I've had pressure on my bladder for 14 months, help?!

Posted , 51 users are following.

In July 2013 I had cystitis for three weeks, the hospital gave me 7 days of trimethoprim and sent me home. After finishing the course, the burning etc had gone but I still felt a slight pressure making me feel like I needed to urinate all the time. This feeling stayed with me day and night for three whole months,many all the urine samples that were sent off came back negative for an infection. I had vaginal swabs done and they were clear too. After three months it slowly died off, and is now an occasional occurrence. Occasional being a couple times a week. I've since seen a urologist who did a cystoscopy and checked for interstitial cystitis but that came back clear as well. I then had a laparoscopy (for endometriosis diagnosed in 2011) and that all came back clear, my endo hasn't come back. This brings us now to the last couple of months, I've had thrush which was treated at home. I now have cystitis again, and I'm on trimethoprim 10 day course but it's not doing anything. I've told my docs this but they won't even see me, I had to go through 111 to try and get someone to see me. I've tried trimethoprim, citrofloxacin, nurofontaine (sp?) and metronidazole. 

Nothing is working. I take cranberry tablets to prevent uti's and moringa tablets to help fight bacterial infections as I believe it is bacterial. Sex can aggravate it, it's worse around my mid cycle and when I'm on, no foods or drinks make it worse. The only symptom is like a pressure on my bladder making me feel like I need a wee. It comes out of nowhere. I've seen three doctors and spoken to five, they're all fobbing me off now and I'm becoming depressed because of this. It's now affecting my work and my relationship. I really need proper help, what could it be? I don't feel like I'm ever going to be normal again

2 likes, 99 replies

Report / Delete

99 Replies

Next
  • Posted

    Hi ...sorry to hear about being so depressed about it, please try some keg gel  exercise . It really helps. And if you can search for some yogic postures specially for pelvic area . Sometimes the proper strengthening of muscles help a lot. Things will improve with in no time. 
    Report / Delete Reply
    • Posted

      Thank you, I'll try them but I believe it's an infection or bacterial issue rather than muscle strength. I've always practised stopping mid flow to make the muscle stronger. 
      Report / Delete Reply
    • Posted

      Hi I 've been experiencing the same terrible diagnosea of guests from doctors urgency frequency burning at times lesser pain but discomfort Have gone through urologist and negative Uti with no answers .suddenly pressure spasms wondering what bladder illness is this without cure .Everyone bursting and searching for answers comparing and looking for healingsof our own remedies in hope of cure .The urologist give up most of the time course other than their medication which somewhat help. It terrible side effect are not not long lasting Health s hence needs to find a cure with so many patients having this who h sounds like or is diagnose interstitial cystitis IC the wicked disease !!!
      Report / Delete Reply
  • Posted

    Hi jaffatinx

    sounds abit similar to what i went through..

    UTI, sensitive bladder, urge to wee, but no urgency once there  etc etc ..

    sometimes pain when i would press above pubic bone ( thats a uti maybe ) and slight pain after weeing..

    anyway... I went though this ... Then.. When i had a Gyno appointment and had a smear etc ... It came back that i had a type of bacterial vaginosis ... cytolytic vaginosis, i had no symptoms that it explained, i had the UTI feeling, had the thrush feeling, used the thrush treatments, and apparently it didnt cure it..

    BV & CV can go undiagnosed and cause havoc, and i needed Clindamycin vaginal ovules for 3 nights then Thrush treatment Laurimic vaginal Ovules for the next three nights.

    * antibiotics kill all your good bacteria everywhere and then the flora and PH are affected in vagina, bladder etc etc ..

    always take a acidophilus pro biotic two to three times a day while taking any antibiotics ..

    have you had a smear lately? This also checks for any PH imbalances ie.. Bacterial vaginosis and Cytolytic vaginosis .. That feel like thrush but are nit cured with thrush treatment. 

    also in the past I had what they discribe as a sensitive bladder  .. The urge and pain, but no UTi and doctor gave me some tablets to take when this arose, to take as and when, wow they were good ... They relaxed the bladder muscle as the spasm / sensitive bladder caused the UTi symptoms..

    also ... Remember that antibiotics cause thrush after the course too ..

    i will post the name of theose tablets in a minute for senstive bladder 

    jay xx

     

    Report / Delete Reply
    • Posted

      Hi jay, it's so good to hear it's not just me! 

      Ill speak to my doctor tomorrow about having a smear, it's something I've considered pushing for in recent weeks. I've had bv twice before, but only ever the urge to wee, no funny smell. Occasionally some odd discharge. Treatment for bv didn't works though. 

