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I've just been diagnosed with fibromyalgia I'm on 75mcg fentanyl oxynorm diazepam and other stuff

Posted , 8 users are following.

alexis10
alexis10

Just wondered if there is anyone else is in same/similar position?? Would love to hear from anyone who has and would like to chat. 

0 likes, 16 replies

16 Replies

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  • tiswas24537
    tiswas24537 alexis10

    Posted

    iv had it for over 10yrs , and remain pretty balanced pain wise using natrual products , the thing i find the worse is the crushing fatigue , i cant get a handle on that , its the worst part for me .  i use  coildaul gold which helps a little . 
    • alexis10
      alexis10 tiswas24537

      Posted

      Hi tiswas, thankyou for responding to me, much appreciated you taking the time out. Hopefully as each day goes by I can learn from people on here. Take care, alexiss.
  • Busybeemumof3
    Busybeemumof3 alexis10

    Posted

    Hi Alexis, i too have recently been diagnosed but I've been prescribed Amitripyline only. It's interesting to find out on the forum the different GPs approach to treatment. I have only been taking my New med for a week now and haven't noticed Mitch difference to be honest , apart from the fact I sleep better than I did, meaning less trips to the loo during the night too! and the itching has improved a bit , tho not completely. I'm due to titrate my dose tomorrow so i 'll know more then. The pain and stiffness in my muscles and hands and feet is still as bad. I have GP appointment next week to discuss how I'm doing so wl mention then . I'm still learning myself but people on here have been very helpful and supportive. Good luck with your new meds, hopefully someone here will have experience of the same. Best wishes and take care. x
    • alexis10
      alexis10 Busybeemumof3

      Posted

      Thank you so much for replying to me, really appreciate it. Hope you continue to hv better sleep at night. Take care, alexiss.
  • jackie20702
    jackie20702 alexis10

    Posted

    Feel for you hun ive had it years but got diagnosed 5 months ago they put me on all sorts but it just turns me into a zombie so I'm going try vit D and magnizeum it helps so o Belive God I bloody hope so 💖
    • alexis10
      alexis10 jackie20702

      Posted

      Oh jackie, thats so bad. Its taken drs etc 10 yrs to finally diagnose me. A lot of the pills i have been on over the last ten years made me feel like a zombie to, couldnt do anything!! I feel relieved i spose now that its not all in my head as i was seriousl beginning to think!! Anyway hope your not to bad at the moment and thankyou so much for your reply. Alexiss. 
    • jackie20702
      jackie20702 alexis10

      Posted

      I no what you mean they givee pain patches never again I was the walking dead a zombie I refuse them now, I havnt found anything yet that suits me I'm in so much pain stiff I think I've had it about 12 years but last 3 years for worse I use go gym twice a day so I put it down to that and all along it was fibro, I can't do gym now to painful I'm limited to lots of things can't walk my back and knees feet hands you name it its every whete, I hope they sort you out I wouldn't wish it on anyone good luck sweetheart 💖💐
  • joy47826
    joy47826 alexis10

    Posted

    I take ALL supplements for FM which hit me in 1999, I was 61.

    Need to get THYROID support as I believe and have heard from so many FM and thyroid are so connected...

    I take otc iburpofen and DGL for stomach protection...otherwise all supplements....been working with supps for 25 yrs.....

    The drugs are bandaids and we need to FIX so many things that are broken down....adrenals, thyroid, hormones, B12, magnesium and much more.   Joy 

    • jackie20702
      jackie20702 joy47826

      Posted

      Can you adviser on supplements please my doctor just give me bit d and magnizeum is there any more as I refuse take the prescription drugs turns me into a zombie is rather be in pain xx
  • sharon1722
    sharon1722 alexis10

    Posted

    Hello Alexis,  I'm sorry to hear you have this disease.  I was diagnosed in 2011.  I don't recognize the medication you are on, but there are so many.  On top of pain medication, I also take Tumeric capsules, vitamin D pills, B12 shots monthly.  All these medications help with the various complications that come with Fibromyalgia; such as Fibro Fog, feeling tired and run down, pain in arms, hands legs, etc.  depression.  Weather can also bring on changes.  The most harmful thing I believe, is stress...that can really bring on a Fibromyalgia flare up.  Good luck to you.
  • anne90395
    anne90395 alexis10

    Posted

    Hello Alexis,

    Welcome to this site. Lots of good support and understanding on here. Must admit I haven't heard of these drugs, only diazepam. Seems like a lot tho'. I only take amitriptylene, helps a little with pain, but more with sleep. Whereabouts do you live? I am in Hampshire.

    Take care, Anne

    • alexis10
      alexis10 anne90395

      Posted

      Hi Anne, thankyou for replying to me. I live in kent , just off junction 5 of the m25. Am trying to find out if there are any support groups near me as i'm feeling quite alone at the moment. I hope your having a good day today.

      Take care, Alex.

  • Lucyred
    Lucyred alexis10

    Posted

    I finally was diagnosed 4 plus years ago after ther hernia operation I had. That is when everything started. I had a dr that wanted to put me on fentanyl but told him staying on Norco was better because what's going to happen when I really need some pain medicine. I am on Valium, Neurontin, Fioricet for migraines and compazine for nausea. There are a few others when needed like the migraine meds. I know this is one frustrating disease and so many unanswered questions. I feel like it  doesn't matter if I eat well or don't eat well I don't ever see a difference. Sometimes I have my binges of eating some junk food. I hope you find answers to your questions and I'm here for you if you need to chat. 
    • alexis10
      alexis10 Lucyred

      Posted

      Hello lucy, thankyou so much for your reply. I feel at the moment any others experiences can only be helpful to me as I feel very gloomy abouth the whole thing. I'm not having a very good day today, my body feels like its just going to collapse on me. I am also having a lot of problems with my left hip which has been going on for a couple of months now but is really affecting my walking ability at the moment. Is it quite common to have problems with one part of the body more than the other?? Am just feeling very fedup at the moment.

       

    • Lucyred
      Lucyred alexis10

      Posted

      Try to keep your head up as hard as it is sometimes. Keep researching and asking for others opinions. Do you remember when all yours started? Trauma, surgery, car accident?? Where do you live, hot or cold right now? I know that the last few days have been very hard on my body because of the cold. I decided to go walk a bit for the first time in ages and boy did I pay today for that, but no pain without gain. Sitting and doing small things at home is not healthly for me! What do you do? I had just quit my job after 42 years because of health issues not being able to take it anymore. I would love to hear more feeback from you! Take care and have a good day.
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