Infection or Viral?Cold/Flu
Posted , 8 users are following.
Hi guys, I have a question for some of you more experienced Bronchiectasis sufferers, I have been diagnosed over a year or so ago with this condition which has knocked me for six but since am learning to adjust and cope, I just wondered, when you get a cold or virus and you are coughing up more mucus than usual, does this need antibiotic treatment? My G.p recently saw me as I have a cold or flu and said my chest is clear, I am coughing slightly more mucus up than I usually do but it does not appear to have changed colour. I can breathe okay now it's come off and the cold is on the mend, but as a rule of thumb should I be sending samples off?
Previous samples have shown bugs but my G.P says that everyone has bugs in there body so I am just a bit confused as to if my immune can fight them or if I 100 percent need antibiotics whenever something like this happens?
Kind regards
Simon
1 like, 31 replies
dancing_queen simon74257
Posted
My consultant said if I start "feeling" unwell and the symptons last for more than one day, then start taking antibiotics.
broadsword simon74257
Posted
The short answer to your question is, in my case, undoubtedly antibiotics. Others will argue correctly that colds are viruses but that may or may not be a pre-cursor to a bacterial infection of the chest, susceptible to antibiotics. But my main purpose is to recommend azrythromycin not for bug killing per se but because it has a powerful anti inflammatory effect, unique to that drug and not to others in its class. B will always increase mucous if you get a cold and whilst A is not a miracle, it helps enormously. I have a rescue does always on hand, prescribed by my GP. There is much to be said to warding off a cold and it is possible. My recent post on that subject gives the formula of OTC drugs/ vitamins and zinc which achieves better than 50% success. To avoid repeating myself, I suggest a thorough read of this forum.
i hope this helps
pinksnugsy simon74257
Posted
Firstly if you have bugs in yr mucus it's normally a sign of an infection. It actually sometimes doesn't show bugs but you can still have an infection (I was told this but the top consultant at Papworth ) your gp doesn't sound very sympathetic or helpful. I would ask what bugs are in the sample you sent off then look them up on the Internet.
Personally I would change yr GP . The trouble is many gp's don't know much about bronchiectasis so getting referred to a good chest clinic and building up a rapore with them helps. I'm lucky that my gp is now fully aware of bronchiectasis and all it brings an my consultant is always a text message away if I need her. This helps me deal with things so much better.
Hope this helps you Simon. Feel free to message me anytime.
Kind regards
Rachel ☺
sam90709 simon74257
Posted
The rule of thumb is this...
Have you seen a change in the following
Production of mucus
Colour of mucus (clear -> cream -> green -> brown)
Drop in peak flow (more than 10% or so)
General feeling of malaise / tiredness
Worse sensation of breathlessness
Pain in chest
If yes to three of these, especially production and colour and if it has been going on for more than 3 days with no improvement / getting worse then you should give in a sample.
You should then start your emergency antibiotics, of which you should have a stash and which should treat whatever you tend to grow. For instance, I often get haemophilus influenza and moraxella catarhalis which are frequently immune to penicillin, so I have co-amoxiclav.
You can then change your drug depending on the test results.
In general a GP would insist on a week or ten days or more before going for antibiotics, and in general that is the right thing to do. However, with Bx the recommendation by NICE, BTS and everyone else is aggressive early treatment with antibiotics. If you need documentation to show to your GP then I / we can point you in the right way.
Finally it is very important to get vaccinated. Always get the flu vaccine as early in the season as you can. Also you should get Hib vaccine every couple of years.
Good luck!
Sam
sam90709
Posted
Taken every other day it both helps to see off the bugs as well as this marvellous anti inflammatory effect. About,10% of people can't take it due to the side effects, but it might be worth a try.
Those who can take it, swear by it!
elizabeth49611 simon74257
Posted
If we get a cold/flu, we'll end up in the hospital with pnuemonia.
So as soon as you see a change in the color of the mucus, energy level starts to decrease, more congested, see your gp as soon as possible.
Elizabeth
simon74257
Posted
I am doing all I can including trying to stay positive, attending the gym and doing clearence, but I am so fatiuge and tired a lot of the time aswell as bloated which dosn't help at all. My specialist hasn't given me a stash of antibiotics for emergencys so I can't do that, and when I initially started with it, they over treated me with antibiotic which caused me to develop asspirigillus (which was not affecting me apparently) so they left it be as my body wasn't reacting. The specialist simply said he was not suprised I had developed that after a lot of antibiotic which was to kill the bug hamaphelius influenza I think. So after that I kind of stopped doing the samples and have tried to be tuffer about it and only see my G.p when I feel really bad. I guess with a cold your gonna feel bad though, right?
