meds after they sent me to two different pain management clinics and no help. They gave me 5-325mg Hydrocd - Aceta and it barley helps but the catch with this is the Doctor made me take a drug test and said I can't smoke weed which is the tiny bit of relief I get. I took for about a week 4 a day and helped I could walk around and do things. They don't work any more I think I'm building tolerance and my pain is just so bad. So i just stopped taking them and now I'm not taking anything except I'm smoking here and there again so watch the Doctor not want to give me any other pain meds. But I see not point in getting on pain pills if there not strong enough. Oh and I also tried quitting weed for over 2 months to see if it might be Cannabanoid Hyperemisis and nothing. I just can't function any more I'm about to lose my house, truck , credit . probably my fiancé because I don't see how anyone can put up with a sick person for as long as she had and she has helped me so much I see it's taking a huge toll on her and my mom and my brothers. Waiting day by day for the doctors to figure something out. Anyone have any ideas I'm completely out and I'm really in need of help. Thank you to whoever read this, it's like a book

1 like, 40 replies

40 Replies

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  • Posted

    They give u seizure meds?Ativan is a seizure med?
    • Posted

      Yeah I guess he thinks it will help, only a 2 week supply. Ativan helps a bunch of things I guess not just seizers from what I'm reading. I'll keep people posted
  • Posted

    A about Hpylori my doctor said you could do a blood test on that and they did a blood test on it and it showed that I didn't have any of that within the last two years I thought you needed a colonoscopy to see that but I guess not but what do you think
    • Posted

      Hi

      The most reliable test for HPylori is a stool test, breath test or endoscopy....blood test not always reliable....dont always hear of colonoscopy for HPylori test....

    • Posted

      Yes I've had an endoscopy and a colonscopy both showed everything was normal including H Pylori, is it worth taking a stool sample to test for it if they already had the tissue come back negative for H Pylori?
  • Posted

    Hi, I am so sorry to hear about your unexplained pain. My son has been suffering stomach pain since he was 15 years old. It was so bad that he missed a whole year of school and lost his scholarship. Like you he has had all sorts of medication and tests and no cause has been found, so they referred him to the mental health team for anxiety treatment. His biggest problem is not being able to sleep due to the pain, which makes it so difficult for him to get up and go to school or college. IBS medication doesn't work, anti depressants don't work, colonoscopy showed nothing, stool tests showed nothing, nor anti spasmodic. It doesn't seem to be related to the food he eats, but he was subjected to some bullying at school. He is due to start college again in September so hopefully the counselling he is getting starting this week will help. Otherwise he is going to still have his life on hold. He is exceptionally clever and talented, but he has been completely floored by this. Please keep us updated, it will be good to know if you find anything that helps. Likewise I will let you know how he gets on with counselling. If breaks my heart to see him on hands and knees crying out in pain and vomiting because of it. It's a mum's job to make bad things go away, but I can't.
    • Posted

      I forgot to say, he is 17 now and will be 18 this year. So, he has suffered with this for over two years.
    • Posted

       There is a vitamin that that I used to use and it really helped my stomach but all of a sudden it stopped working but they did say if you're constipated it would not work I do not remember the name of it quiet but it's not it like this L.G  that should not be hard to fine even with my limited description of it sold at w/mart l. I will try to find it because I think I'm gonna buy some myself
    • Posted

      Name of that is L. glutamine look it up it works for a good as long as you're not constipated
    • Posted

      Sorry to hear about your son. Sounds just like me, I just don't want to stop at "Functional Dyspepsia" and have to live like this forever just with pain meds. I don't think that is how it is supposed to be. I am going to start working with a natural path and see how it goes. Thank you for responding and you and your boy are in my prayer.
    • Posted

      I will look it up and if it relates I'll defenitly try and let you know how it works thank you.
  • Posted

    Hi Tboulanger12 - I was going to a different forum and happened upon your post.  Just a couple things that I'm making sure you were tested for as I did not see it in your post of tests.   Assuming they have done a urine culture to test for Ecoli? If you've been on antibiotics there are some antibiotic resistant Ecoli infections that may require a very long dose - months, of a low dose antibiotic or anther procedure to get rid of the ecoli.  I see you have a diagnosis, however if the treatment is not working, or as of yet, for that diagnosis, please ask that they culture your urine. 

    2nd thought is...your not having any urgency urinary symptoms are you? Frequent need to urinate or burning.  Just want to make sure your pain is not coming from your bladder/pelvis area.  There is a disease called interstitial cystitis. It can be very very painful and all tests will show up negative almost all the time.  You could discuss this as a possibility with a urologist.  A regular cystoscopoy cannot diagnose IC, you would need a cystoscopy with hydro.  IC is most common in women, but it does affect men as well and you do have the hallmark pain symptom.  Heating pads and ice packs in the pain area can help, as well as hot/warm baths.

    Good luck, I hope you get relief soon!

    • Posted

      I really appreciate your response and taking the time to read my post. They have taken many urine tests but I'm honestly not too sure what they've tested in them that would be something I would like to know and I'll ask about the ecoli just because I was never told it specifically. My urine seems to be normal, I got a few times a day, and can hold it, and it doesn't burn. But I will do some research on it because I'm at a brick wall right now. Even my physiatrist is now just having me rush on upping the dose of Amitriptyline I was taking 50 at bed now where trying 100 at bed and if that doesn't work for 2 weeks we'll try 150 for a week and see how it does. He said after this maybe get another opionion from someone else.
  • Posted

    Is the new medication helping at all? Please keep us posted. 
    • Posted

      I have been taking Ativan 1mg in the morning and again around 8 at night and they seem to help a little. Previous to using Ativan they have me 5mg hydrocod to use 4 times a day which wasn't helping unless I took like 3-4 at once so I stopped taking them all together until this weekend.Saturday I had 1 1mg of Ativan and smoked weed with it. Helped me a lot I went to the mall and walked around all day, I got minor pains but wasn't throwing up. When I started getting more severe pains half way thru the day I took 1 5mg of Hydrocodon with weed and I was fine with just minor pains until I got home. When I got home a room the last 1mg of Ativan I was supposed to take. Day was a relevantly good day. Second day same thing I wen downtown Seattle and followed the exact same steps. Now today I took one Ativan in the morning and smoked and I was good. I had 2 Doctor meeting today one with my Phycologist and one with my Physatrist. After talking with them they said I should use the Ativan in morning and then maybe around 5 so I don't have to substitute with a pain pill. So it hasn't been so much time but i think I can function with taking 2 Ativan a day and substitute with some weed if it's a harder day than normal. Atleast while work on therapy, and more tests, aswell as going to a natural path.
    • Posted

      So happy you are feeling better! Yay! Hope it sticks! Wouldn't it be so nice to figure out the causes of these problems, and fix that? But, day by day is how we are forced to go on. Please keep me posted. Just knowing you are getting some relief is helpful to me!

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