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I'm loosing myself and I just can't stop crying it's been months

Posted , 8 users are following.

ronnika411
ronnika411

Hi I'm 29 years old I'm facing some life changing life threatning symptoms and I'm just crying out for help for comfort for relief a piece of my I don't know what's going on and I never imagined my life being like this but being afraid to go to bed has cause me to become completely afraid I've been to the er so many times they think I'm crazy I've had a ct they saw nothing but since July I've had this pressure dizzy feeling in my head behind my eyes no relief at all I wake up and go to sleep the same I cannot even work they said veritigo and gave me meds and symptoms have bed changed a bit BUT wait that's not it I have a bad case of anxiety and now I'm having like pinching feelings all over my body I'm scared to death they ran all kinda blood test never came back wit any news I know no news is good news but there's something going on and I need to get to the bottom of this in loosing it I'm over the too exhausted wit the possibilitys no body understands I've lost people in my life who thinks I'm crazy I have no support and I feel like my life is coming to an end I need help sooooooo bad I wish somebody would help me in these hospitals it all started from me finding out I had thyroid nodules in my neck that needed to be checked for cancer after that it just all went down hill things I can't explain is going on I'm losing my whole life due to this I'm emotionally mentally physically drained do anybody know ANYBODY who can help me please I'm like begging

1 like, 74 replies

74 Replies

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  • donna40025
    donna40025 ronnika411

    Posted

    See ronni we are here and not alone - every comment is valid but head to that balance clinic and talk to doctors that know their stuff! 
  • dawn59672
    dawn59672 ronnika411

    Posted

    Ronni!  I am praying for you right now!  From my experience, when weird stuff that the doctors couldn't find answers to and people thought I was crazy have been spiritual attacks.  God is greater and He is good and wants you well!  Lets see if something changes soon!  Keep me posted!
    • rita52071
      rita52071 ronnika411

      Posted

      I know it tough and you are very young.......do you live alone????
  • rita52071
    rita52071 ronnika411

    Posted

    So sorry to hear all this...First thing get everything checked out with  the thyroid nodules....secondly....get and MRI of head and ears....go see an ent and neurologist.....and opthamologist.....make all these appt.....dont know what meds you are taking but maybe they can give you a low dose valium just to take the edge off....Keep posting.......Do you live in UK????
    • ronnika411
      ronnika411 rita52071

      Posted

      Well I been back and fourth from endocrinologist for the thyroids even got a biopsy two we're benign one has to be re tested I have 3 go back to Doctor on the 16th far as the dizziness idk they saying it's not associated wit the nodules but I have yet to get a appointment with a specialist for my dizziness I got a ct they say nothing a few weeks ago but I went to er few weeks ago he told me there was fluid In my ear and gave me nasal spray which haven't changed the popping in ears or dizziness and now I can't sleep feels like I'm falling when I close my eyes so I'm going to see a balance Doctor someone on here suggest I do asap
    • rita52071
      rita52071 ronnika411

      Posted

      the dizziness is going to take time...not a quick fix   
    • rita52071
      rita52071 ronnika411

      Posted

      i will check my computer in about 40 minutes....what state or country do you live in????
  • rita52071
    rita52071 ronnika411

    Posted

    I live in  New york........Please keep posting
    • ronnika411
      ronnika411 rita52071

      Posted

      I live in Chicago and I know it's not gone happen over night but I wanna start progressing cause it's ruining my life the pinching feelings has started its just crazy cause I never had any issues in life till July this year
    • rita52071
      rita52071 ronnika411

      Posted

      picking can have something to do with a nerve........could be neurological......okay....get some rest.....I know how you feel thats its ruining your life...I needed to leave my job because of the dizziness....I was very outgoing etc...over night got so bad   er and that was that..........still trying to find answers.........
    • Terry6872737
      Terry6872737 ronnika411