      Its a a vicious cycle isn't it sad antibiotics to help but they give you another infection! 

      The name of the tablets would be brilliant thank you x

      Report / Delete Reply
  • Posted

    Please if u cn mention your age. And are the periods normal?

    because many times it's just hormonal issue which does all the wear n tear in that area . It's called atrophic vaginitis . Getting treated for that will certainly help. If that's the issue.

    Report / Delete Reply
    • Posted

      Hi sweetie 

      OMG i too had endometriosis ... When i was younger, i had it all lasered off and it never came back ... I was told to have a hysterectomy i was 30 i said no way, i have the laser, they said my endo may return after 5 years.. So think about the hysterecromy, 

      Never let them suggest  a hysterectomy for endometriosis as i would of had a hysterectomy for no reason ..

      jay xx

      Report / Delete Reply
    • Posted

      I was told that at 20! Turns out my endo was in deep pelvic tissue so removing my womb etc wouldn't have helped in the slightest. It's shocking how they are willing to resort to such extreme measures so quickly. I know it will come back, but I'm not considering anything like that until after I have kids! Which has been 2.5 years and not even a scare sad everything wrong with me!
      Report / Delete Reply
  • Posted

    hi again Jaffatinx ... What age are you ? 

    Oxybutinin is what the doctor gave me .. It was great..

    it can be hormonal too, when you say its worse around period time ..

    this info is a generalisation, i didnt even leak or anything, i was just overactive muscle, it did stop after a couple of years .. Mine was hormonal ... I too had the tests and bladder checked and then the tablets were given to me and it solved it 

    have a read of this see if it is the same .. Or some of it similar ..

    Overactive bladder syndrome is common.

    Symptoms include an urgent feeling to go to the toilet, going to the toilet frequently, and sometimes leaking urine before you can get to the toilet (urge incontinence). Treatment with bladder training often cures the problem.

    Sometimes medication may be advised in addition to bladder training to relax the bladder.

    Overactive bladder syndrome

    The kidneys make urine all the time. A trickle of urine is constantly passing to the bladder down the ureters (the tubes from the kidneys to the bladder).

    You make different amounts of urine depending on how much you drink, eat and sweat.

    The bladder is made of muscle and stores the urine.

    It expands like a balloon as it fills with urine. The outlet for urine (the urethra) is normally kept closed. This is helped by the muscles beneath the bladder that sweep around the urethra (the pelvic floor muscles).

    When a certain amount of urine is in the bladder, you become aware that the bladder is getting full. When you go to the toilet to pass urine, the bladder muscle contracts (squeezes), and the urethra and pelvic floor muscles relax.

    Complex nerve messages are sent between the brain, the bladder, and the pelvic floor muscles. These tell you how full your bladder is, and tell the right muscles to contract or relax at the right time.

    What is overactive bladder syndrome?

    An overactive bladder is when the bladder contracts suddenly without you having control, and when the bladder is not full.

    Overactive bladder syndrome is a common condition where no cause can be found for the repeated and uncontrolled bladder contractions. (For example, it is not due to a urine infection or an enlarged prostate gland.) 

    Overactive bladder syndrome is sometimes called an irritable bladder or detrusor instability. (Detrusor is the medical name for the bladder muscle.)

    Symptoms include:

    Urgency. This means that you get a sudden urgent desire to pass urine.

    You are not able to put off going to the toilet.

    Frequency. This means going to the toilet often - more than seven times a day. In many cases it is a lot more than seven times a day.

    Nocturia. This means waking to go to the toilet more than once at night.

    Urge incontinence occurs in some cases.

    This is a leaking of urine before you can get to the toilet when you have a feeling of urgency.

    How common is overactive bladder syndrome?

    In two large studies it was found that about 1 in 6 adults reported some symptoms of an overactive bladder. Symptoms vary in their severity. About 1 in 3 people with an overactive bladder have episodes of urge incontinence.

    What causes overactive bladder syndrome?

    The cause is not fully understood. The bladder muscle seems to become overactive and contract (squeeze) when you don't want it to.

    Normally, the bladder muscle (detrusor) is relaxed as the bladder gradually fills up.

    As the bladder is gradually stretched, we get a feeling of wanting to pass urine when the bladder is about half full.

    Most people can hold on quite easily for some time after this initial feeling until a convenient time to go to the toilet. However, in people with an overactive bladder, the bladder muscle seems to give wrong messages to the brain. The bladder may feel fuller than it actually is. The bladder contracts too early when it is not very full, and not when you want it to. This can make you suddenly need the toilet. In effect, you have much less control over when your bladder contracts to pass urine.

