I've had pressure on my bladder for 14 months, help?!

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In July 2013 I had cystitis for three weeks, the hospital gave me 7 days of trimethoprim and sent me home. After finishing the course, the burning etc had gone but I still felt a slight pressure making me feel like I needed to urinate all the time. This feeling stayed with me day and night for three whole months,many all the urine samples that were sent off came back negative for an infection. I had vaginal swabs done and they were clear too. After three months it slowly died off, and is now an occasional occurrence. Occasional being a couple times a week. I've since seen a urologist who did a cystoscopy and checked for interstitial cystitis but that came back clear as well. I then had a laparoscopy (for endometriosis diagnosed in 2011) and that all came back clear, my endo hasn't come back. This brings us now to the last couple of months, I've had thrush which was treated at home. I now have cystitis again, and I'm on trimethoprim 10 day course but it's not doing anything. I've told my docs this but they won't even see me, I had to go through 111 to try and get someone to see me. I've tried trimethoprim, citrofloxacin, nurofontaine (sp?) and metronidazole. 

Nothing is working. I take cranberry tablets to prevent uti's and moringa tablets to help fight bacterial infections as I believe it is bacterial. Sex can aggravate it, it's worse around my mid cycle and when I'm on, no foods or drinks make it worse. The only symptom is like a pressure on my bladder making me feel like I need a wee. It comes out of nowhere. I've seen three doctors and spoken to five, they're all fobbing me off now and I'm becoming depressed because of this. It's now affecting my work and my relationship. I really need proper help, what could it be? I don't feel like I'm ever going to be normal again

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  • Posted

    Hey jay I really appreciate your being so actively involved in helping people in pain ūüĎć

    one week back you were the one who helped in diagnosing my problem too. Thnx a lot. 

    Jaff I have started doing some yoga postures too ...if you have one in your city. Please join it. You can try taking some mind relaxing pill in the night which releases medicine thru our the day too. It may also help. 

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  • Posted

    Hey jay I really appreciate your being so actively involved in helping people in pain ūüĎć

    one week back you were the one who helped in diagnosing my problem too. Thnx a lot. 

    Jaff I have started doing some yoga postures too ...if you have one in your city. Please join it. You can try taking some mind relaxing pill in the night which releases medicine thru our the day too. It may also help. 

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  • Posted

    Yup much better ūüėä thnx for the support
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  • Posted

    I mate glad to know it's not jst me I am having same problem bt mine is when I go for wee and phoo,when I do have got a lot off pressure behind by bladder followed with a lot off pain feeling sick and feels like av been kicked in the balls been doctors today for bloods doctor seem to think I have infection in my prostate glance that can last for months do u have any pain like mine???
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  • Posted

    Hi, I have  all the same symptoms. Constant need to urinate even after voiding everything I can. I had a complete diagnostic investigation of my bladder it was discovered that  I have nuerogenic bladder. It no longer communicates with the brain properly. I can void down to about 400 mls of urine without a catheter but thats it. Leaving the feeling of always having to go......
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  • Posted

    Hi jaffatix

    i'm 46 now but have had pressure on my bladder on and off since around 42. I keep getting uti's recurring which I never had before. I take antibiotics nitro fruition or sometimes get BV so then take metronizadole. Then I take tablets to clear thrush as well as the cream to clear the thrush caused by the antibiotics. I found cranberry juice made me more sensitive also chocolates tomatoes and tomato based sauces. I believe I'm going through perimenopause. I have occasionally used replens md to help restore balance down there. I noticed also the pressure worsens before my period starts. Sometimes a week before sometimes a couple of days before. I have also now been diagnosed with being histamine intolerant. They couldn't find anything else wrong. I noticed if I avoid tea coffee and fizzy drinks its seems to calm a little. 

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  • Posted

    Hi, I have same exact sympotms as you have. I hope you are feeling better now. Could you please let me know are you free with these symptoms and what you did? its really bothering me from past 5 months and its disturbs my work,personal life.

    Please reply me

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  • Posted

    have you been checked for PID? i have had the same pressure...for years! I started doing Kegel exercises, and it has helped tremendously... also, stop using your usual brand of toilet paper...this can cause a huge impact on what symptoms you describe. I just recently found out (thru my own 'research') that I am allergic to several different brands of toilet paper. Your symptoms seem similar to mine, i might add. 

    Kegels, (try googling 'symptoms of toilet paper allergies') you may need to make your own toilet paper if you are desperate enough (i was) and keep in mind, ALL feminine paper products have really bad chemicals in them. you may need to buy 100% chemical free products. God Bless you.