      Posted

      There is also a balance/dizziness center at Mercy Hospital/Medical Center.  Not sure where that may be in relation to where you live in Chicago.
    • ronnika411
      ronnika411 rita52071

      Posted

      Yessss I quit Friday I cannot take it I be dizzy and confused having panic attacks I think from worrying I had to face facts that I really can't work I been struggling working for the past months and ppl think it's not that bad but it really is and yes I think something is going on wit my nerves as well I just hope we all get answers and well soon
    • ronnika411
      ronnika411 Terry6872737

      Posted

      That's where I'm going tomorrow another woman on here told me about it I'm definitely on it I need help this stuff is getting the best of me I appreciate you all I still feel the same but mentally a lot better because all u guys concerns it's crazy how strangers can come and give u more peace than ppl who see u suffering everyday
    • ronnika411
      ronnika411 Terry6872737

      Posted

      I'm very familiar wit that hospital haven't been there yet tho I always go to my neighborhood hospitals which tells me nothing 😥
    • Terry6872737
      Terry6872737 debbie82116

      Posted

      Yes. I was diagnosed with vestibular neuritis and my issues began March 23,2014. I am 95%, or so, recovered. I still have issues in some settings of feeling dizzy ( drunk type feeling) and barometric pressure changes cause me issues.
    • ronnika411
      ronnika411 Terry6872737

      Posted

      I know your telling Rita this but Yes drunk feeling I always say that is a feeling I have so u know exactly one of my spells
    • Terry6872737
      Terry6872737 ronnika411

      Posted

      Wherever you go, I would tell them about the head trauma.  Concussion can present with these same symptoms and you do not always feel the results immediately after the trauma.  It can be weeks or months later before you experience issues from concussion.  Not saying that it is not vestibular, just make sure that everything is considered.  I would recommend going to the balance/dizziness center versus wasting time with an ENT or GP.  A Neuro-Otologist specializes in the issues that we are dealing with.

      I also think that it is a good sign that 2 of the 3 biopsies were benign.  Pretty good chance that the 3rd one will turn out to be as well.  I would think that if it was ruled inconclusive there was no clear indication of any cancer cells.

      I am in the US as well.

    • Terry6872737
      Terry6872737 debbie82116

      Posted

      I had ear pressure for probably 7 or 8 months.  Never had any pain, my left ear just felt like it was stopped up.  My issues began with rotational vertigo and after that I had tremendous balance issues and a foggy spaced out feeling along with the ear pressure.  I had occasions where I would feel like I was going to pass out and when I went to bed I would feel like I was falling when trying to sleep.  I could not go in stores and driving or riding in a vehicle made me nauseated.  I would have nausea feelings hit me just out of the blue.
    • ronnika411
      ronnika411 Terry6872737

      Posted

      Yea I'm hoping that 3rd one is good as well but I still think I'll have to get it removed it has my neck swollen wit a goiter so I go see my endocrinologist on the 16th but all the ways u felt is how I feel everyday omg I never knew so many ppl have these issues its terrible but im happy to talk with someone who understands I'm forever grateful
    • ronnika411
      ronnika411

      Posted

      I've been told also I had fluid in my ears and there's a popping feeling in my ear now as well I was treated for that wit nasal spray didt help but I'm going to go to mercy tomorrow and find how to make that balance appointment
    • debbie82116
      debbie82116 Terry6872737

      Posted

      So glad you've almost recovered! What a relief!!! Its good of you to still be on here helping people.

