I've been told I have gastritis but I don't think my doctor is doing best for me, what should I do?

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Sorry for the long post but I'm looking for some advice as I am at the end of my tether.

Three years ago I suffered for 10 months with nausea, acid reflux and excruciating stomach pains. I was told at first it was normal acid reflux then it was IBS and then it was endometriosis. I had an endoscopy, ultrasound on my gallbladder and other organs and internal gynaecological ultrasound with all coming back clear. I ended up in a&e twice in this ten month period and was seen by out of hours doctors on a weekly basis as I couldn't cope with the pain. I was told to take a variety of medications from omeprazole to buscopan etc with nothing working. Eventually it disappeared and nothing was ever followed up.

However this year it has come back and after another 10 months of suffering I cannot put up with it anymore. All the symptoms are the same plus a few new symptoms such as shortness of breath/struggling to breath and dizziness. I have been to my doctors on numerous occasions throughout the last 10 months and every single time they have just fobbed me off with different tablets which never work. I have been given one blood test to test for helicobactor pylori which was negative. I feel like they are not doing anything to help me and I understand it can be difficult if they can't find anything. I am a 23 year old woman and it is ruining my life. I don't sleep well and I feel unwell all the time. I can't remember the last time I felt well. I am sick to death and just feel like nobody wants to help me.

I would really appreciate if a professional could give me their opinion as I am just lost with what to do.

Thanks

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  • Posted

    If your doctor is unwilling to do more--why do you not switch doctors? I have been there ans when they do nothing but prescribe drugs they dont work...they are there just to get paid. FInd another doctor.
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    • Posted

      I've tried three doctors at my surgery and I have seriously considered moving surgeries but I'm worried that I will just get the same answer from others after already having three opinions sad
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    • Posted

      Life isnt easy..what is the alternative to "not trying". To continue to suffer in pain and have to seek emergent care, They obviously have missed something...I cant guess on this diagnosis. Keep trying.
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    • Posted

      You can ask for a referral to see a consultant eg in gastrology, as they have not been able to stop your symptoms and make you feel better. Also the dizziness etc could be a panic attack brought on by your concerns about your health. Unless they say that you have nothing wrong with you they should be striving to make you feel better and not give up on you. It is possible you have food allergies or intolerance, have they been investigated?

      Sheila

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  • Posted

    I didn't even add my shortness of breath or having trouble taking deep breaths and dizziness in there they didn't come to mind at the time. They are there though like today I could inhale deeply. I couldn't tell if it hurt or it was uncomfortable or I just couldn't.
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  • Posted

    I can't help with advice but I'd like you to know you're not alone.. For 18 months I've had nothing but nausea, reflux and pain and my doctors are exactly the same. My consultant at the hospital has refused to see me as he thinks I'm exaggerating.. It's horrible and I don't know what we can do.. I too get the dizziness and find it hard to concentrate and I barely sleep because of it. I'm only 20 years old and I feel as if it's already ruined my life as I can't do anything any more. I really hope you can find something to make it better, no one deserves to go through it xx
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  • Posted

    Hi Charlotte

    A blood test for H Pylori is not reliable you need to have a stool or breath test. Go back to your doc and ask for one of these test to rule out HPylori completely. The acid reflux leads me to think you have HPylori also the pain and sickness. Ask your doc to do the breath or stool test just to put your mind at rest. These tests will definitely show HPylori if you have it. Dont be fobbed off. Under the Patients Charter for England and Wales you are entitled to a second opinion ...assuming you live in UK. If you fo have HPylori it can be treated with antibiotics....best wishes....

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  • Posted

    Hi Charlotte

    It sounds like you are going through an awful lot at your young age. And I do hope you get to the bottom of it and get the help you need.

    I don't believe your doctor's are not helping you, they have listened to you and your symptoms which is why you have had sent referrals to have all these investigations done in trying to help you and so far everything has come back clear. So it is difficult for them to do much more When results are showing nothing all they can do is give you medication that may or may not work.

    I would suggest more blood tests and try to push that forward.

    also have you looked at what you eat and drink and if you know you could be eaten and drinking healthier then you should try to help yourself if you smoke or drink alcohol I would suggest avoid and try a pro biotic drink and yoghurt manuka honey is also very good for problems in the digestive system that would be my advice to you to try.

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  • Posted

    Hi Charolotte,  l think l know how you feel, partly with some of symptoms lve experienced, but also the frustration and anger at gps meds for not improving symptoms. l was diagnosed with acid reflux years ago, though didnt have known symptoms following gall bladder removal later. l,d noticed ld feel full easily and uncomfortable, then the nausea started daily, horrible and debilitating, mine worse with exertion,restricting,also no appetite, lost 2stone,  had tried chemist meds, then got script meds, none helped. Saw gastrologist had scan, scope, showed a bit of gastritus, not really explaining severity symtoms, put on omprazole, got probiotic, had small plain meals, no ready meals or processed, went off milk, eggs, cheese. Slowly improved, now nausea 90percent better, though still niggly days also bloating belching extra cautious with food now. But the other symptoms of tiredness fatigue aches and pains still present, and restricting lifestyle, so back and forth to gps, no diagnoses, dont even question or examine much, 

