Insomnia and anxiety from ofloxacin

Edited , 4 users are following.

Hi all

has anyone suffered from chronic insomnia and anxiety from this med was prescribed it 2 years ago for a uti infection and been going through hell with my mental health ,from what I have read this stuff should be banned from being prescribed I for one would never take it again wish I had read the patient information leaflet better the list off side effects are horrendous stay well clear off it

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  • Posted

    I never have been that good a sleeper but since being prescribed Cipro/fluoroquinolones I am now a paid up insomniac for the past seven years. I tend to get to sleep fairly easily but waken after 1 1/2 to 2 hours. As I cant get back to sleep again I get up for about 40 minutes until I feel tired again although I do not get back to sleep very quickly and often I get up quite quickly again. I have about three disturbed sleeps like that and usually give up and get up for good. I don't like sleeping pills and when I tried them I still woke up in the same way.

    I take CBD oil and that may make me more relaxed and less angry about not sleeping but it does not help me sleep. The drugs have give me a form of neuropathy and I've had all sorts of scans and consultations.

    There is a group called floxie hope you may find useful and the moderator here set this forum up for those of us affected.

    https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

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  • Posted

    Why does my link that the moderator set up now get cause a problem ?

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  • Edited

    Fluoroquinolones (FQs) affect different people differently with the most well known adverse reaction being Achilles tendon problems - some doctors still believe this is the ONLY problem they cause.

    Central nervous system problems can range from depression, insomnia and anxiety to hallucinations and panic attacks with uncontrollable crying. The FQ affects the body's GABA receptors (which is why it's not recommended to take benzodiazepines whilst on or after FQs) plus the way they affect collagen means they can have an effect on the nerve sheaths - so a double whammy for some people.

    As Derek says, CBD oil is said to work well by many people in the on-line groups. You can buy it on-line or from health food stores and is legal in the UK. There are many different makes and strengths and it is very much trial and error trying to find one that suits you best. It also takes a few days or so to feel any effect so it requires perseverence. Lots of people have said they sleep better when they use it so I hope this might be an answer for you.

    The insomnia and anxiety, while not painful like the crippling physical symptoms many people suffer from, is still very debilitating and disturbing. Hopefully the CBD will help you manage it until it finally leaves you alone. One thing we can be sure of about FQ symptoms is that we never know how long they will last so all I can do is say to stay positive as negative thoughts will only make things worse.

    Which country are you in? Have you ever joined a group? There are many and are good places for asking questions and getting advice.

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    • Posted

      There isn't a specific group for insomnia sufferers if that's what you mean. The link to the forum page that you gave above lists the UK fluoroquinolone group and also a US one. There are many different groups on social media but I don't remember seeing an insomnia group on there - I'll take a look next time I'm logged in!

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    • Posted

      There is a Sleep Problems Forum here.

      What I was looking for were any links to the American doctors you mentioned with an interest in FQ/Cipro problems and treating floxed patients .

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    • Posted

      I don't know of anyone who actually specialises in treating floxed patients except maybe a guy in Germany. There is a doctor in the US who claims to treat floxies (privately) with a stem cell procedure but a). it's very expensive and b). there have been no reports on whether it's effective or not (he says it cured him but he would say that anyway).

      I heard of a young woman who travelled to somewhere in Europe and had stem cell treatment (cost a fortune) and she says it made her worse.

      In essence, I think very few doctors understand what FQs do to you and have no idea how of to approach treating someone. Bearing in mind how different people vary so much in their reactions - from being almost dead from one pill to tolerating many courses - it's no surprise that they haven't a clue.

      There are some alternative and holistic doctors who write books and on the internet, many of whom say the only treatment to repair the mitochondria is through nutrition from food and nutritional supplements. (I could message names and titles or you can look for "repairing mitochondria"). With insomnia in particular I've seen melatonin suggested as well as CBD oil and various relaxation techniques.

      One floxie I know said she gave up expecting to sleep when she went to bed. She listened to audio books on headphones or read etc. and if she dropped off it was a bonus. Her approach meant she was relaxed and not at all anxious about whether she slept or not- and her sleeping improved.

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    • Posted

      There was, but he's an orthopaedic specialist so perhaps not very au fait with insomnia. He does do consultations by phone but gets really busy as he's the only doc in the UK (as far as I know) who's put his head above the parapet and said I believe in all this.

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    • Posted

      Hi Miriam, I dont suppose you could PM me the name of this doctor at all? I'm in the Glasgow area, and I was prescribed ofloxacin for two weeks in April this year, and have some ongoing symptoms that I'm concerned may be due to adverse effects of the ofloxacin.

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