I've just been diagnosed with over active thyroid 6 to 10 week wait for specialist , but in agony

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When I get up in the mornings I can hardly walk the whole of my body aches is ther anything I can take till I see specialist?

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  • Posted

    Hi bery38883, I would also do as evergreen suggested. Go back to your GP and ask to be given thyroid suppressing medication. In my case, the GP made a quick call to the consultant while I was waiting and prescribed Carbimazole. You will need to have blood test done during the first weeks to monitor your thyroid levels. Your GP should also schedule a blood test a week before your appointment with the endocrinologist. Then the consultant can already estimate the effect of the thyroid medication and advise further.

    While being hyperthyroid I was suffering from severe muscle pain. I could hardly get up from a croutching position. I started to crawl up the stairs on hands and feet (literally). Worst affected were the muscles in the legs and arms. I also noted that some muscles started to twitch, notably my eyelids.  

    Muscle weakness and fatique is one of the symptoms of hyperthyroidism. An excess of thyroxine can also cause a wasting of muscles (thyrotoxic myopathy). It would be very good to get your thyroxine to normal levels quickly. Together with Carbimazole I started to take a supplement called L-Carnitine, an amino acid . It is an antagonist of thyroxine and may help to reduce the damage caused by thyroxine to muscle tissues. It is produced in the body but many patients with hyperthyroidism are deficient. You could start by taking 1000mg L-Carnitine per day. If in doubt you can ask your GP.

     I noted an inprovement of my muscle pain after about 3 weeks on the medication and the supplement. I lost some weight (and presumably muscles) while being hyper but I noticed my muscle-strength coming back after about 2 months. And please rest as much as possible at the moment, don't do any form of exercise except for very, very gently stretches. Hope this helps. 

    • Posted

      Thank u so much danR, it seems since I was diagnosed a week Friday gone my symptoms have gone worse....thought I was imagining some....
  • Posted

    beryl ...   don't you think it would be a good idea to try to keep your thyroid 

    as you will undoubtedly become Hypothyroid after surgery .

    Hypo can cause awful problems in your health ....

    Linda has given you some very good advice  ... like her I managed my Graves disease by taking Carbimazole to start with 20mg per day ... then slowly down to 5 mg per day and then stopped a few weeks ago...  that was about 9 months ago and now my bloods are normal  .. Thank God !

    I was very ill and in great pain and had extreme fatigue ...But not now !

    I also supplemented ..with several different vitamins and minerals

    B1

    B12  ( must be sublingual as it is absorbed better than taken orally ) 

    B Complex

    D3

    Magnesium

    Zinc and Copper

    Selenium

    L Carnitine  ( which acts like Carbimazole and you can wean yourself 

    off Carbimazole by using this too...  wink

    I had not side effects from Carbimazole...you may not either !

    i found the B vitamins made my pain decrease rapidly   I took them in 

    high doses for a week or so to begin with..,  then lowered as they began

    to have effect ..

    Im not an expert ... but I know supplementing has made me healthy again

    and I also was told RAI or surgery were my only options ..  wrong !!!

    i tried to fix my immune system .., which was causing my thyroid to

    overwork in the first place ..  and it worked .  Maybe you could try it before 

    radical treatments.

    the very best of luck to you... ??

     

  • Posted

    me again beryl

    I meant to say that the dreadful fatigue will be greatly reduced with the three 

    Bs   ...  

    B1   

    B Complex   and 

    B 12    ( must be sublingual )

    please try them .   but Google them first so you understand the way they work with thyroid problems 

    I got all my supplements on Amazon 

    M🌹

    • Posted

      Hi Madge I have only just been diagnosed with over active thyroid just waiting for my appointment with the hospital, not sure what medication they will put me on. I hope it won't come to the removal of my thyroid

    • Posted

      Hi Madge

      I am unable to toleraate L Carnitine as it is contraindicated in epilepsy. Is there a substitute at all?

      TIA.

    • Posted

      Bugleweed, Motherwort and Melissa.  Some shops sell them already mixed together or you can buy them separate.
  • Posted

    Hi, I'm new to this forum so have half replied in a new discussion post, as well as in this thread - I'll get the hang of it soon!

    Just to say you aren't alone, and I'm in the same boat - I agree with others that it's a good idea to go back to your GP.  They can prescibe you medication straight away, and they shouldn't been leaving you in agony.  I am anxious about the pros/cons of Carbimazole, but I've been put straight onto 40 mg per day. I'm taking it because I realise that this is the first stage of treatment (from what I've been told anyway).  No side effects so far, but it's early days and I'm sure there will be some from what I've read.  But at the end of the day, I'd see what the GP says. All the best. X

    • Posted

      Glad to hear this. Mind my asking you if you have any other conditions?

      Sorry to ask.

    • Posted

      HI Delirious - no other conditions that I know of - are you having to cope with other conditions alongside the hyperthyroidism? Best wishes. X

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