I've been taking 1600mg dosage of cabamazepine/day for over 3 years but pain coming back

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I have been talking the above dosage as mentioned above 4 times a day but the pain keeps recurring.I've also noticed that I feel drowsy and become unsteady on my feet.Is there something Iam doing wrong?I need advice fast!

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  • Posted

    I took magnesium glycinate 400 three times a day. It helped. You can do acupuncture with electric stimulation to the face. It helped me. You can also do prolotherapy (dextrose injections) to the face where you have pain. Naturalpathic Drs do that. I would stop meds eventually.
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  • Posted

    Magnesium glycinate 400 mg that is...
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  • Posted

    Are you sure. Sounds quite a large dosage. I used to take up to 1800mg of gabapentin per day about three years ago but since having balloon procedure all pain has gone, although it may come back. I would suggest to all trigeminal neuralgia sufferers to have the balloon procedure. Fairly painless and no side effects after after a few weeks. 
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  • Posted

    Henry if you can, please try a natural product called Protandim. A mixture of ashwagandha, milk thistle, turmeric etc. It is quite expensive! but works out at £1.32 a day. There are some good results from this. You can buy via this website and also find out lots about it. Look up  Janette Mc skimming on facebook. Add her and of you go . She offers great advice and follow up. She is a nutritionist and homeopath.  I take it myself. Good luck and I sincerely hope this helps. Takes a while to get into your system but, just go with it. 

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    • Posted

      I tried every type of alternative medicine and therapy. None of them worked. Even purchased a device from Israel which I still have. Prescription drugs or an operation is the only answer. My cure was balloon procedure but the pain may return and I am keeping fingers crossed.
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  • Posted

    I started out with 200 mg carbamazepine now and then and that took care of the problem. That was in 1983. By 1998, when I had the MVD operation and was cured permanently, I was taking 2,000 mg a day with little to no results. If an operation would help you, you are at that point. I could no longer stand the pain and the medication, which slurs your speech and causes other issues.

    Good luck.

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    • Posted

      Dear gnm109,

      You're absolutely right.I feel helpless. Too much medication and surgery are not very good for me especially due to my advanced age.

      What next for me?

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