Internal Scar Tissue Is Ruining My Life!

Posted , 48 users are following.

Around 3 or 4 years ago I had my appendix removed as they thought it was inflamed, they inflated my stomach and put a camera through my belly button to see if it was and it actually was not but as a safety precaution they removed it anyway to avoid it happening, the surgery was key hole.

The surgery was a complete botch job so to speak and I was left with an organ infection and trapped air bubbles in my body. Although this caused me problems within the first couple of months it eventually settled down and I was able to start living normally again.

What hasn't improved at all however is the internal scar tissue that I have from where my appendix has been removed, I thought it would go away in time but its just getting in the way of everything I do in day to day life. Standing up and sitting down causes pain, going to the bathroom to pass urine and excrement causes pain, walking causes pain and also so does breathing, another thing that it is effecting is my relationship with my partner as pain that I get in my side when having intercourse is putting me off of doing it all together.

The doctors told me that the scar tissue may have healed and netted itself to my surrounding organs which is why I could be having this pain but its just absolutely ridiculous that I'm expected to just cope with it when it makes the simplest of things hard.

I'll be ringing my doctors within the next few days as they are currently shut so for now I hoped I could get a few answers from anyone who might know how to help, when I go to the doctors will there be anything that they can do with the scarring being internal? If there was anything they could do then I would do it, if there was some kind of surgery to cut away excess scar tissue would that be an option? (That said I know that would probably cause more scarring if such a procedure even exists)

Any help on what routes I could take would be extremely valuable to me and I welcome any help you may have to offer.

Thanks for your time,

Jess.

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  • Posted

    Hello all, wow I have a lot of the same issues and some more. I'm having string pains on my right side from my belly button over. It's been going on for over 3 years now. 2 years ago I went thru appendix removal (which didn't need to) but for a precaution they did it, a week later I had to have an emergency exploratory surgery where they removed a portion of my small intestine and a portion of my bowels. Then a hernia repair, gallery bladder removal along with another hernia repair within 6 months. I'm also being told it's scar tissue and they are not able to give out pain meds. I'm just so frustrated and don't know what to do.

    Thank you for your time

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  • Posted

    You are so right. Going thru same thing with scar tissue in abdomin and groin area after having ovaries removed last year. Do you know if they can use lazar to remove scar tissue and keep it away? Need answers too.
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  • Posted

    JessArt, I hate to hear that someone elses life is being ruined due to adhesions. I was wondering of you found some relief. I was in alot of pain in 2008 when I went to the DR they didnt know what it was. After scans and test they determined it was Adenomyosis and endometriosis. I did not want anymore children. My body has taken a beating in more was than one. I finally decided to get it all out thinking it would be best because my female organs were killing me. I had a radical hysterectomy, my appendix removed, adhesions removed and through all of this my bladder and intestines had attached so the Dr had to surgically seperate them in 2014 in the same surgery . I felt wonderful after 2 months for about a month then the pain in my abdomen returned slowly. Now I wake sometimes in excruciating pain due to my bladder and intestines being togetber again with adhesions. I feel like I have major cramping and I have no female organs. WTH. I too am searching for a cure or atleast some relief. I have to take hormones which isnt too bad but is daily for me because other options are exspensive. I feel like a birden to my kids and husband. I hurt 24/7. There is nothing you can do or take to make it stop. I exercises, take pain meds, use over the counter pain patches and a warmed rice bag all the time, every day! Have you found any thing that helps? Your friemd in pain. CJ
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    • Posted

      CJ - I'm so sorry to hear of your daily pain - it can really affect one's life for sure.   Just wondering if a second surgery is an option to re-separate the organs again ?

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    • Posted

      I'm saving up and possibly going to have anothrr surgery in December or January 2018 to seperate my intestines amd bladder and remove all adhesions. My surgeon said this time he wants to do 2 surgeries. He goes in the first day and does everything and ties up the intestines or bladder so thry can not touch with a few stitches and then in 4 to 6 days goes back in to see if the bladdrr amd intestines are attached or any adhesions are forming, if so he fixes it one more time and then all should be good. He said he likes ro do it this way because it is a better success.

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  • Posted

    Hello All,

    Google Serrapeptase. It is an Enzyme that they are saying eats away at adhesions and scar tissue. My primary care Dr. Wrote it down for me and told me to google it and draw my own conclusion. I had my gall bladder out 4 years ago and have all sorts of chronic abdominal discomfort and pain. When I told the primary care that I was planning to get exploratory surgery to remove adhesions she told me about it. I have 4 weeks until my surgery and have started the Serrapeptase last week. Idk yet if it's helping. Good Luck to you all!

