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I’ve been sick for 3 months... PLEASE HELP.

Posted , 10 users are following.

emmamay_19116
emmamay_19116

I have no where else to turn, please someone take the time to read this and help me, it would be much appreciated. 

I am a 19 year old female, 5’5 and 128 pounds. I exercise daily (except since I’ve been sick) I eat relatively healthy with the occasional fast food.

It all started one day in nursing class, I became very very hot and sweaty and an all around overwhelming feeling like I was going to pass out, I felt like I couldn’t breath and became tingly all over. I was able to get some air and did not pass out. That following week I was vomiting profusely with the addition of feeling disoriented and shaky and on and off feeling of going to pass out. I also experienced a lot of diarrhea. The diarrhea wasn’t alarming because I have experience that on and off at least once a week for as long as I can remember (years). After that I got sick with a cough and runny nose, chest pains (extreme) that have since been checked by a cardiologist and he called it sinus tachycardia, as well as a bit of an irregular heartbeat. After that I started experiencing extreme abdominal pain and was hospitalized because they thought it was my gallbladder (still do) but there were no kidney stones. I was checked for blood clot and pneumonia as well. In the last couple months I’ve had chest X-ray, abdominal X-ray, two CT-scans and one showed diverticular disease. After that I got a bit better with on and off abdominal pain (it feels sharp and seems to move around my abdomen) and became ill will bronchitis and a sinus infection. Both have cleared up well. But, I still do not feel well. Everyday I have this dreaded brain fog feeling, terrible head pain and pressure as well as headaches. The head pain almost feels like my head is bleeding on my brain, like a warm liquid. I feel tired and weak, I’m shaky and itchy. My legs ache so so bad all of the time especially when lying down, I have terrible pain in my kidneys that comes and goes, vision troubles and sometimes my legs and feet flare up in hives for no reason. I have told my doctors this but they only address one symptom and send me on my way. I know I am not crazy, this is not anxiety or depression it is physical and it is there. It’s becoming almost crippling to my everyday life. I don’t know what to do, I just want to feel better but this is making it hard. 

Please someone help me I am looking for a new doctor but has anyone else experienced this? I just know there is a reason for this....

0 likes, 25 replies

25 Replies

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  • des91
    des91 emmamay_19116

    Posted

    Im so sorry you are going through this. I myself have been feeling very weak and feel like I’m going to pass out. It happened all of a sudden just like you. I have the pressure and brain fog but the lightheadedness is what i hate the most. I also feel very weak and skay. I’ve had so many test done. Brain MRI and ct scan showed normal. Abdominal scans showed normal. Then I thought it was my gallbladder which when tested, (HIDA scan) I didn’t have kidney stones but it was only functioning at 19 percent. They took it out and i have healed but still have my symptoms.  

    Here are the things i think could be wrong: Gluten intolerance (doesn’t have to be celiac), vitamin D/Magnesium or folic acid deficiency (can cause weakness/feeling faint), or thyroid issues, autoimmune diseases. Have them also check for mono and lupus. 

    I hope this helps. You are not alone. 

    • emmamay_19116
      emmamay_19116 des91

      Posted

      Thank you so much! I too was recommended to get a HIDA scan done but the pain comes and goes.  I think I’ll call my doc but I’m just scared of getting surgery. I hope things get better for you, I will definitely research some of the diseases you’ve listed! I am just so tired of feeling sick all of the time, I hate the detached feeling and like I’m gonna faint. It is so scary! My doctors act like it’s nothing or ignore I say anything at all. Thank you so much!!
  • des91
    des91 emmamay_19116

    Posted

    I completely understand how scary it is. My family and friends as just as shocked as me how this is all happening out of no where. I went from being active and completely independent to being home bound from one day to the next. It’s been almost four months. 

    I was so scared to get surgery too but I spoke to many people who said it may just never get better. I also didn’t want to spend another couple months wondering if my gallbladder was causing my symptoms. 

     I also wanted to tell you that I came across something called POTS. It’s a scary disease but doesn’t hurt to get an opinion on that too.

     Doctors have not been helpful so it makes it hard to stay positive but don’t give up. Keep trying. I’m the meantime, do your best to not stay in bed or on the couch all day. Keep your body moving. Set tiny goals like walking to the mailbox or the end of the street. And be sure your vitamin levels are good. 