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  • Posted

    OK, so I may have a solution for all of you that has worked for me for the last 6 or so months now.  I had the same problem...

    - what felt major pressure on my bladder

    - usually for a week/week and a half before my cycle

    - all tests came back normal

    So I had a feeling that inflamation was the culprit.  I starting taking tumeric (about 1/2 teaspoon a day and I have not had the problem since!  

    Please try it!  I know how terrible this feels and I want you all to find a solution.  I hope it works for you as it did for me! 

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  • Posted

    Wow I really thought I was going crazy and I had some mystery diagnosis. I know the exact feeling. It started with what I thought was a yeast infection so I took monistat for it, the pain went away so I didn't think anything of it. Then I started with pain when I peed and an awful uncomfortable feeling in my urethra. Like pressure that would send chills through my spine. This went on for 3 months and still going. I've had multiple doctors appointments and a gyno checkup. All my doctor gave me were anti fungal medication to treat bacterial infections, of course nothing was working when she gave me flagyl which is used to treat bv I believe, it went away and I was on cloud 9, now I got my period and it happened all over again. I have no idea what to do now. I was so scared it was that persistent genital arousal disorder. Having depression and anxiety, this 3 months have been hell. I'm 19 btw. Don't know what to do.
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  • Posted

    I was wondering if you found any relief for this?! I've been experiencing the same thing for about 7 months. I woke up in October with a burning discomfort in my bladder. I immediately went and peed, and it burned and not a lot came out. Right after I left the restroom, the urgency to pee came back. I immediately thought I had a uti or bladder infection. I went to the doctor where they tested my urine and everything was normal. No infection. They thought maybe it could be a minor bladder infection (so minor that it wouldn't show up in a test) so they prescribed me antibiotics for a bladder infection for a week. After a week, the burning went away but minor urgency continued. I went back to the doctor, and they tested my urine again which came back normal. No infection. They also tested my blood sugar which also came back normal. I also had a pap smear done to rule out anything like that, and it came out normal. They had no idea why I was experiencing these symptoms so they sent me to a urologist. I underwent all the normal (painful) procedures (catheter to extract urine, bladder scope, and ultrasound). Everything came back normal. The urologist began acting like I was making it up. He prescribed me antibiotics for a bladder infection for a month which I took. After the month, there was no difference. I am still experiencing frequent bladder urges and pain and discomfort. I've also tried taken cranberry pills. My bladder pain seems to be worse in the morning and night time. I only get relief when I drink a lot of water. The only problem with this is i'm constantly peeing. I honestly have been so depressed these months because I feel like I will never be comfortable again. I'm only 23 years old.
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    • Posted

      I have had very similar problems to you for about 8 weeks.   Constant pressure on bladder and painful burning on urination but no leaking. Sometimes I have a twinge of pain in my urethra.   I have had 4 clear urine tests and 1 normal blood test. The Dr prescribed Trimethoprin, nitrofurantoin, metronidazole and cefalexin but I am told they won't have worked because I don't have an infection.   I feel as if I am clenching my muscles constantly.

      I appreciate how you must be feeling.   I have now been given flavoxate but the chemist won't have it in until next week.    If you have had any success please post and I can certainly let you know how I get on once I get my prescription and try the tablets for a few days.   

      Flavoxate is described as:-

      Flavoxate is used to treat overactive bladder (a condition in which the bladder muscles contract uncontrollably and cause frequent urination, urgent need to urinate, and inability to control urination) relieve painful, frequent, or nighttime urination and urgency that may occur with infections of the prostate, bladder, or kidneys. Flavoxate is in a class of medications called antimuscarinics. It works by relaxing the bladder muscles. However, flavoxate is not an antibiotic; it does not cure infections.

      Try not to worry,  I find it makes things worse and it is quite reassuring that so many of us have such similar symptoms.

       

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    • Posted

      Did you have any success after taking those tablets vicky31431?

      This will be a long story but here it goes, I am 28 years old, been with one partner for 8 years, very healthy, eat well, rarely drink alcohol, no past illnesess, one previous UTI when I was 18/19.

      My nightmare started at the end of Feb, I had a UTI, was prescribed Trimethoprin but it didn't do the trick so moved on to nitrofurantoin, that sorted me out but two days later the symptoms were back. So I went to the doctors and they did a dip test again and it showed my infection was gone, sent it off to be cultured, still clean. They did a swab in my vagina, checked for STI/STD, thrush and BV and nothing found.

