Is everyone cured?!

Ho Piper.

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you can give julie a first hand recommendation in ( is it 8 days time) for the hydrodilatation of the joint. its a W9030 procedure ( hospital code )

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burst the scared joint with saline. had my first one 5 months into my first freeze. 19th july 2019 had it done. came out doing over head claps.

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so cool.

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to be ratified by piper

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c

hi julie again

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for this horrible horrible thing to get. its a hard personal thing to get.

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as you said pain relief just takes the edge off the ache. be mentally prepared for a long civil war against your shoulder.

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as you have probably read on these posts we are and still are suffering. sometimes it gets dark and you cannot see the light at the end of the tunnel.

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you can and you will beat it. you just have to stay strong. even at 3am and you have had no sleep or let up .

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thats what this site is for. ideas and support for each other.

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colin

Hi Julie, I am maybe only a month or 2 ahead of you and still in stage 1= constant pain & woeful ROM.i have had 2 steroid injections with a shoulder consultant but unfortunately they didn't work for me (but they do for lots of people) so I am going for hydrodilation in a few weeks & am hopeful that it will give me some relief as others rate it very highly.

I hear ya loud and clear I'm completely exhausted too getting woeful sleep, all the stronger pain meds my doctor prescribed disagreed with me so I only have paracetamol & ibuprofen which don't do much for me (I'm allergic to codeine, tramadol etc)

keep in touch on here and read previous posts,lots of good tips from

yes Colin I am hoping that I will be able to give a glowing review of hydrodilation very soon, aptmt on 22nd July

lol i had the 23 rd in me diary

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c

dont forget piper

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the Radiographer takes constant pictures throughout the procedure it is your right as I did to ask for a copy on a DVD of the images of your shoulder and how it went keep it for your record personally in case you have to have something else done it’s for reference .

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colin

hi piper

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i forgot to mention . the injury note has been carried till sept 4th.

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the repair is to fragile to resume work. told Michelle on the other platform.

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work just dont care. i offered to go back in the office and was promptly told to stay at home.

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killing the sun tan and hot tub rehab lol

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c

that's a good tip Colin Thanks for that.i was thinking of also getting someone to film me pre injection showing ROM before & after & hopefully I'll see huge improvement.🤞🙏

glad that your work are being understanding and not putting any pressure on you to hurry back.Enjoy your summer off, you will have some tan 😁

yes do film your range before and you can compare video snips.

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if you see it it may give you that rah its much needed.

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c

Hi P

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if i can give one piece of information that helps some one . something i have learnt along the way. i am happy

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c

you definitely do that Colin, you are a wealth of knowledge on FS.....although I bet you wish you didn't have to know anything about it!

mmmmm its all consuming.

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ask someone to walk a mile in our shoes and they would cry their eyes out .

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worst one is my boss, during all this time with me . he would turn up wave his arm around and say the most stupid thing.

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..........yer i have a bit of frozen shoulder today.........

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or him again he has had FS 4 times on the same shoulder.

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can you go and punch his lights out for me " with ya good shoulder" lol.

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it does consume you thinking of ways to be pain free. i sit there of a night googling medical FS from doctors

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yes a very sad life lol

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c

Well we have all benefited from your late night Googling.

your boss sounds like a twit!- jokes about FS are just not funny.

good luck for tomorrow piper.

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what time is the hydrodilatation. don't forget to relax and it really don't hurt.

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let us know and do video it and ask for a dvd copy for your record

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colin

Pipers appointment is on the 22nd Colin.

You've been having too much prosecco 😆

lol days are blurring into each other lol.

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like being retired.

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good luck for friday lol ( heat stroke ). and where was we today. up London. what a bake house

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c

you pair are gas.....you have both never even met me and remember my procedure is this week....whereas I don't even think its on my families radar that its this week!!

Thanks both for thinking of me 😀

piper

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they dont understand the importance of the injection verses the ache. not saying i am willing the 22nd to arrive .

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hey if i was doing it today is the 22nd in me head lol

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c

we're on this journey with you Piper. Moral support is so important. spouses and family can be sympathetic but they just don't understand how consuming the whole experience is.

The pain is unrelenting, the lack of sleep, the compromised ROM, the frustration of not being able to do things like you used to. The waiting for Dr's and hospital appointments. It truly sucks, so if me or Colin can chime in now and again and see how you're doing and give you hope, then I'm all in 💟

Thanks for your lovely message 🥰

I truly appreciate both of you checking in- we are the FS posse!!

