I've just been diagnosed with over active thyroid 6 to 10 week wait for specialist , but in agony

Hi there, sorry to jump in on your discussion & hope you dont mind me asking but do you take Carbimazole? My cons prescribed me 10mg daily, but side effects & reviews have really worried me!

I havent started it yet because im so worried, in comparison my hyper symptoms are pretty rubbish too, catch 22 position comes to mind!

My cons did suggeat i could go for partial thyroidectomy as my hyper is caused by multi-nodular thyroid....ohhh the anxiety, the thyroid, the anxiety etc etc ?? xx

I have had no side effects whatsoever. I have been on 20mg a day for three months now. I would certainly try them before undergoing a more permanent solution. Good luck!

I was on 10 mg a day and that's a relatively low dose. I did not suffer from any ill effects on that dose but I needed more to help my recovery from Graves. I did a lot of research and added supplements to take along with my methimazole such as Regular L-Carnitine 3,000 mg a day, vitamin D 1,000 IU per day, Magnesium 200 mg a day, Co-Q10 100 to 200 mg a day (good for the heart) and curcumin and Omega 3. Most of the negative effects you read about Carbimazole are more prominent in much higher doses than you are on.  As far as the nodules, they often disappear if you get into remission.  The nodules that require surgery are if they are malignant or if they are impeding your swallowing etc.  I would definitely think twice about anything that damages or destroys or removes your thyroid.  For me I want to keep mine.

Hi Linda,

Thankyou so much, you've helped more than you know...im definitely going to research the alternative therapies to work alongside the Carbimazole...& yes, id much rather keep my thyroid, ive grown quiet attached to it! xx

Hi Evergreen, thankyou so much for your advice, my decision has been made alot easier with your help...stupidly i didnt think whether the dosage would effect the side effects - the Midwife in me should know better! xx

Hi

What was our thyroid hormone levels? Did u have any tests for antibodies?

How can u buy carbimazole online?

.all I know at the moment is my thyroid is over active GP didn't go into much detail...printed information off the computer re: under active thyroid and told me he would refer me to the hospital....should.I feel any worse ring him!

Sorry that should have read over active

Hi Cindy...

My TSH was 0.03 back in April, cant remember T3 & T4 levels - brain fog! Only got to see Cons last Tuesday so not too sure what my levels are right now. Due repeat bloods in a month.

As far as I know Carbimazole is a POM - Prescription Only Medicine xx

Many thanks, I think I need to return to my GP next week. Everything I do is a real effort litterly dragging my self around the house when I first get out of bed in the mornings.

The symptoms are pretty rough aren't they...I think we should try & take it easy on ourselves...Thats my approach at the moment, I was only diagnosed on Tuesday (21st), so trying to get in plenty of relaxing, warm essential oil baths, yoga, meditation & healthy eating, (have a look online, theres lots of info on food to eat & food to avoid) not easy with 3 boys under 5, but thats what evenings are there for! Im researching alternative therapies also to work alongside Carbimazole!...We mustnt give up hope, thyroid issues just mean we have to work abit harder, so work harder we will! xx

Its really hard

I know that feeling only too well but I don't know why this happens. Why the muscle pain and stiffness?

Do you get throbbing joints?

Yes always especially when I get out of bed...and to top it all I'm writing this from hospital admitted Sunday gone with pancreatitis, pain was excruciating !!!