    seems to me the blood tests, scans become the be all and end all, and easy for them to fall back on phycalogical reasons, and l dont dispute that can cause symptoms, but there are quite a lot of conditions that dont show up on standard blood tests and even scans, l dont think cfs or fibromyalgia sjorgens,do, sure there,s a lot more.  l had severe symptons of pain ill health for years, put down to pots op cs, gyny, hormones, finally phycalogical, after years of this l guess l felt a bit like you, l,d seen one gp in main, but occassionally others, then different gp on call out referred me to urologist, after xray, scan, showed nothing, a scope diagnosed intersticial cystitus, which is just eg of conditions that dont show up in standards tests. l,d say to anyone if you feel that bad trust in your own judgement and keep pushing them for further testing,  But are you sure that omprazole didnt settle it, as it did take a few weeks to settle my nausea, and recently ran out for a few days and nausea came back, or spontaneiously, big fear that will happen as it has for you. l guess they did scope your stomach, which should also show if pylori is present, mine was neg for that.   l ended up complaining to surgery and got call from practise manager, she was defencive, expected, frosty chat, but she arranged for me to see senior doc, who l know and like and it went well, but still no further with diagnosis, but hes referring to rheumatologist, l do have a bad chest as diagnosed, but noticed in recent times with other symptoms breathlessness worse, on exertion a struggle, also restless sleep waking on and off,   l,m biding my time till l see him, and taking a rest from bad feelings, but if l dont get a diagnoses l will change surgery. Drs can misdiagnose or non diagnose, it happens, even for straightforward conditions at time, l,ve spoke to two people in recent times who had typical chest symptoms, pain breathlessness, told virus,s, later one collapsed in a and e, both diagnosed later with pneumonia, and some conditons far more difficult to diagnose, immune ones seem the worst, and there,s a lot, chrons, ceoliac, or allergic respones, even if its such as cfs we still need it diagnosing.  l,m older and its still a drag on my life, but for younger people like yourself, its no way to live, more so if there is unfound condition that can be improved.

    Have you anyone, family or good friend who could go to docs with you, support you, or change to another surgery, or if you can afford it try privately, it does help some people get a diagnoses and treatment to help,  just keep trying, dont give up, best wishes.

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    • Posted

      Thank you for your advice. It's nice to know I'm not alone with this. My family and friends try to understand what I'm going through but I know it is difficult and possibly annoying when I'm suffering. I have recently changed my diet to chicken and plain rice to keep it as simple as possible to see if that helps. As of yet nothing has changed but I will persist with it. I was on the omeprazole for a couple of months and all seemed OK for a few weeks and then I started to find it made my acid reflux and stomach cramps worse so I have now been put on ranitidine and seeing how that goes.

      I struggle to push at the doctors for more because I don't want them to think I'm a hypochondriac who just wants attention and I'm paranoid that I always seem to be down the surgery. I know I need to be more forceful. I just know something isn't right and I cannot go on like this. Because I have had the tests done before and the endoscopy was very traumatic for me it's what I would like to avoid by if I have to have another then I suppose I will just have to deal with it.

      Thank you for your advice

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    • Posted

      l know what you mean about family and friends, with the best will from them, if they know gps, tests are negative they put a lot of trust in that, and start to doubt you.  l went on with severe symptoms of pain ill health for years, when no tests, xrays,scans showed diagnosis it did get to being phycalogical, and l was thought hypacondriac, neurotic,and offered councelling therapy, easy to start doubting yourself at times, you cant believe its happening that your suffering so much and no reason, all tests neg, l questioned wrote to experts with symptoms, no diagnoses or wrong ones, didnt think it possible no one could know, so must be me, but then when bad you know it isnt. l know l wasnt assertive enough with gps, partly due to trusting them and tests, and partly me, plus when your ill its not best times to go into battle with them, the system, after years of it with heinsight l wish l,d ranted and raged. In the end all it took was right specialist scope and 5min, the urologist was very good decent  l know l, and others whove gone into surgery regularly are not attention seekers, or drama queens, in fact you sound like me in hating having to go in, but if thats what it takes, weve about 12 docs so can see different ones, l hope the rantidine helps and you can have a decent Christmas and go for it new year.  good luck
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  • Posted

    Hi Charlotte,

    Ive been suffering with stomach pains for almost 4 months now. I've had stool, blood, urine, xray, ultrasound, ct scan and I'm scheduled for an endoscopy next month. My friend was telling me about someone who had a negative blood test and a negative stool test for h pylori, but after two years he got a breath test and it came out positive.he took the antibiotics and was healed. I to had a neg blood and stool test but just asked my doctor this morning for a breath test. I would get a breath test if I were you. You never know. Wishing you the best.

    Chris

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    • Posted

      Thank you. I hadn't heard of the breath test until recently so when I go back (which is inevitable) I will mention it and look to having it done. Thank you for the recommendation
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    • Posted

      Hi Charlotte

      I have very similar symptoms as you , gasritis, doudenitis, osaphagitis & small hiatal hernia for the past 1 year. I am also in daily pain, nauseu, loss of appetite, sleeplessnes and generally sick all day.I too have visited my surgery approx 63!! times, they are fed up of me this year & I have always been fobbed off with different medicines from different GPs. I am under a gastroenterologist but he gives the same medicines & concludes with the psychiatrist that I have somatization disorder ( basically all in my head) because he can't be bothered to further investigate.I have spent lots of money on alternative medication like chinese herbs, Ayrvedic indian medicine & private scans with no success.I have been on bland diet & always careful with what little I can eat.So you are surely not alone, I know what you are going through. I also have no life although I am alttle older than you.My family want me to go to India for a change of scenery & for some treatment but I am worried I may become worse & pick up some infections as I am already weak for not eating enough.On the outside no one could see what you are going through, only we know how we feel inside. I really hope you get better as you are very young & you really don't need this at your age, or for any age. Keep on battling as I am & don't give up. I really wish you the best.

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