What a complicated condition. The specialist says I have it (mild) if this is mild I would not like to have it severely. My peakflow remains at 500, a drop from 540 I use to get 4 or 5 years ago. I have damage apparently on both of my lungs but not badly. I am just scared the damage will increase. I just wish I had a good care plan. I will follow things up with the specialist asap.
Thanks again guys.
Simon
pinksnugsy simon74257
Posted
elizabeth49611 simon74257
Posted
I understand your situation. I get depressed when I'm not feeling well (which is alot of the time). When I can't do the things I want to do. My husband is healthy and very active. There are times that I feel like I'm holding him back because of the time I spend trying to get by.
Oddly enough, when we go on trips, I get very anious that I'll be sick or will need to go into a hospital, but while on the trip, I do great (still take my meds and use my nebulizer).
I think it has to do with me having too much time thinking about my illness, but when traveling, I don't dwell on it, too busy enjoying the trip.
Joining this chat room has helped, hopefully,you won't feel so alone now.
Elizabeth
sam90709 simon74257
Posted
Well you've got the thin end of it for sure. And I'm very sorry to hear it.
I am surprised that you were massively treated for haemophilus influenza. It's one of my frequent fliers and I know the little bugger well. Often resistant to penicillin but usually sensitive to co-amoxiclav and - as far as I know - always sensitive to the flouro-quinolones like ciprofloxacin or moxifloxicin. A week and it's done.
What bugs to you tend to grow? If you're not sure, ask your doctors receptionist to print them out. Just say it's for your consultant and they'll usually be fine with that.
Getting aspergillosis is a bit of a bind, but steroid inhaler should keep it under control. The relvar should sort you out nicely there.
I have a little sympathy for the doctor - if he can't hear the typical sounds of lower lung infection he may, with some justification, feel that is likely to be a virus. Therefore no antibiotics.
However, the way to be sure is a sputum sample. And you should persist even if the first sample shows nothing. If you're still unwell a few weeks later, do or again . Sputum sample microbiological tests can miss a bug 20% of the time.
Consultant: if you have Bx (by the way 'mild' just refers to the damage they can see in the ct scan, not the frequency of infections or anything else) you need a respiratory consultant who knows what they're doing. There are specialist teams at the Royal Brompton in London, at Papworth in Cambridge (i think Rachel is with them). Where do you live - someone here will know a decent consultant and you can use NHS Choice to go to them.
Also, if you don't mind answering, how old are you? With age and height you can work out what your peak flow should look like and then what is a trigger level for action.
Your point in your last paragraph is the key one - an action plan. We don't get cured, we manage Bx. Hence the barrage of instructions in these responses.
And the primary objective is to break the vicious cycle of infection -> damage -> inflammation -> mucus -> infection. So don't tough it out, get all informed patient on your GP, tell him what for, hand in the samples, take the antibiotics (given the protocol mentioned above), get a specialist consultant.
For information, a good place to start is to Google 'bronchiectasis chest heart stroke Scotland'. Very very good pamphlet. It's the second result at the moment, and is at chss dot org.
Good luck
S
pinksnugsy sam90709
Posted
Yes I'm with Papworth buy was with Brompton prior to that. Both excellent hospitals but my preference is Papworth.
Your spot on saying you need to be on the ball with managing bronchiectasis. As soon as you start to notice any changes its best to start an oral anti biotic because you can cast iron guarantee it will progress on the weekend & no doctors are open. I always got ciprofloxin on hand as my main bug is pseudomonus and it's sensitive to that. I recently had a Ct scan in Papworth, my last one was 2009, an my lungs have only moderately deterioted since then so I'm pleased with that. I think years of running has helped me maintain that.
It's so nice to hear from other people who have this condition there's so much great advice and help!
Rachel
pinksnugsy
Posted
simon74257
Posted
I have just seen my g.p again this morning. She said my chest sounds clear and is convinced i have a virus that my body off fighting off and that it's upper respitory and only lower causes scarring. I will get a sample in also as you have advised so they can take a look. It's so annoying,you go on a good run of no infections a while building your immune back up and then it has to be wiped away with lengthly antibiotics : ( i remain positive though and xmas is iust around the corner so i am hoping to be well by then. Thankyou again for all your great advice.
