I've been taking 1600mg dosage of cabamazepine/day for over 3 years but pain coming back

Posted , 8 users are following.

I have been talking the above dosage as mentioned above 4 times a day but the pain keeps recurring.I've also noticed that I feel drowsy and become unsteady on my feet.Is there something Iam doing wrong?I need advice fast!

0 likes, 23 replies

Report / Delete

23 Replies

  • Posted

    Are you sure. Sounds quite a large dosage. I used to take up to 1800mg of gabapentin per day about three years ago but since having balloon procedure all pain has gone, although it may come back. I would suggest to all trigeminal neuralgia sufferers to have the balloon procedure. Fairly painless and no side effects after after a few weeks. 
    Report / Delete Reply
  • Posted

    Henry if you can, please try a natural product called Protandim. A mixture of ashwagandha, milk thistle, turmeric etc. It is quite expensive! but works out at £1.32 a day. There are some good results from this. You can buy via this website and also find out lots about it. Look up  Janette Mc skimming on facebook. Add her and of you go . She offers great advice and follow up. She is a nutritionist and homeopath.  I take it myself. Good luck and I sincerely hope this helps. Takes a while to get into your system but, just go with it. 

    Report / Delete Reply
  • Posted

    I started out with 200 mg carbamazepine now and then and that took care of the problem. That was in 1983. By 1998, when I had the MVD operation and was cured permanently, I was taking 2,000 mg a day with little to no results. If an operation would help you, you are at that point. I could no longer stand the pain and the medication, which slurs your speech and causes other issues.

    Good luck.

    Report / Delete Reply
    • Posted

      Dear gnm109,

      You're absolutely right.I feel helpless. Too much medication and surgery are not very good for me especially due to my advanced age.

      What next for me?

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up