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    • Posted

      How are you doing since writing you last post about using that enzyme for scar tissue? I world love to know about your experience. I had two surgeries for hernia repair in the left inguinal. Started having pain one p post op. Surgeon said that inflammation probably due to some mesh that couldn't be removed from last operation. I believe it's also scar tissue and nerves. Will be doing a nerve block soon for the chronic pain. May try the enzyme by then.

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  • Posted

    Hi all, i had my appendix out 7years ago since then ive complained about pains said felt like i still had it but couldnt obviously anyway last week noticed a big lump right side of belly button, few days ago see its bigger go doc to find out its a hernia that may have been caused from stuffed tissue from having appendix removed and all these years later its just been picked up on so now im waiting for a scan to see how big it is and have to have surgery sad 

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  • Posted

    I would like to thank you Jess for your comments about your scar tissue even though yournpost was over a year i think. Because of what you said I have decided to get involved with this site and not keep all my pain inside and actually reach out about this. i thought I was on my own with this horrible mind numbing pain that is 24/7 ..I know my family is so very b tired of hearing me.. I tried to communicate with them so maybe they could see that the reason ive changed so much is because of my health or in better words why I cannot do the things I used to.. I live in constant pain and agony my body is filled with scar tissue its left me with nothing but misery.. i cant hardly walk i cant relax I cant enjoy ANYTHING!!! Most people dont understand even most doctors or if the doctors do understand they dont have anseers just that my body is absolutely filled with the worst kind of scar tissue there is in one surgeon's words and i quote....you have the worst scar tissue ive ever seen its wicked and looks like fingers with claws !! He even took photos of me on the inside during surgery ...He cut free organs especially my intestines which were completely plastered up against the wall of my abdomen i guess you could say...But by doing so it has caused me even more misery im in serious bad condition ....ive lost 50 pounds I cant hardly eat i vomit so very much im constantly nauseas been 8 years since they took out my scar tissie so now im so sick and in serios pain and my health is failing bad.. Now here the my dilemma if I have it removed again more will grow so I am very very depressed I feel like my life is pretty much over...I also had back surgery and have a titanium cage and screws and the scar tissue is unbearable there as well... My body is completely full of it so what can I do? Most of the time I stay inside my house Its too difficult to do or go anywhere if anyone out there has any advice id sure appreciate it.. This is my very first comment on any site the first time ive spoken out about this ....

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  • Posted

    Hi there, I too have major problems with my scare tissue. I had a retained placenta back in Jan 2012 and have had nothing but problems since. I have had surgery to remove the scare tissue last year, I had a hysterectomy the year before, I've had a tone of scrapings but nothing has worked. I am so much worse. I have seen a few different specialists and am seeing another next week. I will not give up as it is completely ruining my life. I am a Personal Trainer that shares knowledge but unfortunately am unable to be fit myself. I can't have intercorse with my husband without being sure for weeks after. I spend days and sometimes weeks on the couch in pain. I have on average a week of feeling ok a month. If I find out how to cure this horrible issue I will be sure to let you all know. I won't give up until I find a way to get my life back. Please share anything you find out to that may help me. Thanks and will be in contact when I have something else to share. BTW ultrascans after ultrascans never showed my scare tissue. I had an MRI and it was everywhere. When the surgeon removed the scare tissue he explain that there was A LOT to remove and my recovery would be 6 months. It's been about 10 months. Reason I share is if you can't see anything on a scan then try a MRI. Susie

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  • Posted

    Hello Jess and all others, I realize this post is quite old but I also deal with alot of the same pain you've mentioned about scar tissue. As a child I endured many health issues due to premature birth, I was 1 lb and 3 ounces. Had many surguries as an infant, far too many to name but one in particular was a hernia repair that seemed to fix the issue for awhile.

    I'm 22 now and I have frequent groin pain due to internal scar tissue and have been seen by doctors and told that I have no signs of any hernia even though I knew something was still wrong. I met with a urologist a few months back and he told me nothing was abnormal about my groin area and the pain I have is likely from scar tissue, he said it wouldn't do much good to remove it because it would just grow back but its gotten to be excruciating lately.

    Does Ahesion treatment and cold laser therapy really work to remove and ensure the scar tissue won't come back again? Any info would be appreciated! Thank you.

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