I've have epilepsy/seizure
Posted , 5 users are following.
Hello, I've epilepsy and it all started when I'm 20 and I'm 36 years old now. no history of epilepsy in our family and neither did I had an accident or head injury. when it newly started, just happened and stopped so no body suspected epilepsy. months later it started again and I've been battling with it up till now and is like every month thing now and I don't want epilepsy. it do last for like 5-10 minute, i will be very weak, unconscious, loss of taste, head and eye turning to one side, stiffness those are the things I do experience after the seizure. I was placed on tegretol after electrolytes test( bicarbonate 28, sodium 144, chloride 101, potassium 5.1 test result) what can I do to stop the seizure and which drug will you recommend for me?
0 likes, 20 replies
Winnie143 Rotuns
Posted
I was told by Doc to up my phenobarbs, I told them a specialist said no higher dosage, but do they listen Nope !! So with insides burning and skin stinking of bleach Off I go to see Doc and tell him how ill I feel. They think I am imagining it !!! Grrr.
Keep well all and my levetracim was changed to Keppra genetic is it?
Jane take care xx Well all take care xx
jane75220 Winnie143
Posted
Can you go to another surgery or another GP at the same surgery?
If the phenobarb is having this effect then it needs to be flagged up as
an adverse reaction to the MHRA.
Drs are not llowed to switch to generics in the UK if one has epilepsy.
Can you tell/ask your dr to put you back on the brand of keppra that you were taking previously? Check with several pharmacies that this brand is still available. If you PM the previous brand I could research this at the same time as yourself.
Take care xxxx
Winnie143 jane75220
Posted
Relax and rest up and hands you a smile for down times xx
Winnie143
Posted
jane75220 Winnie143
Posted