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I stopped using Steroids - READ THIS!

Posted , 17 users are following.

do21103
do21103

Hey all,

I'll try to keep it short 😃

*I have Lichen Sclerosus since I was a little girl, and been diagnosed with a biopsy in 2011 at age 19.

*Since then I had used the standard topical steroids cream/ointment + pelvic floor physical therapy (when I had the mental patience for practicing at home...).

*The steroids attracted HPV and yeast infections constantly.

*A year ago I pressured my gynecologist to stop the steroids and find a different treatment.

READ THIS:

Since last October (a year now) I've been using a special compound of:

Traumeel in Petrolatum 10%

My gynecologist prescribes it to a pharmacy in Philadelphia that compounds it especially for me.

What is Traumeel exactly?

I'm not exactly sure. Some kind of anti-inflammatory. A fixed combination of diluted plant and mineral extracts. Petrolatum is just the "carrier" and it's basically what we call Vaseline.

There is a shelf product called Traumeel that is used mainly for muscle pain - my gynecologist had advised me not to use it. He only experimented with the special compound and never tried the shelf product. But in general - he doesn't like shelf medications.

*Moreover, I use Coconut oil twice a day.

*The Traumeel compound + coconut oil twice a day + pelvic floor physical therapy once in a while =

  • I am currently in full control over my LS. It is the best it has ever been in my entire life!!
  • The HPV is Gone!
  • The yeast infections are Gone!

Is there anyone here that has the same experience?

Kisses,

DO21103

5 likes, 37 replies

37 Replies

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  • Vero84
    Vero84 do21103

    Posted

    I am in the UK and we only have the Traumeel for the muscle stuff. Can that be tried as a last resort? I don't think I could get your version made here...

    • do21103
      do21103 Vero84

      Posted

      Try to find a pharmacy in your area (or that is able to ship to you) that can do

      compounds by request.

      What you need to request is - Traumeel in Petrolatum 10%.

      They will know what to do.

      If they require a prescription then ask your doctor to prescribe it.

      Petrolatum is the carrier for the Traumeel.

      I was offered 4 different options for the carrier. I tried each one for a week (plain, without the Traumeel) and chose Petrolatum since it was the carrier that i felt the most comfortable with. Other options burned a little bit.

      When you contact the pharmacy ask if they can send you plain testers for different carriers so you could choose the one that is best for you. Try each carrier for a week.

      I hope that helps!!

    • Vero84
      Vero84 do21103

      Posted

      Thats so helpful than you very much. I am trying olive oil now but if it doesn't help will get this sourced somehow. x

  • Nancy_K_B
    Nancy_K_B do21103

    Posted

    Oh DO! Thanks for your wonderful detailed message. It's wonderful to hear about other peoples responses to steroids. I'm not in your age/stage of life (73), so my experience is way beyond menopause. But just to share: I haven't taken the steroids at all in the last 2 years since diagnosis. I have used a whole slew of autoimmune nutritional supplements that I read up on online that are validated by NIH and MD's and such professionals.

    Most of us here eat a pretty much anti-inflammatory diet. Was that ever recommended for you and your mother when you were young? I'm so happy for you that you finally got old enough to notice that steroids have terrible downsides. Many blessings. OH, and if you ever want to change it all up, you could have your compounding pharmacy put the Traumeel in the soothing, healing aloe vera gel instead of the petroleum product. A health food store nutritionist told me about that a year ago when I was having a flare... SO wonderful. YOu might find these useful that I wrote up about 18 months ago for us all.

    https://patient.info/forums/discuss/aloe-vera-gel-with-tumeric-essential-oii-best-healing-ever--667353

    https://patient.info/forums/discuss/nutritional-support-for-autoimmune-diseases-updated-for-several-skin-disorders-641279

    • do21103
      do21103 Nancy_K_B

      Posted

      Hey Nancy,

      Thanks for your message and the links 😃

  • do21103
    do21103

    Posted

    I feel like not enough women here have read my post...

    The Traumeel can be life changing and I wish more people will be aware of this option. It can replace the steroids. And I might be the only proof for that at the moment, since as far as I know there is no research happening on it.

    Btw, I've realized I haven't explained my routine at all:

    2-3 times a week - Traumeel Special Compound

    Twice a day EVERY day - Coconut Oil

    2-3 times a week - Pelvic Floor PT (though I should do it every day...)

    I only use 100% Cotton underwear

    I only use Clean and Clear laundry detergent

    I only use Organic Tampons during period

    If anyone is from Philadelphia or the area - DM me and I'll send you my Doctor's info. He is a world-wide Specialist. I Live in NYC and go all the way to Philly every 2 months to see him!

    I hope this information helps...!

    • ana14999
      ana14999 do21103

      Posted

      are you still using traumeel ?. I am currently using it and have seen a lot of improvement! It is incredible what I have improved

    • andie19902
      andie19902 ana14999

      Posted

      Are you using the over the counter Traumeel or presecribed?

      Has it helped with skin quality or just itchiness etc?

    • do21103
      do21103 ana14999

      Posted

      Wow! I'm so happy to hear!! Yes! I'm still using it! About twice a week. If I feel like getting itchy I use it a few extra times. I also continue with my coconut oil routine twice a day. And recently purchased a bidet - so no longer wiping with toilet paper. Just tap drying with a soft towel 😃

      Are you using over the counter or a compound like I recommended? Did you get the idea from me? Or did a doctor recommend it to you? I'm super curious 😃

    • do21103
      do21103 andie19902

      Posted

      Andie19902 - I also asked her and waiting to hear.

      If you ask me - it helped my overall situation. My skin is as normal as it gets with lichen, I haven't had flares in years! If I feel tiny bit itchy I use it extra. And I use a compound. Prescribed to me by my gyno.

  • pat17264
    pat17264 do21103

    Posted

    Hi: could you share your doctor information? I'm not too far from Philly, and it would be worth it to find someone who is willing to prescribe more than clob and estrogen cream.

    • do21103
      do21103 pat17264

      Posted

      Dr. Ryan Sobel at Jefferson University Hospital

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