I've had severe fatigue for 4 weeks really scared
Posted , 6 users are following.
Had bad chest infection 5 wks ago since then severe fatigue no energy dizzyness nausea heavy legs shoulders arms breathlessness went to my gp who said it sounds like post viral fatigue been told to go back in four weeks only blood pressure was taken which normal I'm 58 yr old female
non smoker non drinker but have thyroid probs autoimmune liver disease and transverse myelitis just given up work due to no energy
0 likes, 22 replies
Gized royalty
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Check back with your Dr and write down your symptoms.
It take 6 months before anyone can diagnose you with cfs
Good luck
royalty
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Omg that's such long time several years ago I was diagnosed with transverse myelitis in effect took the use of my left side I have no ability to rush run etc now. Yes I will be going back to drs long before months up regardless of my gp saying she wants to see me then as I am getting worse as days go by
jackie00198 royalty
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This sounds like what happened to me many years ago. I suspected ME/CFS, but read that i couldn't be diagnosed before 6 months. I had bloodwork done (which you should do), went to a specialist at UCLA, and was diagnosed within 4 months. I believe I could have easily been diagnosed sooner, had I found the specialist sooner. I also wish the specialist had told me the following: take it real easy, don't push yourself, and do whatever you can to de-stress. I think those are the best words of advice I can give to you. Also, avoid caffeine and sugar.
phillis55984 royalty
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Hi Royalty. I, too, had some kind of infection that left me wiped out. It took a couple of years before I gave up and went to a doc after hitting an all-time low after a trip to Europe with my daughter. Saw a doc when there, but he couldn't find anything wrong. After getting home I hit bottom again and landed in the hospital. Was told it was hypoglycemia. Was sent to a specialist. The specialist said it wasn't hypoglyemia. Said I was "depressed." Duh. How many of us have heard that old song? Then my family gp had a bunch of blood work done and diagnosed me with CFS. So, yes--a dumb old chest or bronchial infection can be the last straw that allows CFS to take over. I think it is all stress related. The body can take just so much and then it caves. I'm now 81 and have lived with this for twenty years.
royalty phillis55984
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When I first went to drs about this she looked at my notes and said I see you've recently had chest infection I said yes I was given 8 eurothromycin 500 mg dosage daily for week. Which really wiped me out I have other health probs too that obv not helped I have very weak immune system sadly so dosent take much to bring me down. She said well maybe your chest infection could have been glandular fever I said well I don't know about that but can tell you I had glandular fever when I was 16 I wasn't aware you could get it twice , but as wasn't tested for glandular fever and told was chest infection you accept that's what it was
I have feeling this this pain deep in my ear could be labiritis how ever you spell it as the dizzy ness comes and goes
phillis55984 royalty
Posted
From what I have read, Royalty, lot of people with CFS have reported dizziness as one of the symptoms of this disease. However, another possibility is that you are dealing with a fairly common problem that a certain exercise can improve. Go online and look up the Epley Maneuver. I don't remember exactly what causes the ear problem, but you could find out by looking up the causes of dizziness. I know there is an explanation for this, but I've gone blank as to what it is in the inner ear that goes where it isn't supposed to go. The Epley Maneuver gets whatever it is back where it belongs. Worth a shot, Royalty.
royalty phillis55984
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phillis55984 royalty
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Royalty, I should have included this: The Epley Maneuver is for the kind of dizziness that makes you feel like your head is spinning in circles--vertigo. The kind of dizziness I get with CFS is more like a wooziness--like trying to walk on an air mattress that is floating on bouncy waves. I have had the other kind and have used the Epley Maneuver, but it is caused by (I finally remembered this--looked it up to be sure) a little crystal (we all have these lttle calcium bits in our ears) moving out of place. It feels different from my CFS thing. Don't spin with the CFS. Hope this is clear 'cause I didn't want to give the wrong info.
royalty phillis55984
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The only way I can describe my dizzy ness is a wooziness exactly like trying to balance that is floating on waves mine isn't a spinning at all I find that I can't concentrate an feel nauseous neck pain shoulder pain like someone is pushing down on my shoulders almost like I'm carrying something on shoulders, yesterday the fizzy ness subsided a little I was able to move about normally was so happy, today diferent story back same as ever with vengeance. Which know tells me after five half weeks of not really improving I need to go back to drs. My head feels as if wearing hard hat and I got squeezing sensation on head. But it's not a actual headache it's a pressure squeezing, 16 yrs ago I had transverse myelitis which affected my left side took away power to rush run jump etc this has been permanant I was tested for long time for ms. The drs told me it was inflammation of spinal cord transverse myelitis
jackie00198 royalty
Posted
I just wanted to mention that dizziness is a possible symptom of ME/CFS. The well-known author Laura Hillenbrand (she wrote "Seabiscuit"
has this dizziness with her ME/CFS, and has even written about it.
phillis55984 jackie00198
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You're right, Jackie. For me, the type of "dizziness" that comes with ME/CFS is different than the kind that comes with an ear crystal that has moved. The second kind is a whirling dizziness like Menniere's disease. The kind of dizzies I get with ME./CFS is more a wooziness. The closest I've been able to come to describing it is like trying to walk on an air mattress on a wavy lake. Off kilter. I suppose like everything else with this darned illness, people experience it differently. Some people don't get the dizzies at all. I didn't read "Seabiscuit" I've I've read about it. Hillenbrand was one of the people who helped bring ME/CFS into the scientific limelight if I remember correctly. I should read it.
jackie00198 phillis55984
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Yes. "Seabiscuit" is definitely worth reading, even if you're not into horses, per se. Also, I highly recommend Hillenbrand's article, "A Sudden Illness," which appeared in the New Yorker several years ago. It's about how she got ME/CFS and has had to deal with it. I think everyone with this illness, and people who know someone with ME/CFS, should read this.
phillis55984 jackie00198
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"A Sudden Illness" is another I haven't read though I remember hearing about it. Thanks so much for reminding me of it.
phillis55984 royalty
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Hmm. That doesn't sound like something the Epley Maneuver would help. It wouldn't hurt to try it--it isn't difficult to do--but I don't think it would help that CFS wooziness.
You'll notice that it becomes easier to focus--you won't see anything spinning--if it is caused by misplaced ear crystals and non CFS. However, if your ear hurts, it may be an infection or that myelitis(did I get that right?) you mentitned. I'll stop typing now because I'm just becoming a source of confusion. :-) Good luck!
royalty phillis55984
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royalty phillis55984
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I am seeing my gp this morning I feel I need tests done she did say wait four weeks and come back I'm not prepared to wait I've had all these symptoms for several weeks before I saw her she did say that four weeks before I was not anaemic I've just had blood pressure taken since no other tests. I have underactive thyroid I feel I should have this checked I'm on lowest dose of med for that. Got ear pain neck pain shoulder pain head pressure general wooziness hopefully I get to have blood tests done
phillis55984 royalty
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royalty phillis55984
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My gp is sending me for a ct scan so hopefully will know more she's not going to do any blood tests which has suprised me really but at least the ct scan is a start she said it could take few weeks for appointment to come through yes I will let you know the outcome