      Debbie

    • debbie82116
      debbie82116 Terry6872737

      Posted

      Thx for your reply. My left ear is stopped up too but i also get pain. What about neck pain? Did you ever have that? Headaches? Did you adjust your diet at all? Salt intake or caffeine??
    • rita52071
      rita52071 debbie82116

      Posted

      So so happy for you....Yesterday my eyes felt funny...nothing bad just funny...I thought it was from the brightness from outside......well anyway......took off my glasses looked in mirror and saw my both eyes were like jerking....not alot but enough for me to notice......I had my boyfriend look at my eyes he said he saw a little jerking and on my left eye the pupil was slightly turned towards my nose........he saw this with his naked eye!!!!!   with all the testing I went through no jerking has ever showed up.....Whats happening here!!!!  I have some ideas Would love your intake...........
    • rita52071
      rita52071 Terry6872737

      Posted

      I know Mercy Hospital Center is in the Bronx New York But there should be a balance center in Chicago
    • rita52071
      rita52071 ronnika411

      Posted

      Believe it or not sometimes you have to breathe.......sounds silly but helps....breathe in count of three hold for 4 breathe out slowly could of 5....do it three times...........
    • Terry6872737
      Terry6872737 rita52071

      Posted

      There must be other Mercy's in the US.  Mercy Hospital/Medical Center is in Chicago at 2525 S Michigan Ave.  Hospital's been there since 1852.
    • ronnika411
      ronnika411 Terry6872737

      Posted

      It's a mercy in Chicago I just got a appointment for next week thank u Jesus just the possibility of help makes me feel a lil better
    • Terry6872737
      Terry6872737 ronnika411

      Posted

      If you have fluid that may well be what the issue is being caused from.  I can't believe that they didn't have a follow up with you to ensure that it was cleared.  Antibiotics would have helped as well.  A steroid nasal spray, which I am only assuming that you used, will only impact the tissue in the nasal sinuses not always the eustacion tubes.
    • Terry6872737
      Terry6872737 ronnika411

      Posted

      You are headed in the right direction.  This is what their website for balance/dizziness issues says "At the Comprehensive Dizziness and Balance Center, all patients receive a complete and thorough assessment. Highly specialized, state-of-the-art diagnostic equipment helps our doctors obtain accurate and precise diagnoses. Mercy is one of only 10 U.S. hospitals offering Balance Quest™ Computerized Dynamic Posturography, a sophisticated balance platform that employs the latest technology to help doctors determine which parts of your balance system are giving you trouble.

      Once a disorder is diagnosed, Mercy’s experienced vestibular therapists develop a personalized treatment program. Centered on a regimen of exercises and activities, each treatment plan takes into account the unique needs of the patient and aims to minimize symptoms and improve independence and quality of life."

      Let us know how it goes for you.

    • rita52071
      rita52071 Terry6872737

      Posted

      are you talking about the hospital that is in the Bronx????  mY ent doctor did more testing at the balance center that was literally right need to her office and as far as I understood it was computerized....after results she said she it was vestibular migraines........or at least thats what they think it is..........I had gone for therapy prior which helped and I am still having issues.....my eyes did some jerking yesterday plus one of my pupils turned in a little........need to get my eyes checked......was reading alot about vertical heterophia...mimics vestibular problems....with all the testing I have been through no one saw any jerking ......honestly I dont know what to think anymore...now i feel like things are rushing to my head.....I do wear glasses presently
    • debbie82116
      debbie82116 Terry6872737

      Posted

      Thx Terry. Did you do VRT? If so, did it help you? Did you take any meds for ear pressure? Was there anything that relieved it at least temporarily?
    • Terry6872737
      Terry6872737 debbie82116

      Posted

      I sent you a private message on some of your questions.  It shows that you haven't read it yet.  Did you get a notification on it?
    • Terry6872737
      Terry6872737 debbie82116

      Posted

      I also took several rounds of a steroid dose pack that I believe eventually eliminated the stopped up feeling in my ear.  Reduce the fluid and the pressure should resolve even though the fluid is not visible upon examination.  Most likely your inner ear nerves are inflamed from fluid or damage.
    • Terry6872737
      Terry6872737 debbie82116

      Posted

      Once you are signed in you should be able to go to your messages and just reply to it.  Or you can sign in and on the left of a reply from me you will see an envelope under the icon next to my user name.  Click on that and it will take you to a private message.
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