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Is constant tingling in hands & feet a symptom of Raynauds?

Posted , 14 users are following.

kirsty72893
kirsty72893

I've had constant tingling and pins and needles in my hands and feet for several months, maybe as long as 6 months.  At first my GP thought it was caused by a vitamin B12 deficiency, but the blood test showed it isn't this.

As the weather turned colder I noticed that, when I get cold, my fingers turn white with blue tinges and are very painful.  When I warm them up again they go red and blotchy and the tingling increases.  

My GP has now said that I have Raynauds and this is what is causing the constant tingling.  I agree that my recent symptoms when cold sound like Raynauds, but I'm not sure about the tingling in my hands and feet that started long before the pain and whiteness.

Does anyone else have constant tingling or is it just when your hands are warming up again? 

0 likes, 33 replies

33 Replies

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  • Wrencoldtoes
    Wrencoldtoes kirsty72893

    Posted

    I get pins and needles in both hands and feet. I thought it was bad circulation but the docs tell me my pulses in both arms and legs are strong. I have secondary Reynauds so the symptoms may differ from primary (please correct me if I'm wrong as I'm newly diagnosed) it's a horrible condition.
  • kirsty72893
    kirsty72893

    Posted

    I finally saw the neurologist, he referred me for nerve conduction tests (large fibre were normal I haven't had the small fibre tests yet) and an MRI.  I haven't had the MRI results yet but I'm pretty sure I don't have MS, my GP said it needed ruling out, not that he thought I had it.

    I now the raynauds diagnosis is accurate but I also know it doesn't account for all,of my symptoms, there is something else going on as well.

    • listentochuck
      listentochuck kirsty72893

      Posted

      Hi again Kirsty, please don't rule out anxiety as a potential cause.  My doc said some of his most chronic and sick patients are anxiety sufferers. I have Raynauds, but I also have anxiety. Through some of the techniques my therapist taught me, with focus, I can actully bring all of them down.  Especially when my brain allows me to realize it's "just anxiety".  There are millions of sufferers, many of which have "real symptoms". The bummer is, they are all created in our minds. But this can be controlled and fixed also.  I can absolutely testify, that when I am dwelling on how bad I feel, it all gets way worse, including the tingling and burning feet and hands. They all subside when I get myself grounded again.  It's a work in progress.  If you haven't discussed the possibility of anxiety with your doctor, I would suggest you do so. Best of luck to you!!
    • kirsty72893
      kirsty72893 listentochuck

      Posted

      I am 100% ruling out anxiety as a CAUSE of my symptoms.  Anxiety may be a SYMPTOM for the majority of people who have long term health conditions but it is just that - another symptom.  As you say there are many tools we can use to break the symptom cycle, medication should be reserved for severe cases or those where there isn't another underlying health condition.  

      Many people with a long term health condition struggle to get a diagnosis initially, some doctors have a bad habit of handing out anti depressants and thinking that will fix everything it can take years of fighting to get referred to the specialists and get the correct tests and diagnosis.  

      Your symptoms might be caused by anxiety but that doesn't mean that everyone who posts with similar symptoms has anxiety.  As you have said, anxiety MIMICS many other illnesses, that means those illnesses really need to be considered by medics.  

    • listentochuck
      listentochuck kirsty72893

      Posted

      Again, all true Kirsty.  Medical science unfortunately is a work in progress.  The human body is a complex yet sometimes fragile machine.  Wishing you the very best on your diagnosis and outcome!  Please keep us posted on your progress!
    • joanne74105
      joanne74105 kirsty72893

      Posted

      I have been told I have Raynauds in my feet. They tingle all of the time. Worse at night. My feet get purple blotchy and my toes get cold. Then they go red blotchy and the tingling gets worse but they warm up at this point. The tingling never goes away. I have been tested for everything imaginable. My doc recently put me on calcium channel blockers - they are supposed to help with Raynauds. I started them about a week ago so I will let you know if they work!
  • Wrencoldtoes
    Wrencoldtoes kirsty72893

    Posted

    Anxiety can most definatly create utter havoc within the body and symptoms can bizarre but in my case I'm really not a worrier and can manage stress very well. My symptoms are similar to Kirsty's and is a known Reynauds symptom. So I would suggest that if you have the main Reynauds listed symptoms ie; extreme response to changes of temperature particularly with hand, toes and maybe as in my case nose and ears too, chilblains, white/blue fingers when cold and possibly pain then I would suggest it is Reynauds. If it's just the pins and needles then perhaps consider anxiety, but generally that presents with other things too.
  • listentochuck
    listentochuck kirsty72893

    Posted

    All true.  And anxiety is just one possibility.  And it can literally make you so sick with symptoms that you think you're going crazy or dying.  Kirsty, hoping your docs get to the bottom of what's going on.  Hang in there!
    • lisa613
      lisa613 listentochuck

      Posted

      I know I seriously was having panic attacks saying I'm ok! Whew! Your mind is very powerful!
    • listentochuck
      listentochuck lisa613

      Posted

      Yes it is!  That's exactly what my doctor said.  Good luck Lisa with your follow ups!  Enjoy that trip.  Watch your diet and keep exercising, even when you don't feel like it! wink
  • Dels
    Dels kirsty72893

    Posted

    Yes I have constant pins and needles in my hands and feet, but in the nights I wake up with just numbness and have to try and rub my hands to get circulation back! My Drs gave me a brain scan and nerve tests but thankfully both ok! Only thing that helped was nefedine tablets they got rid of my pins and needles and numbness but after 3 months I developed a reaction of painful swollen ankles and pain in joints! Now I have had to come off tablets and am back to sq one!
  • ava89810
    ava89810 kirsty72893

    Posted

    I'm not a health professional, but I have been diagnosed with reynauds ever since I was super young. My reynauds gets pretty bad that even when I am holding a glass of iced water, the cold triggers my hands. I often get pins and needles in my feet, I remember this when I was younger too. Thought this might help you.

  • sarah_71611
    sarah_71611 kirsty72893

    Posted

    Hi Kirsty I have Raynaud's and I also get tingling in my feet long before my fingers go white it's so annoying

  • sarah_71611
    sarah_71611 kirsty72893

    Posted

    Hi Kirsty I have Raynaud's and I also get tingling in my feet long before my fingers go white it's so annoying

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