Invisible Illness Week Day 2 Picture Post

Hi Lisa,

Glad I made someone laugh today.  I wish I could make make myself laugh.  All  I've done today is cry and I'll pay for that tomorrow.

  I feel lonely and depressed.  All my friends have moved, I saw the last one off today.  I've lost all my friends in less than one year.  People move to other cities for work and cheaper housing and one friend died.

They were a huge help to me in practical ways, like taking me out for drives to the park or beach, sometimes shopping when I felt up ito it.  They made me feel like I was still part of  humanity which I desperately need, as I'm housebound.  Now that's all gone.

No visitors anymore.

So I'm glad of this site that I can connect to likeminded people who have the same struggles and know that am not alone.

Thanks Lisa.

Rose

 

I feel for you,I'm lucky I have my family for support but I'm depressed and I have days where I just cry wishing I was well,I'm tearfull now as I managed to potter round to tidy up a bit and now I'm spinning around with dizziness and I'm so tired,I live in Worthing west Sussex but I guess miles away from you?

I live thousands of miles away in NZ.  I did live in England for some years, years ago, before I got sick., when I had a life.  And it was a great life.

I think all of us deal with grief at some level which causes depression.  We haven't just lost our health, we've lost our careers, social life, often family and friends, independence, often the chance of having children and sense of self worth and place in society. We've lost everything.

I describe it as being sent to prison for a crime you didn't commit except you don't know how long the sentence is.

You know, I used to read alot books about WW2 escapes from POW camps and how people survived terrible condtions, often the whole duration of WW2 and even longer. I used to think that if they can survive that, then so can I.

Those stories really inspire me, the strength of the human spirit under such hardship and suffering.  Unfortunately, I'm too exhausted to read much now.

But...tomorrow is another day.  The sun will shine, the birds will sing and who knows, the sun might shine on us too...just a little bit

 

That is far away from me,I know there are people far worse off than me but its like a living nightmare for me,I'm down and fed up,I have a 13 year old and 3 yr old and I manage to go to my mums with a lift everyday as my bf works I just lay on the sofa watching them play wanting to join in,it hurts I'm too tired and dizzy to join in,if it was just tiredness it wouldn't be that bad but been dizzy all the time scares the life out of me

It's funny, people have said to me things like, "there are people worse of than you, you know", if that somehow is supposed to make me feel better.  It never does.

  Because when you're sick, when you can hardly breathe, when  you can't feed yourself because you too exhausted, you have tunnel vision...you must focus on surviving the here and now... not thinking about children in Bangladesh!  So don't feel quilty.

I get faint more than dizzy and that's awful.  But I did feel dizzy the other day and  that scared me too so I know how you feel.  I don't know what causes that.

I really feel for you too with your children.  That's exhausting just being around them, they drain your energy.Then you can't  do all the normal things you want to do with them and for them.

 

Someone just sent me this.  It's was perfect timing.  I really needed this today.  Hope this cheers you up.

My favourite is when people say you don't look ill and your walking around so you must be better,I have to go wash,Lou and do few things etc,I have to get my mum to help me or 13 yr old daughter to help its so frustrating I can't be helping them out like I should be. I feel sorry for people who are worse off but when your ill yourself you feel its the worst thing ever ,I had balance issues when I gave birth to my first born when I was 19 ,in hospital for 3 days and was treated with antibiotics and after two weeks was OK part from lightheadedness that never went but I still had a normal life until last Monday when I was bed bound,but dizziness and tiredness issues for 5months now

Lol yes I'm laughing and smiling, thank you. :-) I love animals so the funny pictures always make me laugh

Thanks Lisa for maing me lauh - one of my favourite sayings -' you dont look ill'

Mind yo we rarely look ill in our family - even days before my Mum died she was still looking 'well'    how deceptive looks can be!!!

Thank you -

Im only 32 so I try my hardest to wear make up everyday,straighten hair etc just so I don't look ill ,obviously works lol.under my make up my mum says I look quite grey in the face which is worrying, just done my leg stretches as I don't want to gain weight as might add to my health issues how are you today?

Hi Lisa

Caugh between whats chronic and whats acute about this body at the moment!!      Certainly cute!

Do you realise how good you are - you put on makeup to make yourself look better - people say you dont look ill.......you're worked your magic!  But it doesnt necessarily help although if yuo had lots of peo9pole saying you looked ill you might feel even worse!

Stretches are good - will help to keep you supple - my body soo easily stiffens up when I stop excercising - even if I only do a little

Iam trying to stay strong for my family but inside I'm a mess I just want the dizziness to go away its ruining my life,I work at a care home and love my job and money but at the moment I can't work and scares me as I've always been independent,the tiredness is a little bonus for me lol. Where are you from?I'm in Worthing west Sussex uk

Oh Rose; am so sorry that this is how you are spending your days......I know that I could not exist if no-one around (even if it is only a txt/phone call), but if you would like some outside news, will gladly tell you re my week this week .....from across the waters.

​As some may know, my husband who works as a Bridge Builder (carpenter formsetter), decided ...by accident of course....to chew up his L) forearm with an Electric Drill, while at work on the 16th September....had surgery that night to try and fix same......the old skin did not re-take, so last night had more surgery to re-clean wound (known as Debridement), and staying in hospital until at least Saturday....on Friday he goes back to theatre for a Skin Graft......this is where his Real Hell will start, as this man Can Not sit still.....it will be a major job trying to keep him calm (let alone me).....so you keep sending me/us your pics, and I'll use them to keep he and I from not going mad......................Bron

another from me Rose, after having read the above re NZ....there was a lady by the name of Deb who was on forum, she is from NZ, and goes between the north and south I think she really lives on the South Island, but goes up to the north to visit family and drs???..........maybe if you can find earlier inputs from this forum, you may find her.....she is very friendly and would be a support................I live in Brisbane,QLD and there are others over here in Aussie (Christine lives in Tassie).............keep in touch (even via Private Message if you want??)...........B

Hi Bron, I would be delighted to hear the news from across the ditch   and to know that more people might be cheered up from my posts is really special.  Thank you.

I might get a sort of life after all...sort of a cyber space life

 

I've looked for Deb but couldn't find her.  I will keep a lookout though so thank you for telling me that.

Great to meet some ANZAC's on this forum  Yes, I will definately keep in touch and thank you for the invite.

My pic today is waiting for the moderator.  Don't know why..haven;t had this problem before.

Rose