Is anyone in the world still taking Dosulepin??
Posted , 75 users are following.
HI,
I was wondering if anyone can help me here? I have been taking the tricyclic antidepressant dosulepin for the past 12 years. Last year I started reading stuff on the internet about it causing heart problems for people and that it wasn't being prescribed anymore. My doctor had never mentioned this to me. But I was worried so I went to my doctor to ask if I should change to another newer pill. She said she thought it was a good idea and switched me onto mirtazapine. To cut a long story short my anxiety and depression rocketed and I thought I was going to die so after a month I had no choice but to go back on dosulepin again. I had deteriorated so much that it literally took 4 months before I started to feel in any way well again.
Anyway I have now been back on dosulepin for 5 months and I know that I will have to take it for the rest of my life as it is the only drug that can help me. But I am starting to worry about the fact that NOONE seems to be prescribed it nowadays and everything on the internet seems to relate to how dangerous it is. I am frightened that I am on a drug that might give me a heart attack.
The doctor says I can have an EGC to check my heart but even if it comes back ok I think I will still worry about the fact that I have to take it daily for ever.
Please is there anyone on here that Is on dosulepin or another of the tricyclic's and if so do you have any information on the associated heart risks?
Thank you
Lisa
6 likes, 196 replies
Kelleysmum Lisa362
Posted
Luckily I have an appointment next week with my GP so I can discuss it with her. You would think the doctors would know if a particular medicine was being discontinued, your question as to 'is anyone else in the world taking it' is yes and yes, my husband has been taking it for over 12 years successfully for migraine, again no side effects.
I am really worried now as I don't see how you can suddenly go from one type to another. I once was given Prozac, it was horrendous, I only took about a weeks worth, I can't describe how I felt.
So you are not alone, but that's not much consolation to either of us.
G
Lisa362 Kelleysmum
Posted
I'm really sorry that it has taken me so long to reply to this. I didn't know that I had another reply until now as karmaqueen replied today.
Anyway thats not important. I'm really anxious to know what your doctor said to you when you went to your appointment the following week? As just last week the exact same thing happened to me. I went to pick up my repeat prescription and i was told that there was manufacturing problem with the 75mg tablets I didn't get too worked up about it because i was told that there was no problem with the 25 mg capsules so i could take 6 of them instead. i'm worried that if they are stopping the 75mg then they might stop the 25mg too.
I like yourself have been on dosulepin for a long time (13 years) and i know it is the only pill for me. When i tried mirtazipine i thought i was going to die i felt so bad.
Please reply and let me know what your doctor said. i am going to ask a chemist tomorrow if they are aware of any problems with the production and i have looked on the internet and there is no talk of it being taken off the market.
Anyway i really hope that you are okay - and your husband too.
take care,
lisax
Kelleysmum Lisa362
Posted
I am actually going to see my mum's GP with her today, same practice as mine, and I am going to ask if there has been any change on the Dosulepin situation. I have had no trouble getting them in 25s so far but I have to take 5 at a time and I am hopeless at swallowing meds so it is very time consuming!
I have read through the rest of your conversation, so far as I know there is no chance of them being withdrawn completely but my GP wasn't at all forthcoming about why the 75s have been taken off prescription.
This morning I have been doing a bit of Googling and found this site _______
This suggests you can still get them, going to take a copy of the page to the GP as well.
I also have a very limited supply of diazepam for sleeping but this past 2 weeks have been horrendous one way or another so I am going to have to 'beg' for more. I only get the 2mg ones but often have to take 2 or 3 for any effect.
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Kelleysmum
Posted
I am going back in three weeks, although I am scared about reducing, now I know Dosulepin is being withdrawn I am going to try to cut down. I have the option of increasing propranolol as I take less than the dose I was originally prescribed.
(Admin sorry I didn't know the link wasn't allowed but to be honest I think it will be useless anyway, the 75mg aren't available anywhere now I don't think.). I was a bit disappointed though that I seemed to be more clued up on why Dosulepin was being withdrawn that the GP.
Lisa362 Kelleysmum
Posted
Its lisa here. This has happened to afew people over the past few months but everyone i ask tells me that dosulepin isnt being withdrawn and i have no trouble obtaining the 75 mg capsules from chemist.
I live in scotland so i dont know if that is why. I cant understand also why there is no information on the internet about it being withdrawn surely there would be some sort of documents about this.
I am going to go into my chemist yet again tomorrow and ask if they are aware of anything but they always tell me that there is no problem with the supply of it.
Anyway i am really sorry that you have had to reduce it and i hope you have no problems but as long as i can get a hold of it i am going to keep taking it until told otherwise
take care lisa
Kelleysmum Lisa362
Posted
As a ps last week when I took my prescription to Boots, they only had one packet in stock! Had to go back for the rest the next day. My husband has to get his next week so he will ask the pharmacist if there is a problem. Our Boots regularly has short supplies of everything though!
Take care. H
antony14229 Kelleysmum
Posted
I have heard similar regarding the use of Dosulpen. I tried a couple of other drugs but none worked. Ended up going back to Dosulpen. Works well for me. Do occasionally get random heart beats but never passed out or felt like passing out. I would rather a dodgy heart than the shear anguish of my untreated condition.
Tony
gillian81509 antony14229
Posted
brilliant medication BUT DID CAUSE MY HEART TO BECOME WEAK. And with atrial fibrillation
they then took me off But the after affects the anxiety etc I've still got
I believe it has a long term mental health effect and leaves you in a mess
6months after a huge instant withdrawal I took my first overdose and now later am still suffering huge deep holes
I was on it for many years I felt good it regulated my sleep etc but I'm paying for it now
Antony get those flutters checked today
catherine20935 antony14229
Posted
ann55375 Lisa362
Posted
nicolas95358 antony14229
Posted
Could you please say me how long it took Dosulepin to work?
Thanks for your help
lesley99052 nicolas95358
Posted
susan17872 nicolas95358
Posted
It took. exactly 3 weeks to take away all my anxieties, depression and panics. I have been taking dothiepin for 19 years and take jjust 75mg a day now and wouldn't cope without it.
nicolas95358 antony14229
Posted
Why did you take Dosulpen? Did it take a long time to work?
nicolas95358 catherine20935
Posted
Why did you take Prothiaden?
alouise62 Lisa362
Posted
There doesn't seem to be an issue with supply in Australia.??