I've been told I have gastritis but I don't think my doctor is doing best for me, what should I do?
Posted , 14 users are following.
Sorry for the long post but I'm looking for some advice as I am at the end of my tether.
Three years ago I suffered for 10 months with nausea, acid reflux and excruciating stomach pains. I was told at first it was normal acid reflux then it was IBS and then it was endometriosis. I had an endoscopy, ultrasound on my gallbladder and other organs and internal gynaecological ultrasound with all coming back clear. I ended up in a&e twice in this ten month period and was seen by out of hours doctors on a weekly basis as I couldn't cope with the pain. I was told to take a variety of medications from omeprazole to buscopan etc with nothing working. Eventually it disappeared and nothing was ever followed up.
However this year it has come back and after another 10 months of suffering I cannot put up with it anymore. All the symptoms are the same plus a few new symptoms such as shortness of breath/struggling to breath and dizziness. I have been to my doctors on numerous occasions throughout the last 10 months and every single time they have just fobbed me off with different tablets which never work. I have been given one blood test to test for helicobactor pylori which was negative. I feel like they are not doing anything to help me and I understand it can be difficult if they can't find anything. I am a 23 year old woman and it is ruining my life. I don't sleep well and I feel unwell all the time. I can't remember the last time I felt well. I am sick to death and just feel like nobody wants to help me.
I would really appreciate if a professional could give me their opinion as I am just lost with what to do.
Thanks
0 likes, 18 replies
johnsonville charlotte11694
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charlotte11694 johnsonville
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johnsonville charlotte11694
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sheila91262 charlotte11694
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Sheila
lexyboddy charlotte11694
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abbie34168 charlotte11694
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lilian05079 charlotte11694
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A blood test for H Pylori is not reliable you need to have a stool or breath test. Go back to your doc and ask for one of these test to rule out HPylori completely. The acid reflux leads me to think you have HPylori also the pain and sickness. Ask your doc to do the breath or stool test just to put your mind at rest. These tests will definitely show HPylori if you have it. Dont be fobbed off. Under the Patients Charter for England and Wales you are entitled to a second opinion ...assuming you live in UK. If you fo have HPylori it can be treated with antibiotics....best wishes....
candi1 charlotte11694
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It sounds like you are going through an awful lot at your young age. And I do hope you get to the bottom of it and get the help you need.
I don't believe your doctor's are not helping you, they have listened to you and your symptoms which is why you have had sent referrals to have all these investigations done in trying to help you and so far everything has come back clear. So it is difficult for them to do much more When results are showing nothing all they can do is give you medication that may or may not work.
I would suggest more blood tests and try to push that forward.
also have you looked at what you eat and drink and if you know you could be eaten and drinking healthier then you should try to help yourself if you smoke or drink alcohol I would suggest avoid and try a pro biotic drink and yoghurt manuka honey is also very good for problems in the digestive system that would be my advice to you to try.
lynne69494 charlotte11694
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seems to me the blood tests, scans become the be all and end all, and easy for them to fall back on phycalogical reasons, and l dont dispute that can cause symptoms, but there are quite a lot of conditions that dont show up on standard blood tests and even scans, l dont think cfs or fibromyalgia sjorgens,do, sure there,s a lot more. l had severe symptons of pain ill health for years, put down to pots op cs, gyny, hormones, finally phycalogical, after years of this l guess l felt a bit like you, l,d seen one gp in main, but occassionally others, then different gp on call out referred me to urologist, after xray, scan, showed nothing, a scope diagnosed intersticial cystitus, which is just eg of conditions that dont show up in standards tests. l,d say to anyone if you feel that bad trust in your own judgement and keep pushing them for further testing, But are you sure that omprazole didnt settle it, as it did take a few weeks to settle my nausea, and recently ran out for a few days and nausea came back, or spontaneiously, big fear that will happen as it has for you. l guess they did scope your stomach, which should also show if pylori is present, mine was neg for that. l ended up complaining to surgery and got call from practise manager, she was defencive, expected, frosty chat, but she arranged for me to see senior doc, who l know and like and it went well, but still no further with diagnosis, but hes referring to rheumatologist, l do have a bad chest as diagnosed, but noticed in recent times with other symptoms breathlessness worse, on exertion a struggle, also restless sleep waking on and off, l,m biding my time till l see him, and taking a rest from bad feelings, but if l dont get a diagnoses l will change surgery. Drs can misdiagnose or non diagnose, it happens, even for straightforward conditions at time, l,ve spoke to two people in recent times who had typical chest symptoms, pain breathlessness, told virus,s, later one collapsed in a and e, both diagnosed later with pneumonia, and some conditons far more difficult to diagnose, immune ones seem the worst, and there,s a lot, chrons, ceoliac, or allergic respones, even if its such as cfs we still need it diagnosing. l,m older and its still a drag on my life, but for younger people like yourself, its no way to live, more so if there is unfound condition that can be improved.
Have you anyone, family or good friend who could go to docs with you, support you, or change to another surgery, or if you can afford it try privately, it does help some people get a diagnoses and treatment to help, just keep trying, dont give up, best wishes.
charlotte11694 lynne69494
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I struggle to push at the doctors for more because I don't want them to think I'm a hypochondriac who just wants attention and I'm paranoid that I always seem to be down the surgery. I know I need to be more forceful. I just know something isn't right and I cannot go on like this. Because I have had the tests done before and the endoscopy was very traumatic for me it's what I would like to avoid by if I have to have another then I suppose I will just have to deal with it.
Thank you for your advice
lynne69494 charlotte11694
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chrisgee charlotte11694
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Ive been suffering with stomach pains for almost 4 months now. I've had stool, blood, urine, xray, ultrasound, ct scan and I'm scheduled for an endoscopy next month. My friend was telling me about someone who had a negative blood test and a negative stool test for h pylori, but after two years he got a breath test and it came out positive.he took the antibiotics and was healed. I to had a neg blood and stool test but just asked my doctor this morning for a breath test. I would get a breath test if I were you. You never know. Wishing you the best.
Chris
charlotte11694 chrisgee
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diplo charlotte11694
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I have very similar symptoms as you , gasritis, doudenitis, osaphagitis & small hiatal hernia for the past 1 year. I am also in daily pain, nauseu, loss of appetite, sleeplessnes and generally sick all day.I too have visited my surgery approx 63!! times, they are fed up of me this year & I have always been fobbed off with different medicines from different GPs. I am under a gastroenterologist but he gives the same medicines & concludes with the psychiatrist that I have somatization disorder ( basically all in my head) because he can't be bothered to further investigate.I have spent lots of money on alternative medication like chinese herbs, Ayrvedic indian medicine & private scans with no success.I have been on bland diet & always careful with what little I can eat.So you are surely not alone, I know what you are going through. I also have no life although I am alttle older than you.My family want me to go to India for a change of scenery & for some treatment but I am worried I may become worse & pick up some infections as I am already weak for not eating enough.On the outside no one could see what you are going through, only we know how we feel inside. I really hope you get better as you are very young & you really don't need this at your age, or for any age. Keep on battling as I am & don't give up. I really wish you the best.
youngatheart1 charlotte11694
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