      I had horrible pressure in my bladder for 3 weeks, felt like I always had to go for a wee, when I went to the toilet only a small amount of urine was there. I cut back on all foods that can irritate the bladder and thankfully the pressure lifted however I still had the urge to urinate more than usual and felt very uncomfortable.

      I experimented by having acidic food and alcohol again, nothing seemed to change, still needed to go to the toilet every hour but no real 'pain' or discomfort except for a little bit of burning after I urinate, I couldn't tell if it was inside the uretha or just at the opening though. I applied thrush cream and that would stop the burning for a bit.

      I then had my copper coil removed just incase it was that and the lady doing it said I had a severe case of BV and thrush after looking at a sample from my vagina in their lab, which is funny since my GP didn't find that. I took a 3 tablet course for the thrush and a 5 day course of metronidazole (flagyl) and I was feeling better, going to the toilet around 7 times a day, feeling around 95% better. A few days after I finished my treatment the same feelings came back, having to go to the toilet every half an hour/hour, tender in my lower tummy and a sense of urgency when I needed to go to the toilet (although I can hold it for a while with no problems). I had a test to see the thrush and BV it had returned but nothing found.

      I've tried not using toilet paper and just washing myself every time I go to the toilet, after a few weeks that didn't seem to help at all.

      I now feel a flutter or butterflys in my uretha some times and I wonder if this is bladder spasms and if that could be something from an over active bladder?

      This is absolutly controlling my life right now, Im scared to eat anything incase it makes me feel worse, I only eat very plain food and tons of veggies and water, I cant go out and socialise, I cant work because all I can think about is my bladder, I cant have sex with my husband because it is painful and I break down in tears many times a day.

      I have only been married around a year and we wanted to start a family in a few months, but that just seems impossible with my problems right now.

      I hope that one day I feel better and I will look back on this as a tough period in my life that I got through.

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    • Posted

      Kayleigh, so sorry I didn't get back to you sooner.  I've been locked out of my email and had to get a new account.

      My Doctor  thinks I have an overactive bladder.  I think I am involuntarily squeezing my bladder muscle tight probably  through stress cos I was scared of the pain when going to the toilet. I could also have interstitial cystits but i'm too scared of  having a cystoscopy.  I was perfectly healthy until Feb 2016, could eat anything I wanted and go to the toilet normally and then suddenly everything  changed.   I thought I had taken cystitis but my tests are clear and antibiotics didn't help.   I also had a dental abscess at the same time which made my face swell as it couldn't escape and the antibiotics didn't work on it.  I'm not sure if the two things are connected.    

      Unfortunately the flavoxate has only slightly helped.  It has stopped the "being jabbed by a needle in the urethra feeling" I went to hospital for an ultrasound (you have no idea how many times I nearly cancelled it!) and now i'm stressed out waiting on the results.   The Doctor says there are still a few more things we can try but at the moment he wants me to carry on with the flavoxate for 3 months.  Sometimes my urine is only a trickle but when I take alkalising food the flow gets better.  Trying to eat alkaline is so hard.   I can't survive on leaves!

      I really feel for you.   Of course you want to start a family with your husband.  I was wanting to start a new relationship but there is no way I could have sex.

      I wrote my symptoms in bullet points and told them to the Doctor so I didn't miss anything out.   I think, like me, you are going to have to go back to your Doctor and try something else.  Surely if we were both ok a few months ago we can get back to normal health?

      I am thinking of you.   Please keep me infoed.

       

       

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    • Posted

      You're not alone, I'm much older and it all started 4 months ago, I've had 8 different types of antibiotics, which I'm very intolerant of. Nothing is helping! I have pressure all the time, it's ruining my retirement when I should be doing so much! Waiting for more tests! But now I know I'm not alone either. 
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    • Posted

      Hi Vicky

      Thank you for your reply, sorry I haven't been in touch sooner, I've been trying to stay offline and concentrate on getting better. I am happy to say I am feeling much better since my last post, not 100% better but very nearly there. I think in a month - 6 weeks I should be 100% better.

      Here's what I have tried, this won't work for everyone as everyone's bodies are different and the reason their bladder has had this reaction is personal.

      1. Diet - I eliminated all acidic food and foods listed on the IC diet, even things like garlic and onions. I stopped this a few weeks ago as it was making me very low and I was loosing weight fast, as I am already a slim person I couldn't afford to lose anymore weight. I didn't notice any difference when I reintroduced the 'bad' food.

      2. Supplements - I took turmeric, bovine colostrum, iron, high quality probiotics, vitamin d, slippery elm and marshmallow root. I can't comment if these did or didn't work. Maybe they did, maybe they didn't.

