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Is constant tingling in hands & feet a symptom of Raynauds?

Posted , 14 users are following.

kirsty72893
kirsty72893

I've had constant tingling and pins and needles in my hands and feet for several months, maybe as long as 6 months.  At first my GP thought it was caused by a vitamin B12 deficiency, but the blood test showed it isn't this.

As the weather turned colder I noticed that, when I get cold, my fingers turn white with blue tinges and are very painful.  When I warm them up again they go red and blotchy and the tingling increases.  

My GP has now said that I have Raynauds and this is what is causing the constant tingling.  I agree that my recent symptoms when cold sound like Raynauds, but I'm not sure about the tingling in my hands and feet that started long before the pain and whiteness.

Does anyone else have constant tingling or is it just when your hands are warming up again? 

0 likes, 33 replies

33 Replies

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  • Jan999
    Jan999 kirsty72893

    Posted

    I have raynauds but don't have the tingling that you describe, just colour changes and the dreaded chilblains.
  • jenny
    jenny kirsty72893

    Posted

    No I don't, just the changing colour and the numbness followed by pain as the circulation comes back to normal.Good luck with this.

  • adrihay
    adrihay kirsty72893

    Posted

    I was diagnoised 6 years ago.  Dr runned tests for Rheumatoid arthritis aND Lupus and they all ame back negative. I don't suffer from any tingling or pain. I just loose any kind of circulation to most of my fingers at the minimun expose to the cold.
    • jenny
      jenny adrihay

      Posted

      Same here. I have been admitted to hospital four times for a flolan infusion, but gives you dreadful headaches

       

  • kirsty72893
    kirsty72893

    Posted

    Hmmm, I will wait and see if more people reply, but the constant tingling looks like it is probably caused by something else then.

    thank you for replying smile

    • Jan999
      Jan999 kirsty72893

      Posted

      Yes kirsty I would mention it to your GP. You may need further tests. Better to be safe than sorry however everyone is different and respond to illness and syndromes differently so wouldn't worry.
  • flowergirl15
    flowergirl15 kirsty72893

    Posted

    Hi Kirsty, Have you found out whether this is due to raynauds? i also have tingling in feet, which is worse at night and in the morning. Also, worse after a bath.
    • kirsty72893
      kirsty72893 flowergirl15

      Posted

      A different GP felt it warranted further investigation.  He thinks it is "probably fibromyalgia" but has referred me to neurology to rule out MS.  The neurology waiting list is about 8 months long but I should get seen some time this year!
    • michelle19
      michelle19 kirsty72893

      Posted

      Hi Hun fibro comes with lots of problems believe me,all these symptoms can be due to fibro,I've been having tests for 2 years now for one thing or another,it's been and still is horrendous,I've also got a disc out in c4 c5 which is pressing on my spinal cord,this is making my anxiety 100 times worse,just waiting now to see a neuro surgeon,my life has changed so much I don't want to be here at times,I've been put on 2mg of diazepam two weeks ago and they are helping me so much with the anxiety,when your worried and stressed you tense up which causes pressure on the nerves and the brain goes hay wire sending signals all over the body,my hands and feet feel like I've been sat on them all night and it's a horrible feeling,hang on in there it will get better,just get something for the anxiety because it causes so many problems that you wouldn't normally have.big hugs x

  • flowergirl15
    flowergirl15 kirsty72893

    Posted

    Thanks for your reply Kirsty. I kept telling my GP that I thought it was something else as well as Raynuads. I thought it could be something called Peripheral neuropathy so he evenually sent me to have nerve conduction tests. I was convinced they would show something as tingling all the time but they didn't show anything. The neurologist doing the tests did say that my toes and feet were freezing and didn't look good-no colour. He said he thinks that it is a circulatory problem and will write to GP to refer me to a rhemotologist. I told him my GP said it's Raynauds and he said it could be or it could be another circulation condition. Anyway, my GP didn't refer me, despite me seeing the letter on the screen advising him to do so. He said that it is Raynauds and they wouldn't do anything apart from offer me Nifedipine as he has done. I wouldn't take it though as already have low blood pressure and have 2 young children to look after. Oh, also at the beginning, the GP said Fibromyalgia but when I saw another GP he prodded lots of different points of my body (none of them hurt) so he said deinitely not as no tender points. I have now been referred to ME/CFS clinic. Please let me know how you get on. I've kind of got used to this tingling but I know it's not right. 
    • kirsty72893
      kirsty72893 flowergirl15

      Posted

      Did you ever get the referral flower girl? I had the nerves conduction tests done as well and they were normal.  It's so annoying when GPs think they know better than the consultants.  My eye Dr requested an MRI in 2014 but the GP decided I didn't need it.  
  • listentochuck
    listentochuck kirsty72893