GOOD LUCK WITH THE HYDRODILATATION TOMORROW. KEEP US UPDATED HOW IT HAS GONE AND DO T FORGET BEFORE AND AFTER VIDEO TO COMPARE.

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that caught your attn piper. stay calm it don't hurt. its a weird feeling as the joint grows and you cam feel the popping of the scare tissue as it breaks up

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one half of the supporting posse.

michelle did i get it right this time lol. not to early this time 

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colin

Good work Colin!

We will be thinking of you tomorrow Piper, what time is your appointment?

Thanks you pair ☺ my appointment is at 9.40 but they said be there 20 minutes beforehand and that the procedure takes about 20 minutes and that I need to stay a further 15 minutes after procedure just to make sure all ok. I'll let you know how I get on.i did "the before" video a couple of days ago so I'm looking forward to seeing a difference in the after video 🤞🤞🙏🙏

todays the day

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good luck 

Morning comrades.

Piper by the time you pick up this message I have everything crossed that your suffering is finally coming to an end 🙏

Just home, my arm is like a dead weight from the local anesthetic, should wear off later. It was slightly uncomfortable when he was injecting the saline but bearable. I got to watch it on the screen which was interesting.

I don't know how you did an over head hand clap after yours Colin.....my arm is completely dead from the local you must be immune to anaesthetic!!

thanks again to both of you for your positive wishes 😊

well done piper seems you had the full works it must help you

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yes its a strange feeling when they fill the capsule. your shoulder seems to grow lol .

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no house work or cooking for 7 days lol.

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colin

hows the arm today Piper?

Are you going to come & do my cooking & cleaning for me Colin?!!

Hey, no improvement as yet.....but I think that there is still time to see results 🤞🙏

ha ha

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been a house husband past few months lol.

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did it go well. was it a 4 stage injection

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1 dye

2 anaesthetic

3 steroid

4 kahooner of a saline fill

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sorry forgot that first jab to kill the joint is a wowzer of a jab lol.

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was not going to let on about that. i was swinging from the rafters post jab.

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how did it feel filling the saline into the capsule. weird and wrong

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ho yes washing me hair this week cant help ya 

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colin from the posse

no dye but yes to the other three. I could feel a fair amount of pressure when he was putting the saline in, he said for me to tell him when to stop when the pain got too much but I went past my pain threshold cos I really wanted it to work....and he said isn't it sore....I was like keep going....and he said I'm don't want you to suffer anymore I'm happy with how much is in there so I'll stop now!.

I still have no less pain or better ROM yet....am starting to worry that it isn't going to work for me and realistically there is nothing else they can do for me steroid wise as I've had 3 now in 7 months.so it will be just physio & waiting out this poxy FS....even if I could get to stage 2 sometime soon I think that would help my sanity.

ho piper

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cant believe it did not break the scar tissue up. mine was instant. could not reach the sat nav going as i was so locked up

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could reach the sat nav post injection. that sucks. its always one step forward on step to the side and back.

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keep on pushing with the specialist and keep on mailing them. don't get forgotten about.

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perhaps later they may release the capsule surgically if you thought it would help. as i did with mine back april 2021. then your like a new born is so floppy the joint. i had to pay that over a year.

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please dont let it get the better of you. keep positive and mentally strong. don't let it pull you down. it would be so easy and it did wit me.

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had to have a strong talk with lisa and she shook me up and up beat me in a good way.

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thats what we are for as well

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colin

Like you said Piper still early days.

Its tough though when you've been in all this pain and discomfort and you're pinning everything on an injection and it doesn't yield the result you were craving.

Did you get a tension band? Have you tried swinging your arm like a pendulum? do you do the climbing your hands up the wall and stretching to the top of the door frame? For me, these were the 3 things that got me to stage 2 and out of pain. I can now sleep with my arm under my pillow again. I know that sounds silly but my shoulder was so frozen and tight any movement or jolt was sheer agony.

Don't get me wrong those 3 things were agony too and I was delirious at times trying to push through my pain threshold but it worked. As I've said previously, I still don't have full ROM back and am 2 steroids in but I'm out of pain. I'm back with the orthopaedic consultant on 22nd Sept for a review of my ultrasound results and next steps. There is no way I'm going under the knife.

CUT CUT CUT CUT CUT CUT lol.

