Internal tremors especially in my head

Internal vibrations are a serious problem which often seem mysterious, and people suffer dreadfully with it. It comes on without prior signs and can be very disruptive to life and sleep.

I have suffered with it continuously for much of last winter even though I don’t use or drink any stimulants. (In fact, I thought for many months that it must be something external in my apartment building causing it, but no one else felt it.)

A neurologist then diagnosed it as being neurological in origin, with the brain sending out excess electrical signals to my body, and prescribed gabapentin to reduce this.

The gabapentin has helped greatly in dealing with this problem and also quickly restored my ability to sleep. It feels like it saved my life.

So do please see a neurologist if you are suffering with a regular feeling of internal vibrations.

Please post this on your forum, it could help many others who are in great distress.

Get an EMG and speak to your doctor about Gullian Barre or CIDP! This is what I have had for 5 years and it is the chronic version. Nerve conditions are very difficult. I swear. I have been to the ER too many times and since they know, "I'm the sick one", they ALL stop care! Then to let you know why...???....they have NOTHING to care for you. In fact, I live in Texas, a big state, there are only about 10 that DO care for nerve ER situations, at most.

Example, the nerves in stomach quit and I CAN NOT EAT! So, they hydrate me and tell me they are sorry. One time nerves gave my TMJ 'lockjaw'. I broke a tooth. Nothing. They said there was nothing that they could do. My CIDP has given me EVERY nerve condition. I do IVIg weekly, it doesn't stop this. I pray 🙏 🤲 it is only acute Guilian-bare. This happens to me but bc all levels in my back need attention. I've had 20+ surgeries, so I have had quite a few MRI with/without contrast, CTs, xray...these can be very dangerous as well. If it wasn't, you wouldn't have to sign anything. nuclear internal med/tests are not fun either. My vagus nerve was damaged during my very last surgery.

Also, I just turned 41. Now with seizures few and far between but very serious ones. And weird issues I've never even heard of. I had to look at the ceiling to vomit, if I didn't I would scream from head pain like I was getting hit with a bat over and over.... the medics asked about a headache (I have only yelled at about 3 nurses, but have had over 300+, easy). I told them, "This is not a f***ing headache."(I had a jolted muscle reaction with this), I've had headaches, migraines and etc. This was none of these things. Made to throw up at the ceiling? I really thought I was going to die the night before last. But I still have 10 years.

I use to dance, all kinds except exotic, no thank you. Now I have issues using one leg completely. Also, I have Hashimoto's, which I had to ask for my thyroid and it was super bad..well Hashimoto's. I have night terrors and sleep paralysis since we found out. Crazy sh!t.

Try searching for similar cases on vestibular.org, they have a very big forum. Could be a vaccine reaction?

I liberally had all of the symptoms mentioned, and it turned out to be from needing cervical adjustments as well as lower back and arms. The nerves all over have a lot to do with these symptoms. I go once a month now to a chiropractor that doesn't crack, but adjusts you with movement instead. I am not 100% but way better. Since they can't find anything wrong maybe it's an answer for you too. Hope this helps!

Could it be any of the types of neuropathies? Have you checked into it?

Hi,

I have been experiencing the same. I have been getting these awful waves of spasms that start at my bladder and work its way up to my head that triggers the exact same symptoms you describe in my head.

I was diagnosed with idiopathic small fiber neuropathy at the Mayo after years of doctors not being able to figure it out. Just last week I was admitted from the ER after what symptoms presented itself like a stroke from the beginning of the spasm attacks to neurology ICU. Most of my tests came back normal except for the MRI that showed a bunch of foci points indicating either migraines or seizures. The hospitalist and neurologist in charge of my care believe that the small fiber neuropathy is causing autonomic dysfunction/neuropathy that is in turn triggering complex migraines that has similar symptoms to that of a stroke. It has been extremely hard and disabling. From experience prior to my diagnosis from the Mayo I was constantly told it was anxiety or stress. A convenient diagnosis given when doctors are at a loss. No doctor knows your body as well as you do, so never stop advocating for your health. I didn't and I finally got my diagnosis at the Mayo. while there is no cure, but at least there is a direction to help manage the symptoms. It is going to take at least a year to see a neurologist for continued care of this new suspected illness of autonomic dysfunction. Gabapentin and baclofen are my current treatment as well as being referred to pain management to help with the complex migraines. The goal is not a cure but to make me as comfortable and functional as possible. Hoping that at some point an underlying condition will be found.