I needs some helpful information

Evening

Are you in the UK. I’ve done a chat about helpful advice in the West Midlands UK about going to a sexual health clinic, have a read as there are list of some products😃

Hi Torsha,

?My treatment contains borax and baking soda baths and rinses.  A strict diet: no added sugar, no gluten, no alcohol, no caffeine, limited dairy.  For moisturizing I use coconut oil.  To keep the vagina open and help the flow of urine I do regular dilation.  The most expensive item, of which I am not sure it is beneficial, is hormone replacement.  It is important that I eat home cooked meals from fresh ingredients as much as possible.  All 'artificial' foods are suspect, the kind of food that never spoils, for instance.  

?Hope this helps you on your way. 

Hi torsha i have tried heaps cortisone best one that work for wee while advanton i had a coloscopy yesterday at my six month check up with gyno i been seeing gyno every 6months use to be every 12 weeks but i got so upset said im over it i asked can we try burning freezing lumps and she did it but it was cruel and it hurts but hooefully  i also said i want try some pills but she said to much cortisone having orally but i hv about 30 different creams i think they using different methods to find a cure ive help the gyno some other things i reserched emuaid helps but expensive and the emuaid soap cost $45 but didnt help ive had ls for years the reason gynaecologist check me for coloskopy because it can become cancerous and theres not enough reserch its trial and error but well see when i heal in a day or so as i said i demanded to freeze burn because im so over ls it’s humiliating and Depressing  and im sick of the regular checks but atleast there concerned enough to make sure its not cancer as yet  so hopefully you get regular checks too and just keep reserching what other ls people have tried good luck hopefully soon someone somewhere will find a cure

Hello Torsha, I'm so sorry about how you're feeling.  There are a lot of people on this forum who have ideas about things that can help.  The shrinking is indeed part of the problem and the steroid cream is supposed to help avoid it, but it doesn't always work for everyone.  If you can't afford the steroids, do you think you could contact the drug company to ask if they can help?  Some of them have programs where they give free meds to people who need them and whose insurance won't cover them, or who don't have insurance.  There are a lot of people who get relief from the itching from certain creams or even hormone treatments.  Don't give up and if your current doc isn't helping you, don't be afraid to go elsewhere.  You will become the expert.  

 

Hi torsha i only pay $5 i get 6 tubes of advantan i find it was one of the best im in Australia im happy to send you some  tubes for nothing i dont kniw how to use these forums but if you do pl let ne know and ill post it to you gladley to help as i know exactly what your going through also hot shower hand  shower head and use hairdryer on warm will give some releif my hart feals for all ls patients

I think you need to find a way to afford the prescription ointment because frankly that is the only thing that can actually heal LS and keep it at bay (even on the Clobetasol you will experience relapses/flare-ups).  I tried natural remedies which would help temporarily, but several doctors have stressed to me over the years that natural remedies are not a long-term solution to LS and will do nothing for the structural symptoms (e.g. shrinking labia) caused by LS.  The itch can be controlled by various oils (coconut, emu, jojoba have all worked for me) and by baking soda baths, but shrinking tissue will not be healed without the steroids.  A diet free of sugars and processed foods can help.

I recommend looking into all avenues that may help you to find a way to afford the clobetasol ointment.  Many doctors will be willing to help out by providing manufacturer's samples if you tell them that you can't afford the full prescription, or by ordering it through an online pharmacy.