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I was diagnosed with LS 2 weeks ago. I am having a biopsy tomorrow

Posted , 10 users are following.

anna80050
anna80050

My routine gynae exam revealed that I have LS..the dr gave me steroid cream to be used 2/day..I cant see any difference..the white areas havent changed. I am having a biopsy tomorrow and am petrified. Would love a few kind words. Many thanks!!

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  • marey
    marey anna80050

    Posted

    welcome! When I was working in theatre a friend had her wisdom teeth removed...i put a very small bunch of flowers in a test tube on the counter facing the direction she would be looking....with a GOOD LUCK note beneath. she told me that as she drifted off, the colour of the flowers was the last thing she saw ..and that a tremendous sense of peace pervaded as she floated away under the anaesthetic.

    So, although you're not having a general ...as the local anaesthetic proceedure advances I invite you to find a far off spot to locate and to fix on, and, as you do so, to visualise your favourite colour...purple is very healing ....let it eminate from that distant object and with half shut fluttering eyelids let the colour come towards you ....surrounding you ....and entering your body from all around. As you breathe in with slow steady breathes also breathe in white light specifically through your nostrils... to join with the purple haze... thus creating a rosy pink canvas in your mind's eye. 

    No need to chat or make any 'helpful' assistant feel better just explain by speaking in a very slow and far off voice that  you're relaxing and visualising...saying this... or anything... in a really exaggeratedly slow voice is a very powerful trigger to your own endorphins which will rise to help and to relax you. In this way you can work on finding your inner peace..even in extremis!

    Such practises are not only calming but healing too and your scar will be minimal. very best wishes with loads of love and hugs

    marey xxxxxxxxxxxxxxxxxxxxxxxxxxxx

    ps my note will be there waiting for you...even if you can't see it. Good luck ! Thinking of you x

  • Morrell1951
    Morrell1951 anna80050

    Posted

    Welcome, Anna. The biopsy is a good thing. They're just checking. Some doctors prefer to look at a biopsy before diagnosing LS definitively. Makes sense, since it means a lifelong prescription for a very low dose of steroids.

    Once we're under the care of a gynae, there's almost zero chance the worst will happen, which is squamous cell carcinoma. It's women who've gone untreated with LS and then VIN, they are the ones who make up the cancer stats.

    You're in excellent hands with the doctor – and with this great group. I had lots of those punch biopsies from my cervix twenty years ago. Not fun, but zero cancer.

    Stay calm, take care of yourself, avoid the worst comfort foods (chocolate and chocolate – it's been almost unanimous on this forum that chocolate causes flare-ups) and you'll heal just fine.

    My white patch is very small and comes and goes.

     

    • anna80050
      anna80050 Morrell1951

      Posted

      My dr saw the lesions last year but thought it was something else..she didnt tell me anything...so now I am really worried that it has already progressed...
    • Morrell1951
      Morrell1951 anna80050

      Posted

      Ah, well I can see why you might be worried, but these things are very slow-moving. Even if (and it's unlikely) you had a bit of Squamous, it's totally removable. My sister had a large swath removed from her vulva twenty-five years ago, end of story. My mother's doctors watched a bit of it on her chest for years before they had the plastic surgeon remove it. End of story.

      Thinking of you and hoping it's nothing. Hugs!

  • marey
    marey anna80050

    Posted

    you'll get things back under control!

    xxxxxxxxxxxxx

  • Chrisy
    Chrisy anna80050

    Posted

    Hi Anna,  Glad your biopsy went well by the sound of it.  I just wanted to add that I was given betnovate, then dermovate cream, but changed to Dermovate ointment (Clobetasol Proprionate 0.05%) which seemed to work better for me and many others I have spoken to.  If something doesn't work for you do not be afraid to revisit your GP to get help.  If things still do not improve maybe a dermatologist might help you more than Gynae. Good luck
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