Ibs or ibd

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I am suffering with erratic bowel habits not so much pain looser stools constipation feeling like not emptied after bowel movement just had cal protectin test was 60 but go doesn't think it's ibs but when I read up on it it's over normal range then I also suffer with chronic fatigue and cpps not sure what's related to what anymore anyone been in situation

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  • Posted

    Hi Russ, I suffer from this. What is "cal protectin test was 60"

    I was diagnosed with IBS this year in the ER but my gastro just put me on an intestinal med to help eliminate completely. I need to take it for a month & so far a week on. It's still the same. The feeling of going, sometimes I do, sometimes don't.

    I breath out this poo breath. By any chance do you have this too?

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    • Posted

      Hi Chris cal protectin stool test measures inflammation in digestive tract I suffer with acid reflux due to a weakned sphincter which allows the reflux and probably need surgery to correct it
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    • Posted

      Russ thanks for your response. I have all the symptoms, changes in my stool. I was given a stool test but all that my GI mentioned was that e.coli showed up & he said not be concerned bc his other patients have this & NOT part of my symptoms.

      If I drink fiber(GI said to) I get more constipated & breath out horse manure.

      I don't even know if I'm diagnosed right & taking a med that is good for me.

      last year ENT kept telling me I had reflux & took that med, it didn't help. I have a hernia & my stomach moves up & down chest. I've asked docs to monitor or if I need surgery but they said that's not the cause of my symptoms. I guess they are waiting for things to get worse to do something.

      I don't know what else to do. I can't find work bc I stink up the place w this odor & I'm not paying gas.

      I've found others on these blogs w my condition & that's some relief that I'm not the only one.

      I hope you find a solution.

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  • Posted

    Ever had a colonoscopy?
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    • Posted

      No not yet my gi doesn't think it is ibd the cal protectin was 60 which is a little high just over upper limit what else could it be I looked at sibo symptoms I have some things ,the fibromyalgia chronic fatigue is a syndrome of things the more I researched it says ibs chronic pelvic pain are common to conditions to have basically it's affecting all my systems all blood tests come back ok it's very frustrating maybe I need to have the colonospy to be sure I just have a feeling they won't find anything had a lot of tests Mri s found nothing really apart from scarring of my oseupgaus due to reflux there are so many symptoms with ibs not sure really need to speak to gi again
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    • Posted

      Hmm well the only way to properly rule out IBD would be to take a biopsy and check for it under the microscope. I haven't had a colonoscopy myself but had a flex sig which was a bit uncomfortable but no where near as extensive as a full on colonoscopy. Also no bowel prep needed other than an phosphate enema administered on the day. Maybe that's something to consider. You won't know for sure unless the biopsy is done. Usually the calcprotectin test is done to identify where further investigation might be warranted. A higher than usual result plus symptoms might be worth it if you want to do ahead.

      And yes IBS symptoms are certainly varied! I've got barely any of the main ones and lots of the more unusual ones! I guess we're all just special that way! ;-)

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    • Posted

      Hi yes it's the only way to know is I don't have the main ones either that are significant of ibs when I look at symptoms, gi mentioned that one flex sig as he said at my age it wouldn't be cancer anything maybe I take his word on it he said its up to me thanks for your reply just out of curiosity was your cal protectin tested
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    • Posted

      If you don't mind me asking how old are you Russ? I'm 30 myself. I also have the fatigue and the pelvic pain too. I also have the eratic bowel habits, with stools usually looser than normal but sometimes more dehydrated. Once in a while ill get the abdo cramps and bloating. But my main symptom is actually debilitating nausea which stops me eating and then weight loss which I worry about (I have a quick metabolism so it doesn't take a lot of missed calories for me to lose). Then the nausea goes away and I gain the weight again. Hence why I'm currently pushing for an endoscopy and full colonoscopy. I just want my mind put to rest. All this came on over night in June this year.

      Literally every test I've had have all come back absolutely normal. Calcprotectin I've had done twice and has been less than 10. Flex sig biopsies (and they took lots) normal. 3 rounds of full bloods normal. Celiac normal. Thyroid normal. Helicobacter negative. Pelvic US normal. Second Pelvic and Abdo US done my a specialist doctor who checked the liver and gall bladder and bowel where I have a specific recurring discomfort also normal. My doctor has actually said I'm the sickest healthy person she's seen.

      I also want the SIBO test which is why I want them to do the endoscopy and check it from biopsies. I'd been on long term antibiotics before all this happened, so I've got my suspicisions. Sorry for the life story!

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    • Posted

      Michelle, thank you for sharing everything that you have been thru.

      you mentioned taking antibiotics for a long time. Was this one course since June?

      I was diagnosed w IBS in April at the ER. My gastro said the same but I wonder if I'm diagnosed properly & now on an intestinal med for a week.

      helpful info was posted but taken down on this blog.

      last year I developed my symptoms & poo breath. I was given antibiotics three times. The breath I STILL breath out was a misdiagnosed from ENT that I had reflux/gerd.

      this year I found out by bravo test from GI that I don't have reflux. ..

      I desparately need to work & breathing out in public again but this odor takes over a room or stinks up from feet away.

      I'm blogging w others on identical, docs can't find an answer except push more antibiotics.

      I eat healthy, drink water and still breath this out.

      I have a hernia since last year but docs don't want to monitor this. I'm in the U.S. had endoscopy/colonoscopy done last year.

      just like you my blood work, biopsies come back health.

      I'm calling my GI tmrrw & question if I'm diagnosed IBS?

      I have incomplete bowel movement. I go several times through out the day. Loose stool, bloating, (no cramping), urge to go but nothing there. I've researched but can only think that we need to rebuild

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    • Posted

      Russ, has your GI mentioned taking probiotics, digestive enzyme, your diet?

      Do you eat white flour, sugar...?

      I've changed my diet since April, some symptoms are less but I need consistency w bowel/complete bowel movements.

      Did you take antibiotics?

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    • Posted

      Hi I am 36 it had all been a gradual build up with me everything changed about 2 years ago had respitary infection was never the same had pressure headaches developed breathing problems due to nasal congestion had recurrent infections until last infection which I have never recovered that's when all my systems was truly affected I have not worked since and doubt I will I have recovered to a sense but I am limited to what I can do the fatigue is not like feeling just tired I literally can't move it's awful seeing urologist again have frequency and flare ups of pain chronic prostatitus I kind of know I have had had lots of antibiotics but my digestion changed before this for me so it's nothing to do with them docs do so much I have had so many blood tests but for me I am kind of know my body has changed its fibromyalgia or m e for sure I have been unlucky I was fit before this infection what triggered this sorry for my life story best advice I can give is try not to worry make an hour of the day to worry it can make symptoms worse for me you have to push docs for answers l glutamine and few other things my diet is clean vitamin b complex helped me for energy my boss where low for that get them checked it can make a difference
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    • Posted

      You got it most likely candida outbreak from dysbyosis. Look up symptoms, breath. Bacterial overgrowth from antibiotics killing off your good bacteria. Now u have to figure out if u need to back off animal protien,fats or all csrbs untill its under controle. Probiotics, expensive ones, good solubal and insoluble fibre.
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