Much gratitude and respect.
Simon
laura16758 simon74257
Posted
Hi Simon, hope you're well.
I've just stumbled across this as I'm also from Halifax and trying to find a decent specialist. My GP knows absolutely nothing about this condition and the specialist I under in huddersfield has so far being no use. I was only diagnosed early this year after having g pneumonia for 3 months (I'm only 29 with a 3 year old) so desperately wanting to get this managed as a far I have at least 1 bad infection every month yet the damage is apparently only mild. My GP also keeps telling me I'm anxious, well of course I am when it's been so poorly managed. Did you ever come across a decent specialist or return to Leeds? I think I'm going to try get a referral to Dr Peckham.
sam90709 simon74257
Posted
For peak flow you are set the bottom edge of normal given age and height. The normal curve would be at about 600 ish, and anything within 100 of that is considered normal. It's about the same as me. So if you drift down to consistently below 500, say 470 and below, that should be a red flag.
The consultant you're seeing is not a specialist in Bx. That group looks more like a lung cancer specialist group with some general medicine thrown in.
I note however that the Leeds Centre for Respiratory Medicine has a specialist bronchiectasis service headed by Dr Daniel Peckham and Dr Ian Clifton. It is based at Seacroft Hospital. Google for Leeds specialist bronchiectasis service and you'll get to their website.
I don't know anything about them, maybe someone else here does, but it is explicitly set up to provide secondary and tertiary care for bronchiectasis for west Yorkshire, so I would give it a go.
Hope that helps
Sam
simon74257 sam90709
Posted
Thanks again
Sy
sam90709 simon74257
Posted
Check out NHS e-Referral. This is the new system that had replaced Choose and Book (what I erroneously called NHS Choice). But the same system applies - talk to GP, get a referral to the place of your choice.
It looks like the best option to me - I know you'll have to go through your GP, and this may dissuade you. But trust me, seeing a specialist that actually knows about Bx is liberating. Battle the bureaucracy get to the specialist clinic- you won't regret it, I'm sure.
Good luck - let us know how it goes
S
simon74257 sam90709
Posted
I often think, how could a woman ever put up with this if/when I find a relationship as it sounds so nasty, really gets me down, wish there was a cure for this terrible thing. Anyway, I have asked to be referred to Dr Peckham in leeds as he is the bx specialist closest to me. Thanks again for all the sound advice, I am hoping things will get easier and that 2016 Is the year I can resume a more normal life without this dominating my world.
pinksnugsy simon74257
Posted
Just read your last comments. It can sometimes get me down especially when I have a bad run of infections but I think to myself your not going to control me & my life & I'm in control of you! (As in the bronchiectasis ☺) Being as positive as you can be is crucial & this will keep you up beat, somedays your going to feel better than others but if you have a day where your feeling poorly or low try an think that tomorrow will be a better day, that's how I think anyway.
As for worrying that there's mucus left in your lungs just try an do the breathing cycles (I'm guessing you know what that it?) Make sure you have taken your inhalers before hand, also try & do some physio on yourself to loosen the mucus. I got an acapella which I find extremely helpful. (Not sure if you have one if you haven't try & find out where you can get one from when you see your consultant).
I'm sure plenty of people will give you good advice on here but the main one is don't panic as this won't help with your breathing.
Take care
Rachel ☺
simon74257 pinksnugsy
Posted
pinksnugsy simon74257
Posted
Hope this helps
Rach
simon74257 pinksnugsy
Posted
pinksnugsy simon74257
Posted
sam90709 pinksnugsy
Posted
It rather depends on the area you're in and might mean a certain amount of negotiation with doctors etc but would be a good idea to check out in due course. In the meantime, as my consultant put it, an IV treatment is a great way to really clear things out!
I've looked at home IV for me and with the help of a friendly GP, I've worked out how to do it and via whom for my area. The local CF team is apparently totally relaxed about it as a possibility.
Good luck Simon and don't worry, once you get your regime sorted out you will find that you lead a normal life. Might cough and splutter a bit more than most, get a few more infections than most, a bit more tired than you were, but everything is pretty normal.
Have a good one - and early Xmas cheer to you and Rach!
S
pinksnugsy sam90709
Posted