In the gutter , feeling Rock Bottom.. !

Posted , 15 users are following.

Hi Ladies, 

Well, it's been about 4 yrs since i last posted, i've struggled with this damn disease & i have to say, i feel totally beaten by it. I've tried to do everything to help myself, changed my diet, lost weight, got stuck into exercise (which actually irratated the situation, making it worse) I'm no further forward with LS what so ever.

My partner of 17 years walked out back in March, we were in the situation it was impossible to have a sexual realtionship, I became so low i had absolutely nothing positive to say about anything or anyone, basically LS has turned me into a total Monster & not only taken over my life, but it's ruined it.

My partner was ok about the intimate side of things, it was me that was struggling with it, We had a very healthy "bedroom" life, But over the years it has dissapeared to a big fat Zilch...OOOOO ! LS has made me very bitter & angry & like i already said has now created a Monster !.

I've given up going to my GP, as i've been told, nothing more can be done for me, So....when your'e totally on your knees in the gutter, where do you go from there ??

I have literally lost my complete world & have utterly given up, Because i've become such a Monster ( & i mean an evil one at that), My family have cut me off, my friends have turned there backs on me & then after 17 wonderful years, My partner tells me he's had enough & can't cope with my atitude & my sense of loss of myself.

So, maybe i just needed to "vent" for a while, i'm sure their are other people who relate to my sense of loss, That my undercarrigde has long departed, Vulvar has now totally gone, anal area is constantly tearing & sore, surely, have they found a miracel cure for us all since i last posted.

Have a fab day one & all smile 

0 likes, 26 replies

26 Replies

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  • Posted

    Have you tried Clobetasol?   I know it has helped me out a lot!  Others have said sugar is a trigger as is stress.  And you sound like you have a lot of stress in your life.  You also sound like you are very depressed.   A trip to a psychologist would be helpful.  Also give you some anti-depressants.   
  • Posted

    "T" has said she is in the UK.  We can't see a psychologist without a referral from a doctor, who is more likely to offer prozac or some similar anti-depressant.  That is probably not ideal if you are holding down a driving job. Maybe a good holiday, a dose of sunshine and some flirting is the way to go.  Being single has lots going for it.

    • Posted

      Hi Fran, your'e exactely right, i am in the UK, i'm already on an anti-depressant, you hit the nail on the head about the drug's, i'm legally not allowed anything stronger due to my occupation, if i were to take anything stronger my licence would be revoked. A holiday would be total bliss right now smile due to financial commitments i really could'nt a££ord it sadly. I think a lot of my problem is stress & the end of my relationship, I know this isn't an Agony Aunt site, But i kind of get maybe a glimmer of hope he'll come back & then think, what's the point, it's broken, it's never going to be fixed, thanks for listening, i really had forgotten how positive this forum is & it's probably the medicine i need right now to get me back on my feet....Thanks Girl's smile smile i know you'll pick me up & get me sorted, you have done in the past, have a great day all xxx Best wishes T     

  • Posted

    I can understand completely. At first it was just vaginal now it spread to my inner upper thighs and I feel like it's getting worse. I'm completely depressed and my partner and I are strained. I try to do everything right and nothing works. I don't know what to do. You are not alone. Lichens f*****g sucks.

    • Posted

      Did anyone mention borax already?  For me it was, next to diet and dilation,  at first baking soda baths and rinses, later borax baths and rinses.  Very gradually all turned for the better.  I suggest reading the discussion "An Experiment with Borax".  This far it has helped many.

    • Posted

      Hi D0728,

      I understand just where your'e at, it's so horrid, mine has spread to my groin & my back passage is so painful & on fire, espcially when i have  bowel movement. I can spend many an hour or so in the bathroom crying, it's got to the point some times i don't eat for day's because i'm terrified of the bowel movement with the tearing, splitting & trying to stop the bleeding. Mine definately flares up when i'm stressed, but i like many people, you can't help what stress occurs in your life, i.e ill health, job loss, fianancial worry, partner's, etc, the stress levels we can't be in control of, you have to get thru' it as best as possible & that's bad enough, but with a flare up too it makes it unbareable. Try to keep your chin up Honey, I feel your pain & sympathise exactely at your situation, thaqnks for listening ladies xx

    • Posted

      thank you so much. sometimes i don't even log on here for weeks at a time. but this definitely helps. I'm going to start visiting more. only you ladies understand my pain. xoxoxox

  • Posted

    I am currently trying a odd treatment recommended by a specialist. It is using crisco type shortening applied in and around vaginal areas on a daily basis. It has been about 6 wks and is seeming to keep me comfortable. This also keeps wiping after a bm more soothing. I am hoping the "greasing" keeps things from adhering any further. I want to really start watching my sugars and carbs, and keep this in check as well. It is easy to feel over whelmed but keep smiling!

     

  • Posted

    I can relate to the financial stress... so here's a suggestion. I hope this doesn't come across as promotion of a religion, because it's not. Instead of paying for therapy (which is fine if you can afford it and/or fit it into your life), I have read books and listened to audio recordings of Thich Nhat Hanh, a buddhist monk and teacher who practices mindfulness. I am not trying to push him on anyone, just saying that his teachings seem non-religious to me, like simple common sense, and they help with depression, difficult life situations, etc. Also, practicing meditation is a great help. Even if it's just 5 min a day it helps. The trick is to keep it regular, daily. As you spend much of your time driving, maybe you could listen to some of his audio recordings? (Obviously, I am not suggesting meditation while driving!=. Mindfulness, yes; meditation, no.)

    Also, as I was thinking of you spending so many hours sitting, I wondered if anyone had ever tried sitting on a large doughnut shaped cushion that would leave space for the genital area and remove the pressure of body weight?

    All the best to you,

    Metta

  • Posted

    OMG !!! This is exactly how I feel , I feel comforted knowing that I am not alone. I am miserable yell at my husband constantly and even if you explain the situation to anyone they have no clue what you are feeling. Not that I want sympathy i just want to feel normal !  Fusing and tearing are the worst part of the disease for me. I am in lazer treatment  I am told i need to be patient from my uro gynecologist. I feel mutilated and helpless. Not understanding this so called disease and how there is no cure.
  • Posted

    I too am relieved that I have found this forum. However my case seems so much more complicated. I have an extreme severe case of LS. Where my Labia is completely fused . Going to an Urogynecologist on the last appt she numbed the Labia and actually split the fused  area open  so  painful . It was so fused it blocked the urethra . Which meant  the emptying of the bladder was never completed which then caused a cyst. This procedure had to be done twice now due to the fact that  the skin keeps on fusing. I am so depressed from this disease.  Going back to the Dr today for a checkup. I also get lazer  treatments called the Mona Lisa which brings blood back to the area because as a cancer survivor i cannot take any hormones. Has anyone else displayed any of these symptoms

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