    In most cases, the reason why an overactive bladder develops is not known. This is called overactive bladder syndrome. Symptoms may get worse at times of stress. Symptoms may also be made worse by caffeine in tea, coffee, cola, etc, and by alcohol (see below).

    What are the treatments for overactive bladder syndrome?

    Some general lifestyle measures may help.

    Bladder training is a main treatment. This can work well in up to half of cases.

    Medication may be advised instead of, or in addition to, bladder training.

    Pelvic floor exercises may also be advised in some cases.

    Some general lifestyle measures which may help

    Getting to the toilet. Make this as easy as possible.

    If you have difficulty getting about, consider special adaptations like a handrail or a raised seat in your toilet. Sometimes a commode in the bedroom makes life much easier.

    Caffeine. This is in tea, coffee, cola, and is part of some painkiller tablets. Caffeine has a diuretic effect (will make urine form more often). Caffeine may also directly stimulate the bladder to make urgency symptoms worse. It may be worth trying without caffeine for a week or so to see if symptoms improve. If symptoms do improve, you may not want to give up caffeine completely. However, you may wish to limit the times that you have a caffeine-containing drink. Also, you will know to be near to a toilet whenever you have caffeine.

    Alcohol. In some people, alcohol may make symptoms worse. The same advice applies as with caffeine drinks.

    Drink normal quantities of fluids. It may seem sensible to cut back on the amount that you drink so the bladder does not fill so quickly. However, this can make symptoms worse as the urine becomes more concentrated, which may irritate the bladder muscle. Aim to drink normal quantities of fluids each day. This is usually about two litres of fluid per day - about 6-8 cups of fluid, and more in hot climates and hot weather.

    Go to the toilet only when you need to. Some people get into the habit of going to the toilet more often than they need. They may go when their bladder only has a small amount of urine so as "not to be caught short". This again may sound sensible, as some people think that symptoms of an overactive bladder will not develop if the bladder does not fill very much and is emptied regularly. However, again, this can make symptoms worse in the long run. If you go to the toilet too often the bladder becomes used to holding less urine. The bladder may then become even more sensitive and overactive at times when it is stretched a little. So, you may find that when you need to hold on a bit longer (for example, if you go out), symptoms are worse than ever.

    Bladder training (sometimes called bladder drill)

    The aim is to slowly stretch the bladder so that it can hold larger and larger volumes of urine. In time, the bladder muscle should become less overactive and you should become more in control of your bladder. This means that more time can elapse between feeling the desire to pass urine, and having to get to a toilet. Leaks of urine are then less likely. A doctor, nurse, or continence advisor will explain how to do bladder training. The advice may be something like the following:

    You will need to keep a diary. On the diary make a note of the times you pass urine, and the amount (volume) that you pass each time. Also make a note of any times that you leak urine (are incontinent). Your doctor or nurse may have some pre-printed diary charts for this purpose to give you. Keep an old measuring jug by the toilet so that you can measure the amount of urine you pass each time you go to the toilet. 

    When you first start the diary, go to the toilet as usual for 2-3 days at first. This is to get a baseline idea of how often you go to the toilet and how much urine you normally pass each time. If you have an overactive bladder you may be going to the toilet every hour or so, and only passing less than 100-200 ml each time. This will be recorded in the diary.

    After the 2-3 days of finding your baseline, the aim is then to hold on for as long as possible before you go to the toilet. This will seem difficult at first. For example, it you normally go to the toilet every hour, it may seem quite a struggle to last one hour and five minutes between toilet trips. When trying to hold-on, try distracting yourself. For example:

    Sitting straight on a hard seat may help.

    Try counting backwards from 100.

    Try doing some pelvic floor exercises (see below).

    With time, it should become easier as the bladder becomes used to holding larger amounts of urine. The idea is gradually to extend the time between toilet trips and to train your bladder to stretch more easily. It may take several weeks, but the aim is to pass urine only 5-6 times in 24 hours (about every 3-4 hours). Also, each time you pass urine you should pass much more than your baseline diary readings. (On average, people without an overactive bladder normally pass 250-350 ml each time they go to the toilet.) After several months you may find that you just get the normal feelings of needing the toilet, which you can easily put off for a reasonable time until it is convenient to go.

    Whilst doing bladder training, perhaps fill in the diary for a 24-hour period every week or so. This will record your progress over the months of the training period.

