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I've had pressure on my bladder for 14 months, help?!

Posted , 51 users are following.

Jaffatinx
Jaffatinx

In July 2013 I had cystitis for three weeks, the hospital gave me 7 days of trimethoprim and sent me home. After finishing the course, the burning etc had gone but I still felt a slight pressure making me feel like I needed to urinate all the time. This feeling stayed with me day and night for three whole months,many all the urine samples that were sent off came back negative for an infection. I had vaginal swabs done and they were clear too. After three months it slowly died off, and is now an occasional occurrence. Occasional being a couple times a week. I've since seen a urologist who did a cystoscopy and checked for interstitial cystitis but that came back clear as well. I then had a laparoscopy (for endometriosis diagnosed in 2011) and that all came back clear, my endo hasn't come back. This brings us now to the last couple of months, I've had thrush which was treated at home. I now have cystitis again, and I'm on trimethoprim 10 day course but it's not doing anything. I've told my docs this but they won't even see me, I had to go through 111 to try and get someone to see me. I've tried trimethoprim, citrofloxacin, nurofontaine (sp?) and metronidazole. 

Nothing is working. I take cranberry tablets to prevent uti's and moringa tablets to help fight bacterial infections as I believe it is bacterial. Sex can aggravate it, it's worse around my mid cycle and when I'm on, no foods or drinks make it worse. The only symptom is like a pressure on my bladder making me feel like I need a wee. It comes out of nowhere. I've seen three doctors and spoken to five, they're all fobbing me off now and I'm becoming depressed because of this. It's now affecting my work and my relationship. I really need proper help, what could it be? I don't feel like I'm ever going to be normal again

2 likes, 99 replies

99 Replies

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  • thebrown
    thebrown Jaffatinx

    Posted

    I have had these symptoms several times now and I have discovered that when I eat any kind of nuts I get the symptoms.  I also have noticed that when I take any type of Ibuprofen I get these symptoms.  I do believe that our bodies are allergic to some types of food or medicine.  I don't know if you have any allergies to nuts or Ibuprofen but, try to elimate different things that you eat on a daily or simi-daily basis and see if the symptoms go away.  Also, drink lots of fluids even though it makes you go to the bathroom more.

    Hope this helps!

  • robert29203
    robert29203 Jaffatinx

    Posted

    Hi I have been having the same symptoms for over almost 2 months now did they ever tell u what I was ?
  • kari16337
    kari16337 Jaffatinx

    Posted

    Sometimes I feel like I'm going to pee my pants also. Nurses are saying bv should not effect my bladder. Well when bv acts up so do my bladder problems!!!

  • norman79772
    norman79772 Jaffatinx

    Posted

    So sorry to hear about your pain. I can only advise being in a similar situation. Look for something drugs related that might be causing the pain.for me it was allopurinol for gout.taking long term antibiotics is no good. Make sure at least you are taking pro biotics at the same time. I had symptoms like you. Wanting to go to the bathroom for no reason it would come out of the blue. Pain pressure in my bladder. .poor flow, redness in the penile area. Skin peeling. I had lots of unexplained pain and irritation. GP could not help. Dermotologist no use. Urologist equally useless. Good luck my. Friend.
  • kelly2872
    kelly2872 Jaffatinx

    Posted

    Hi

    I had this problem a few yrs ago and it drove me crazy as well until we finally found what works which totally freaked me out when I first heard what they wanted to use but it finally got rid of it.BORIC ACID CAPSULES.. I said wait, what ?! roach powder.😱 I still trip off it, but it works.

  • Bella435
    Bella435 Jaffatinx

    Posted

    I have had this exact same thing! Had cystitis, got 3 days of antibiotics that helped relieve burning, but because I still felt uncomfortable they ended up giving me a week of Trimethoprim, then a week of Nitrofurantoin. Everything has come back clear & I feel the exact same to how you have described. I’ve been referred to a gynaecologist but waiting on that now. Did this feeling go off?!? 

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