I'm 28 year old, and just recently diagnosed with osteoa...
Posted , 6 users are following.
I'm 28 year old, and just recently diagnosed with osteoarthritis in my right hip. I feel like my future has been cut short. I constantly experience pain in the thigh, and the groin. When I wake up in the morning, my right leg feels discomft, damped,and stiff - like bones, stacking on top of bones, and I have to force my leg to move up slowly.
I also have ankolysing spondylitis. I am very frustrated, all those years, when i told my local Gps about this sharp pain in my leg - they would conclude it's due to my ankolying spondylitis disease. without taking proper x-rays back then, my condition is quite severe - loss of cartilage in my hip, causing bone-touching-bone.
I am not fat - infact, I am skinny -very skinny because i have hyperthyroidism, so no matter how much i eat, i won't get fat. i'm still wondering whether it's because i am under-noursihed, and carry heavy things, and jumping high when i was a kid, contribted to the lost of cartilage at a young age....
[i:05bd90f08f]This message was automatically imported from the original Patient Experience[/i:05bd90f08f]
1 like, 17 replies
Guest
Posted
I was diagnosed when I was 32 with 27 percent of a vertebrae in my lower spine gone. Since then, I do not think I have had the care and attention from my doctor that I should have. No one knows if it is worse or not. I have changed doctors again, because the new surgery actually has doctors that are more experienced to deal with arthritis.
So keep badgering them and if you are not satisfied get in touch with your local Patient Liason Group (PALS) and complain.
I was also told I would be in a wheel-chair by the time I was 40, I am now 53 and still walking about, albeit with a walking stick. Don't give into the depression that will always grip you, take each day as it comes and adjust your life to what you can do. I did and it helps.
Guest
Posted
essex_girl
Posted
My condition still remains unstable with regular changes to my medication every year or two.
I walk with a stick & find almost everything difficult to do, so always need constant assistance in some way or another.
I am now 52 & taking 200mg of Tramadol twice a day, also just been prescribed an additional tablet called Gabapentin, I am only on 100mg three times a day for the first month, then it gets increased to 300mg three times a day, then 600mg etc.. until they get to a level where I am hopefully more stable & can be taken off of tramadol.
I have tried acupuncture, massage, cupping & herbal remedies with very little relief & only £500 worse off in my pocket, so I wouldn't recommend it to people with severe/chronic osteoarthritis.
As with most people it does make you wonder what my future is going to be & how much more severe this can get to!! :roll:
SES
Posted
I am 35 and I have had pain in my left hip for 18 months and I was born with dysplacia ........ I had problems with my pelvis when I had my children also as I was told the pelvis was too small!!! since receiving my medical notes for a tribunal I found out that I have \"small narrowing and no gross OA in my hips\" this was the result from an x-ray in may of 2007..... my physio had said I had osteo but my GP even though it is written in black and white there is OA but not a gross amount (my interpretation) he had put the pain in my hip to my fibromyalgia....... the point, being now I am in pain no matter what I do now, sitting, lying down I can't bend forward or twist round due to the pain I get in my hips (pain is in both sides now) so I am wondering will the doctor tomorrow listen to me, I think they need to x-ray my hips again? my left leg goes kind of numb too when I have been sat down do not know if this is due to the O A?
I am on Tramado (1-2)l 4 times a day, with Gabapentine 500mg but tabs do not seem to work.........I do have degenerative discs however but I know there is no pain coming from my spine! Thank you so much for reading this x I do hope you all have a good day :cheerup:
Kind regards
Rictina
Posted
I think the problem with me is that O.A is considered to be a condition which the elderley suffer from, NOT a young person. Oh by the way I am not overweight, I am a size 8.
The medication I am taking at the moment is Declofenac, Codeine Phosphate,& Parecetamol, which seems to ease the pain. The worst time for me pain wise, is in bed, & mornings. Does anyone know of any different / better pain releif ? I am waiting for an appointment to see an NHS Homeopathy therepist.
I would like to thank everyone for reading this, please feel free to comment. As you can probably tell this is my first post on here.
Kind regards.
Rictina.
SES
Posted
I have Tramadol and Lyrica but lyrica is for my fibromyalgia, I am in constant pain and sat most of the time with a hot water bottle on my left hip as this is the most severe, I also get pain in my knees as this is reffered pain?? I am finding it difficult to get comfortable going to bed as I cant sleep on my sides, I cant sleep on my back due to OA in spine and now I have severe pain in my left shoulder so cannot get comfortable one bit, I am off to see the Rhuematologist though this month so hopefully he will have answers????
Does this cold weather effect you more too as this is the worse months for me too xxxx!!!
Take care x
Rictina
Posted
Thanks for the reply. Is Tramadol a pain killer or anti-inflamitry ?