    Posted

    Hi Kirsty and all: I don't have "constant" tingling, but at least 50-60% of the time and a good GP that retired had previously diagnosed me with Raynauds. Since that time, a year ago Nov., I started getting light headed, dizzy, burning/tingling in feet and hands, loss of appetite, blurry vision (on and off), weight loss, muscle spasms and weakness and "major" fatigue along with misc. other symptoms. I'm not over-weight and not diabetic. I started searching the internet, which was my worst mistake. Thought for sure I was developing MS or even worse, ALS. One doc told me I had a noro-virus. I sought another doc's opinion. And ultimately a 3rd. The 3rd doc suspected anxiety and ran a battery of tests including MRI with and without contrast, I think maybe more to passify me, since all of these symptoms were snow balling my anxiety and depression. MRI came out normal. Noting to indicate serious neurologic issues. He's since prescribed Zoloft, which has stopped the anxiety attacks. However, I still exhibit symptoms. That's just living with anxiety. If you look up anxiety symptoms, you will be amazed how it can mimic dozens of serious neuro diseases. My brain still sometimes thinks the worst. But that's part of the anxiety too. My point with all of this is, you may be dealing with anxiety also. Although if you search the Web, you will see that burning & tingling can happen with Raynauds also. I can't take fish oil, as I have high cholesterol. But Omega 3's like fish oil and flaxseed oil will help with the tingling. Oh and I actually do have Raynauds also.  My fingers and toes look like they're dead when they get cold. Again, fish oil and Co-Q10 liquid form. Red wine is good too )) Don't worry.  It only stirs up anxiety. You'd know it if you had MS. Many more obvious symptoms with that. Like Hulk Hogan used to say; Say your prayers, eat your vitamins, exercise and hang tough!
    • lisa613
      lisa613 listentochuck

      Posted

      Has anyone had a lump in the throat feeling? It won't go away after this all started- just went to the rheumologist Thursday lots of blood work- it's just gotten colder here & if I stand too long on the tile it stings- I've been taking fish oil, using essential oils in bath, started making bone broth, nettle tea, organic detox tea, I was prescribed so many antibiotics after I had my root canal, the dr said I'm going to check you immunnity- since I've had tons mucus- sinus issues- jaw pain seeing to get a mouth guard for TMJ after this root canal and filling replaced- I swear the dentists think I'm crazy! I'm begging them to just file my tooth down to fit right!! It clicks! But could it be inflamed? Since my bloodwork shows inflammation? So we'll see!

      Does yours sting only during cold weather? I'm having eye twitches- I have had 3 panic attacks in the last 2 months- that diet pill was dangerous! That's when this all started 2 months wasn't worth how I feel- if this is the cause? Or an underlining condition that just surfaced now?

    • Wrencoldtoes
      Wrencoldtoes listentochuck

      Posted

      My partner has MS and it's amazing how many of our symptoms (I have JHS) are similar (minus the Reynauds) the fatigue is one of the hardest things to live with.
    • kirsty72893
      kirsty72893 lisa613

      Posted

      It definitely sounds like you have more than just raynauds Lisa.  I hope you find out what it is soon.
    • listentochuck
      listentochuck lisa613

      Posted

      Hi Lisa, as I'd mentioned to Kirsty in my previous reply, it sounds to me that your symptoms are likely stemming from anxiety as well. This site doesn't allow links to be posted. But if you search the web for "anxiety symptoms" or "Generalized Anxiety Disorder" symptoms, you will see how they can manifest themselves into dozens of symptoms, which can mimic serious diseases and disorders. The good news is, the symptoms and anxiety can be controlled. The first step is to recognize that's all it is. Then get some help from a "good" General Doc and a good therapist who deals with anxiety disorders.
    • lisa613
      lisa613 listentochuck

      Posted

      I had so many things going on! I know that diet pill was causing huge amounts of anxiety! Almost a week and a half off of it!!! It was horrible how much anxiety I had! I got a toothache one week after I was on & needed a root canal! I was absolutely out of control stressed when visiting my sister in law & his family at Christmas out of state-

      Dental work, root canal, top tooth needed cap but he fixed it with filing! So happy no cap but I swear my bite is so off! I went to two more dentist to get a second opion & they looked at me like get a mouth guard to stop grinding!

      The immune specialist said I have inflammation can stress cause inflammation in your blood antibodies? My feet are still tingling on cold days- and saw a touch of purple on my feet when taking a bath-

      I feel a lot better like a weight off my chest that I had the 3D X-ray from the root canal specialist that it was done right & that it may hurt still maybe due to infection- but my rheumatist said she will test my blood for my immune system- all my life! It takes me way longer to heal! 4 months for my knee surgery, 6 or more weeks for all my wisdom teeth, 3 weeks for tonsils- this sinus infection has gone on since November! And now my throat feels like I have something in there! He said it might take 2 months to heal if it's what he thinks globos larigirtis- ugh! And the burning in my mouth which I now stress brings that out more! I will see the facial Pain-specialist Friday since my daughter was sick last week! If he can say your bite is ok! I just know that it feels off! Since I had work done on top & bottom it's a jolt of pain when I bite it hits all left teeth! I don't know so frustrating! I'll look up stress!! I know when I go to bed I take a tyneol pm- and when waking up I feel great! So if I grind my teeth all night hmm don't you think they would really hurt? Or maybe the tyneol is hiding that? But you would think I would be in pain when waking? I feel relaxed great! No lump in throat! Ugh----

      Feel better everyone!

    • lisa613
      lisa613 kirsty72893

      Posted

      I just hope the rheumologist calls &Stella me what my bloodwork says- it as Thursday but it says I have a week to wait with most bloodwork!

      I'm so happy my husband is taking the family to Florida Harry Potter here we come! He was so worried that I had this type of winter! Plus a kidney stone lingering since my last urologist apt ultrasound!

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