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I've been taking 1600mg dosage of cabamazepine/day for over 3 years but pain coming back

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henry_20448
henry_20448

I have been talking the above dosage as mentioned above 4 times a day but the pain keeps recurring.I've also noticed that I feel drowsy and become unsteady on my feet.Is there something Iam doing wrong?I need advice fast!

0 likes, 23 replies

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  • Nascar1
    Nascar1 henry_20448

    Posted

    I took magnesium glycinate 400 three times a day. It helped. You can do acupuncture with electric stimulation to the face. It helped me. You can also do prolotherapy (dextrose injections) to the face where you have pain. Naturalpathic Drs do that. I would stop meds eventually.
  • geoffrey35113
    geoffrey35113 henry_20448

    Posted

    Are you sure. Sounds quite a large dosage. I used to take up to 1800mg of gabapentin per day about three years ago but since having balloon procedure all pain has gone, although it may come back. I would suggest to all trigeminal neuralgia sufferers to have the balloon procedure. Fairly painless and no side effects after after a few weeks. 
    • gnm109
      gnm109 lee12629

      Posted

      Here is a link explaining the Balloon percutaneous operation for trigeminal neuralgia. The procedure is very old and is supposed to work by squeezing the trigeminal nerve so that its ability to transmit neural impulses, and therefore pain, is attenuated. There can be side affects of deadening of the face on the side where the operation is performed. Read the link below.

      https://www.cns.org/sites/default/files/clinical_neuro/chapter14.pdf

    • geoffrey35113
      geoffrey35113 lee12629

      Posted

      Details are on the internet but basically it involves pushing a wire up through your cheek into the brain and locating the trigeminal nerve. A balloon is inflated and pushes the nerve away from the offending obstruction.  This was procedure was recommended by a previous sufferer and worked fine for me. My specialist is in Melbourne at the Monash Centre. His name is Doctor Danks.
    • geoffrey35113
      geoffrey35113 lee12629

      Posted

      It should be on the internet. Look up balloon procedure for trigeminal neuralgia.
  • julia27621
    julia27621 henry_20448

    Posted

    Henry if you can, please try a natural product called Protandim. A mixture of ashwagandha, milk thistle, turmeric etc. It is quite expensive! but works out at £1.32 a day. There are some good results from this. You can buy via this website and also find out lots about it. Look up  Janette Mc skimming on facebook. Add her and of you go . She offers great advice and follow up. She is a nutritionist and homeopath.  I take it myself. Good luck and I sincerely hope this helps. Takes a while to get into your system but, just go with it. 

    • henry_20448
      henry_20448 julia27621

      Posted

      Dear Julia,thank you so much for the information.I will definitely try it.
    • geoffrey35113
      geoffrey35113 henry_20448

      Posted

      I tried every type of alternative medicine and therapy. None of them worked. Even purchased a device from Israel which I still have. Prescription drugs or an operation is the only answer. My cure was balloon procedure but the pain may return and I am keeping fingers crossed.
  • gnm109
    gnm109 henry_20448

    Posted

    I started out with 200 mg carbamazepine now and then and that took care of the problem. That was in 1983. By 1998, when I had the MVD operation and was cured permanently, I was taking 2,000 mg a day with little to no results. If an operation would help you, you are at that point. I could no longer stand the pain and the medication, which slurs your speech and causes other issues.

    Good luck.

    • henry_20448
      henry_20448 gnm109

      Posted

      Dear gnm109,

      You're absolutely right.I feel helpless. Too much medication and surgery are not very good for me especially due to my advanced age.

      What next for me?

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