Yeh, the winter months are definatly the worse. I live in the North of Scotland, although originally from Lancashire, & its freezing cold. Everyday I have to wear long johns :lol: under my jeans, & the dredded ugg boots :roll: , they are the only thing I can wear on my feet, high heels are a complete no, no. Not that I like them anyway, its just nice sometimes.
You sound like you suffer alot with other aches and pains, it sounds horrendous. I bet you get fed up with it all, I know I do.
Anyways, bye for now & take care.
Rictina.
astra39
Posted
I have been diagnosed with sever OA in my left hip, and bilateral hip dysplasia. As someone said earlier in this thread, my undiagnosed dysplasia (from birth) had contributed to my advanced OA at 40. I am having a hip replacement in 2 weeks so am hoping that this will relieve the pain on that side. i also have back pain and pain in my right hip, which I have been told I will need some surgery to prevent OA developing as severly on right hip.
I have had problems with hips and back for 15-20 years and it only this past year that I have got to the bottom of it all. So my advice would be to keep going back for consultations, see specialists, ask for investigations. There must be a definitive cause and therefore treatment for your pain.
Good luck :wink:
SES
Posted
Rictina, Tramdol is a pain killer hun, I took diclofenic which was a anti-inflammatory, there is Iburofen you normally get over the counter!!!! The snow has made my condition worse along with the colder weather, it has been horrendous the pain. I hope you are having a better day xx
Astra39 I had congenital hip displacia, which means from birth and whilst I was pregnant with my children I have pubis dysfunction, I think there is a link here along with the OA in the spine, but no doctor has said this??? I too have back pain, there is certain part I can't bear touching as the pain is awful, I have OA in the spine too so that is my cause of pain here :oops: I do see the Rhuemo this month, I am just hoping though this time I am listen too as last time I saw a Rhuemotologist she said I had \"mechanical back strain\" and I was overweight!!!! she was annoyed I hadn't seen the physio but this was due to a waiting list!!!!!! The Physio diagnosed the Fibromyalgia and OA of hip??????? and she was proved wrong as I have OA in spine and hips were confirmed by x-rays!!!!! my liver function test has been high for 18 months along with my sed rate being elevated so hopefully my appointment this month further investigations will be done???? :roll: I hope you recover quickly from your operation xx
I do hope everyone's pain is less than yesterday and I hope everyone has a good night sleep xxx
Kind regards xxx
Rictina
Posted
Hi there.
Have you ever taken Codeine Phospate ? Thats what I am taking for my pain relief, but it does tend to make me feel dizzy, and sickly if I take too many. Maybe Tramadol will be an alternative.
Heres hoping for a pain free night :!:
Regards.
Rictina.
SES
Posted
Yeah I take Tramadol and the pain specialist told me to take paracetamol with this also, I have a three year old and so getting totally doped up is not good so unfortunately I have to be careful what meds I take??? no meds actually work anyways as they only take the \"edge\" off!!!! Anyways I do hope you are having a lovely Valentines day, my hubby bought me a gorgeous card and some lovely pajamas as that is what I wanted :lol: so well chuffed, I hope you have had a good day too........ the pain has been horrendous for me, I do hope you are ok???? I hope you are coping too x
Kind Regards
SES x
Rictina
Posted
Glad you had a lovely val. day. My Husband bought me some comfy slippers from Next & a gypsy scarf, which is really nice.
When I next go to the doctors Im going to ask her about Tramadol. The Codeine phospate I take makes me really dizzy & sickly. I also take Paracetamol as well, but like you say it doesnt take the pain away completly. I hate taking all these meds, I find I carnt think straight.
I feel like an old granny :lol:
Anyways SES, keep smiling.
Rictina.
SES
Posted
I am off to the Rhuematologist tomorrow so I do hope I am listened to? the pain has been unreal in my back and hip!!! anyway I do hope you are having a better time of things xxxx
Take care x
SES
Rictina
Posted
How did your visit to the Rhuematologist go, any good ?
Rictina.
SES
Posted
Yeah good, he said I do not have \"fibromyalgia\" but \"polyarhtritis -autoimmune\"....... my anti-bodies are attacking my joints sort of thing can't remember full wording and as my liver function test has been high now for over 18 months or longer....... I have to go for an abdominal scan and biopsy soon as he was not impressed by what I told him what last rhuemo said, she said my blood abnormalities 2 years ago didn't mean much and I didn't get support off last GP....... so glad I changed surgeries in august last year as I wouldn't be having these further tests done now!!!!
I think I am looking at RA? I could be wrong but my nana had this and that is auto-immune etc etc...... anyway how are you? how have you been the winter months are bad...... I havent had a break from pain from november :oops: hope you are coping ok? I hope you have good support from your GP too xx
Take care xx