    • emmamay_19116
      emmamay_19116 des91

      Posted

      What are some things you do to cope with how you feel? Recently I’ve noticed myself becoming more on edge and anxious because I don’t know how to successfully deal with the symptoms I feel. I have class during the day but after I get home I lay in bed until it’s time to sleep. I’ll get up and eat and make dinner but even that is so much for me to do. I always feel like I’m in a dream and it’s hard for me to comprehend what others are saying and it takes a lot for me to try and say a simple sentence. Right now I have a lot of neck and head pain... feeling spaced out. I really appreciate you replying to me you do not understand how nice it is to talk to someone who doesn’t think I’m crazy. 
    • des91
      des91 emmamay_19116

      Posted

      I’d be lying if i said i didn’t cry everyday because I hate not know what’s wrong with me. I have these episodes where I just feel like I’m going to collapse so i can’t even go anywhere. The fact that you go to class is something I can’t do right now. But I try to keep my mind busy. I listen to music while doing small exercises. I stay out of bed even though I want to lay down so bad because I’m so weak. I feel like I will only get worse if I stay in bed. At first I expected to wake up feeling better from one day to the next. But I know now that it’s not going to be overnight. I have to work and push my body. 
    • emmamay_19116
      emmamay_19116 des91

      Posted

      Hey again, I know I haven’t replied in quite some time just had a lot of appointments and stuff going on. I refused to give up and kept pushing at my doctors and the only thing they found was that my liver has scarring and some damage and a lot of fat build up on it! They said they would have never suspected it to be my liver, but that it explains the yellowing around my eyes! I still am in shock that this has caused me to be this sick, and feel as bad as I do. I do believe that there is something as well as the liver problems. I go in a couple weeks to see what it causing my liver to become like this. 

      Hope all is well for you smile 

    • Guest
      Guest emmamay_19116

      Posted

      Hi, I don't want to offend you but are you slightly overweight? Where does you body store fat? Is it around your middle? Sorry if I sound nosy.

    • emmamay_19116
      emmamay_19116 Guest

      Posted

      No offense taken smile I actually am 125 pounds, 5”6 and have more muscle than body fat (not to sound full of myself) but I worked out and took great care of myself before all this happened. My dr says I am in very good ideal shape.
    • Guest
      Guest emmamay_19116

      Posted

      Well done, on a BMI calculator that is 20.2! Your dr is jolly right!
    • des91
      des91 emmamay_19116

      Posted

      Hello again. I too have been busy still trying to figure out what is wrong. The only things that i have found wrong were my magnesium levels, gallbladder (which was removed), and gluten (which has only taken away headaches). I still feel horrible though. I still have abdominal pain, the constant lightheadedness and internal shakes, along with vision floaters. Since my last reply, i have had more tests for autoimmune diseases, upper GI scope and a colonoscopy (all normal). I’m so fed up but now I have also learned  about ferritin. It is the protein that stores your iron. I kept thinking I have all symptoms of anemic, minus the abdominal pain but my hemoglobin is normal (13.5) so why do i feel this way? And someone from another post on here advise me that I could still be iron deficiencent if my ferritin is low. So now I am going for a test this week. 

      I am glad you have found some kind of explanation and you are right about maybe having more than one problem. I have more than one problem. Continue to listen to your body and you will find it. It sucks that we kind of have to become doctors to figure it out. sad post another update when you can. 

  • holly54503
    holly54503 emmamay_19116

    Posted

    Hello, I’m so glad I found someone with similar problems. Mine have been going on for three months, it’s given me axiety that I’m dying. Recent ice started jabbing chest burning and pains. I get hot flash and cold chills, light headed, foggy headed, stuffy headed, shaky, twitchy, abdominal pains ect... they come and go, but sometimes the sythoms will last 24 hours. I also sometimes I can’t keep food down. I’ve been to hospitals and specialist and they can’t find anything. I’m tired of feeling horrible, I want a solution. 
  • emmamay_19116
    emmamay_19116

    Edited

    Hey guys, just thought I’d give a bit of an update. After begging my doctor at 6+ appointments, they finally tested me for hepatitis. It came back positive, I know where I got it from. A McDonald’s. My liver is scarred, inflamed and failing. Just goes to show that something was wrong the whole time, I was right. Don’t let someone tell you that there isn’t anything wrong!!! My doctors were baffled when they saw the results. They said there was no way because of my age. I hope all of you who has responded, I hope all of you are getting some answers!
    • des91
      des91 emmamay_19116

