I was just Dianosed with PMR.....
Posted , 12 users are following.
This is so new for me. All the pain I was having...I thought was old age until my GP dianosed me with PMR. Now I'm so depressed!!
0 likes, 12 replies
Posted , 12 users are following.
This is so new for me. All the pain I was having...I thought was old age until my GP dianosed me with PMR. Now I'm so depressed!!
0 likes, 12 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Nefret cruiserdiane
Posted
Are you on steroids and if so how much? What information have you been given and/or read on PMR? Some more info would give us something to work with or around.........and if you are depressed you must let your doctor know. It can be a side effect of both steroids and PMR, and s/he won't know if you don't tell them. There are therapies and treatments readily available, there is absolutely no need to suffer with depression at all.
ptolemy cruiserdiane
Posted
pam7653 cruiserdiane
Posted
Yes, I still have a few set backs and joint pain occasionally.
I still cycle now anywhere from 10-50 miles at a time. I swim across my lake 2-3 times a week, I also kayak a lot. In August I climbed a 14,225 ft mountain. It was hard as hell, but I did it!
Life is not over, you must not let it take charge. Not everything that goes on with you is related to PMR either. Some is just age and arthritis.
So pull yourself up by the old boot straps, take your meds and get out there.
You don't have a terminal disease, thank the Lord!
You are in good company with this group! You will likely get more info here, than by your doctor. The U.S. seems to be lacking in information. Be your own advocate. Only you know YOUR body. If they put you on Prednizone, decrease slowly, 1 mg every
6 wks or so.
Good luck! We're here for you!
Juno-Irl-Dub pam7653
Posted
Seriously, well done, and long may it last - and I just love your "Just do it" philosophy . . . .
Kind regards, J
lodgerUK_NE pam7653
Posted
pam7653 lodgerUK_NE
Posted
pam7653 Juno-Irl-Dub
Posted
Thanks for your positive remarks!
Anhaga cruiserdiane
Posted
beatrice74480 cruiserdiane
Posted
EileenH cruiserdiane
Posted
PMR can't be cured but it can be well managed with the right dose of pred and some life-style adaptation if necessary. Some people, like Pam, are relatively lucky and are able to carry on life much as before. Others are far more affected by the fatigue and you have to learn to live around that. But a good life is still possible for the vast majority of us.
As Nefret has said - if you are depressed tell your doctor. There is no need to add that to the mix.
cruiserdiane EileenH
Posted
today and I will address my depression with my Dr tomorrow.
Thank you again and glad I found this support group!!
EileenH cruiserdiane
Posted
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
The first post in the thread has links to reliable and readable info as well as other forums. The following posts in the replies discuss a very slow method of reduction that has worked very well for many patients.