      3. Acupuncture - a friend of mine is quite a big believer in this so I thought I'd give it a try. I did some research and I found a lady that has lots of experience with bladder inflammation and started having 2 sessions a week with her. I feel this has helped me the most and I think this has helped my body heal. The only things my acupuncturist thinks I should not eat/drink is alcohol, salty and spicy food. In case anyone is interested in acupuncture the lady I use is Julie at The Chinese Health Clinic in Gillingham, Kent. If you can't go there I recommend you do some research for one near you, there's some terrible acupuncturists out there and they can do more harm than good.

      I've gone from a tingling and burning in my bladder at all times to having hours where I feel totally myself again and I even had my first whole day where I felt 100% better yesterday. I am realistic and I don't expect to not have any little blips over the next few weeks whilst my body continues to heal, but I won't panic and think I'm going back to the way I was again.

      Also, sex is back to normal again, no pain at all, back to the way it should be smile

      Emotionally I am much better now too, I haven't cried in weeks whereas I used to cry every day multiple times. I have to say the Internet is good and bad, it's good because you can learn so much about what others have gone through and what might help you heal or find out what could be causing your issue. But the bad side is most people post about their symptoms when they are at their lowest and dont repost when they feel better. In my opinion this is quite mean as most of the forums out there show hundreds of people desperate for help and it makes you think that you will never feel better and this is your life now. One thing I would say is avoid the popular IC website in America, I have found most of the people on there to be really negative and like there's no hope that you will ever be better. It has been important for me to remember that most of the people on there are very ill and they have multiple things wrong with them, not just an irritated bladder.

      I think what has got me to this state is I used to have a very stressful job which I quit in March. I was warned by my family that they thought I was going to have breakdown but I ignored them and I think what I am dealing with now is because I pushed myself too hard.

      What I plan on doing now is continuing with my acupuncture treatments, avoiding stressful situations, lots of rest, sleep and good food. I am also going on holiday with my parents next week, that will hopefully help me too.

      Once I get back to 100% better I am going to avoid UTIs like the plague!! I do not want another episode like this!

      I think the reason you are having trouble with your bladder Vicky is because of the toxins in your body from your tooth problem. I encourage you to try acupuncture, it's all about balancing your body and getting poisons out of your body. It might not be a bad idea to take that tooth out as well, since its caused so much trouble.

      I'll make sure I stay in touch repost with any more advise and updates on my symptoms

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    • Posted

      Kayleigh

      I am so pleased you are getting better.   It gives hope to everyone.  I know it has not been an easy road and you are not quite there yet but it is so good to hear you are improving.    

      Your reply came at the perfect time for me.  I am just this minute back from seeing a Hospital Consultant.    Funnily enough her diagnosis of me is very similar to yours!!!! biggrin  She thinks the stress and infections of bladder/tooth have caused my problems.   I also have a large fibroid which could be causing the pressure on my bladder but the recommendation is to leave that alone unless it starts causing real trouble and it should start shrinking due to my age.     I'm told my pelvic region is stressed out and tight (I totally agree) and to try relaxation exercises.    I am VERY interested in your recommendation of acupuncture but at the moment I have been made unemployed and looking for a new job (reason i'm so stressed) so money wise I can't afford it.   I live hundreds of miles away from you but I have already found an acupuncturist online who is ex nhs, council registered and has a degree in western and chinese medicine practising very near my home.  I think she would be worth investigating when I am in a position to do so. Until then I am going to carry on taking the supplements you recommend (I already do marshmallow and probiotic and I truly believe they have helped me) but it must be emphasised that it looks as if in my case my condition is caused by stress and infection/run down so as not to give false hope to people who may have more serious reasons.

      I am definitely not in the clear yet.  I am going to try everything I can to get myself better but I know that if they don't work then I  have been given the option of a cystoscopy.   We all know i'm terrified of this so I asked what benefit it would have.    She said it would show anything "nasty" but having seen my ultrasound and listened to my symptoms she thinks it would be clear but couldn't promise and the decision was mine.   I am leaving it at the moment but I can go to my Doctor at any time and be put on list which is about 2/3 weeks.  The appointment system here has been really qood in my case. They even phoned me on Thursday to say they have a cancellation for today and did I want it.    Of course I said yes.     

      Please do keep me infoed on your progress and I will do the same.   I have no idea which way my story will end.   I may get fully better (doubtful) I may have to live with some of the symptoms  (probably) or I might have to be investigated further only time will tell.    I have found this website, and the people on it, to be particularly helpful to me and it is the only forum I have looked at.

      Take care xx

       

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