      Posted

      Wow!! I’m so sorry this happened!! I hope you get better soon. Did you ever have a fever or pain where your liver is??
    • emmamay_19116
      emmamay_19116 Guest

      Posted

      I only got French’s fries and a Diet Coke. Unfortunately hepatitis can be transmitted through and food or drink. The worker there was confirmed with hepatitis. It was all over the news, my family want me to final a lawsuit.. crazy 
    • emmamay_19116
      emmamay_19116 des91

      Posted

      Thank you. My initial post is the day I became sick with hepatitis, so the sweating, vomiting profusely, fever. Is all from that. I have constant agonizing pain where my liver is. The first CT scan I got done in the emergency room showed an enlarged, scarred, fatty liver. They refused to test me for hepatitis. That was in December of 2017. I didn’t find out from my personal doctor until April 2018. That’s how long I’ve gone without anyone telling me!!! Now my liver is failing.. 
    • des91
      des91 emmamay_19116

      Posted

      Oh my goodness!!!! I can’t express how heavy my heart is for you. I would definitely press charges on someone. Maybe even the hospital too because you had to go months without knowing. Doctors made you suffer all because they didn’t want to run a simple blood test. sad I’ve been ill since December as well and barely got diagnosed April 2018 as well. It’s ridiculous how messed up the system is. I will never understand why doctors refuse to run tests that we ask for. The only person that truley knows their body is you! 

      I really hope you get the help you need. I’ll be thinking about you. 

    • emmamay_19116
      emmamay_19116 des91

      Posted

      I truly appreciate it. I’m just so lucky to have such an amazing and supporting husband. Honestly, no one has really been there for me or believed me besides him. Even after my diagnosis no one has tried to reach out to me. (Not that they have to but come on!) 

      I thought about a malpractice law suit.. I just wish it didn’t have to come to all of this..  I will be happy if they just pay my medical bills, past due, current and future. I can afford a liver transplant if it comes to that... I’m only 19! This just shouldn’t have happened... I am in pain all of the time... vomiting, crying, getting hot flashes and feeling faint... I’m covered in bruises because I guess that’s what happens when hepatitis infects your liver... I am up tonight with vomiting and in and out of a bath.. I just wish there was someone I could talk to... 

      You have been a great support!! I hope you get the help and answers you need!! If you don’t think something is right, keep pushing it! Get a second opinion!! It took me seeing 3 different doctors to get these results. The other refused to do further tests because I was “a healthy 19-year old!” Bull. 

    • des91
      des91 emmamay_19116

      Edited

      There is nothing better than having a support system. It truly makes healing a little easier. Only a few have reached out to me as well. It started making me depressed but I told myself I needed to worry about finding out what was wrong with me so I could start getting better. 

      In December I started feeling really tired but brushed it off due to moving. Then I woke up feeling lightheaded. For two weeks that’s all I felt but still went to the doctor and they couldn’t find anything. I flew back home and by Jan, I got extremely weak, short of breath and shaky. My first instinct was that I was anemic. Doctors kept telling me i wasn’t so they had me do dozens of other tests. By the end of March, I became my own doctor and realized I was never checked for iron deficiency. Low and behold that test came back extremely low. I started supplementing last week. Who knows when I’ll actually feel better though because it takes months to build iron. All this time I though being anemic was lack of iron. But no. They are two different things. Doctors only check for anemia. sad I got the same spiel about how I was too young to feel so awful only due to iron deficiency. Well no duh. But I’m here and I need help. 

      I know my diagnosis is no where near as complicated as yours but I still feel for you. If you need anyone to talk to, you can private message me on here. I always check them. Hang in there. Don’t give up. Now that you know what is wrong, fight harder. 

    • emmamay_19116
      emmamay_19116 des91

      Posted

      Hello! Just wanted to come back into this thread for a moment and ask if you’ve found anything more out? I’ve been thinking of you and your situation a lot as you were the first person to comment on my intial post. Since talking I’ve had 2 surgeries and countless procedures. I have to have at least 2 more surgeries over the next couple months and I have a procedure next week. I hope you have some answers? God bless.
    • natasha15782
      natasha15782 emmamay_19116

      Posted

      i know this post is old but worth a shot. what kind of blood test did they run to find the hepatitis? I have had so much blood work done in the last 2 months and they have not caught anything. Wondering if i would need to ask for a specific blood test?

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