    Bladder training can be difficult, but becomes easier with time and perseverance. It works best if combined with advice and support from a continence advisor, nurse, or doctor. Make sure you drink a normal amount of fluids when you do bladder training (see above).

    Medication

    If there is not enough improvement with bladder training alone, medicines in the class of drugs called antimuscarinics (also called anticholinergics) may also help. They include: Oxybutynin, tolterodine, trospium chloride, propiverine, and solifenacin. These also come in different brand names. They work by blocking certain nerve impulses to the bladder, which relaxes the bladder muscle and so increases the bladder capacity.

    Medication improves symptoms in some cases, but not all. The amount of improvement varies from person to person. You may have fewer toilet trips, fewer urine leaks, and less urgency. However, it is uncommon for symptoms to go completely with medication alone. A common plan is to try a course of medication for a month or so. If it is helpful, you may be advised to continue for up to six months or so and then stop the medication to see how symptoms are without the medication. Symptoms may return after you finish a course of medication. However, if you combine a course of medication with bladder training, the long-term outlook may be better and symptoms may be less likely to return when you stop the medication. So, it is best if the medication is used in combination with the bladder training.

    Side-effects are quite common with these medicines, but are often minor and tolerable. Read the information sheet which comes with your medicine for a full list of possible side-effects. The most common is a dry mouth, and simply having frequent sips of water may counter this. Other common side-effects include dry eyes, constipation and blurred vision. However, the medicines have differences, and you may find that if one medicine causes troublesome side-effects, a switch to a different one may suit you better.

    Pelvic floor exercises

    Many people have a mixture of overactive bladder syndrome and stress incontinence. Pelvic floor exercises are the main treatment for stress incontinence. Briefly, this treatment involves exercises to strengthen the muscles that wrap underneath the bladder, uterus (womb) and rectum. For details, see separate leaflets called 'Stress Incontinence' and 'Pelvic Floor Exercises'.

    It is not clear if pelvic floor exercises help if you just have overactive bladder syndrome without stress incontinence. However, pelvic floor exercises may help if you are doing bladder training (see above).

    Report / Delete Reply
    • Posted

      I'm 23.

      I'm not sure if it could be that, my urge to urinate isn't sudden, it's just there all the time even if I don't drink anything. I obviously drink more fluids now so am urinating more, but that's because if I try to go and nothing comes out it gets worse.

      Report / Delete Reply
    • Posted

      Hi jinx

      get a smear if you can and ask to try Oxybutinin or similar see if it helps you.

      i was amazed how it relaxed the bladder and the uti symtoms and urge went 

      jay xx 

      Report / Delete Reply
    • Posted

      Hi jay

      The docs gave my cyprofloxacin for 5 days, and will give me something to settle an irritated bladder if it's not gone by the end of the five days, does this sound right? The burning when I urinate has gone but I still have the pressure on my bladder making me feel like I need to go. Could this mean it is on its way out?

      Also, would it help if I took the trimethroprim with the cytrofloxacin? Or would that be too much? I'm already taking cranberry tablets, moringa tablets for bacterial infections and probiotic tablets (20 billion). 

      Thanks

      Report / Delete Reply
    • Posted

      hi jaffatinx

      only take the Cipro if that ia what the doc gave you..

      Cipro is strong and can also make you sensitive to the sun..

      dont mix with trimethroprim .... Unless the doctor told you to take both..

      Jay  xx

       

      Report / Delete Reply
    • Posted

      Hi Jaffa

      even if you feel it getting better still take the full course of Cipro that the doctor gave you.. Or it will return..

      how many do you take a day ...

      if its two a day.. Take one every 12 hours ..

      for example 9am and 9 pm..  

      so they are constantly in the body ..

      Jay xx

      Report / Delete Reply
    • Posted

      I have this exact same problem! I'm 23 it is a constant urge to pee all the time no burning I have had this 3 months now all started with a burning water infection. It is ruining my life and work, have you since found a cure for yours? X
      Report / Delete Reply
    • Posted

      I just turned 30 and apparently this is my present. I know the Post is old but I just wondered do you take the pill everyday and does it take away the ache/ pain of the bladder feeling full even when it's almost empty. Thank you!

      Report / Delete Reply
    • Posted

      Hi there 

      Just found this site .  I am 43 and diagnosed with overactive bladder , dealing with symptoms Day and night but worse at night .  Taking vesicare to relax bladder I'm not sure if it's helping have bad days still .

      How are you going since you made a post amy improvement?

      Thanks

      Deb 

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up