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sorry only if it the last chance and roll of the dice.

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i can vouch for that.

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c

on the exercises Michelle

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they all work. walk the wall with your fingers ( i have a piece of gaffer tape on the kitchen tall boy) still to measure my reach and beat it.

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pendulum swing wit added weight to pull the joint.

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elbow into your waist . arm out at 90° against the dior frame and push back .

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even the private physio which i got a great deal on. she had me in tears trying to keep the capsule free.

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and still do them. and theraband work

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both of ya keep up the good work

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c

that's exactly it I was counting down the days to this procedure and had heard so many positive results that I thought it would defo work....I know I still have a few more days before I know for sure if I will get any benefit from it but not feeling very positive.....I haven't got a tension band, I do the pendulum exercise and the walking the fingers up the wall - I have loads of exercises from physio that I do and I watch a guy on YouTube that I got recommended on here I think Adam Fields has 2 videos especially for FS.If I could just get to stage 2 I think my life would improve more, just so frustrated at the moment so much going on health wise and work is rubbish right now too so I feel I'm just getting it from all sides 😢

I hear you loud and clear Piper and my heart goes out to you, it really does.

Having had a bad year last year, rheumatologist, GP, neurologists, blood tests, xrays, MRI's and even this year hasn't been the best, I can empathise with what you're going through. Trying to hold it altogether, family, work, friends, social life, the home and all the while in pain and turmoil over health matters.

You're doing great Piper, you've survived your worst days yet and you're still here fighting, throwing everything at it. You will see brighter days, I promise you.

Remember all the things you can do, celebrate the things you achieve each day, despite being in pain with limited ROM. You're remarkable and you're a fighter and we're here for you and those dark moments.

It's a truly isolating condition and absolutely no one understands the anguish that comes with it.

I really appreciate your message, I'm a bit emotional reading it, your kind words have hit home xx

Hi Posse how is it going

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any movement piper do ya feel any better. blooming disappointed it did not have that instant fix.

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hows michelle doing for the end of the week.

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michelle will know. remember that pic with the red felt pen ( on the other platform).

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its got the better of me again. for piper. i am aching again. not where the tendon was operated on but the rear of the shoulder capsule and the top of the deltoid.

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i had to resort to mailing the spire physio. awaiting a appointment. and let the surgeon know and the solicitor.

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i must sound like an old record to them. i was so confident i have packed all my shoulder toys up and stuck them in the loft.

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its 12 weeks today since the operation and i am gutted. lisa has noticed i have been holding the shoulder again and i have fobbed her off saying its old habit.

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she is not happy but she is on team colin's side.

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lets see where this takes me

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got a 2 hr occupational health meeting tomorrow at 1pm for a phased return in sept.

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poo poo poo poo poo poo. anything else would get me banned lol

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colin

Really Sorry to hear your news Colin, hopefully it's just a little blip for you and your physio can help get you back on track 🤞🙏

I'm devastated that hydrodilation just didn't work for me at all, so disappointed.i think that's it for me apart from physio I'm just going to have to wait out this poxy FS. Hopefully I will get to the pain free stage 2 soon, I mean I am 7 months in stage 1 now and really am beyond fed up with it- I know you are both on this road longer than me already, I honestly don't know how you pair are remaining sane cos I feel I'm teetering on the edge of insanity with this!! (I'm maybe half joking.....but not at 3am when can't sleep due to intense pain)

I'm trying but failing to end this message on a positive note so I'll just say thank you both for your support & words of encouragement it means a lot ❤

thanks piper

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to be honest i am use to being in ache now. its not new just annoying.

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colin

Im sorry to hear you're both experiencing pain, despite your recent treatments and all your efforts. It's soul destroying!

Piper, what are the next steps for you in terms of treatment options? I know you said you had other stuff going on too. Are you seeing any consultants to try and work things out/through?

Since my last injection (about 4 weeks ago) I have got the tiniest bit more range back but nowhere near what I was hoping for. As I've said time again, I'm beginning to accept things now as I'm not in pain with it and can do my day2day stuff. Just some of the housework can be a but challenging but hey ho.

Colin, you've got this! 💪 You know the path you need to take and I know you have the drive and belief to see this through. As I said on our other channel earlier, you've come so far and overcome so much.

You're both doing amazing, I know its no consolation when you're in pain at daft o'clock with no respite but you're both doing great.

Let's keep banging the FS drum and support each other and other FS sufferers on this forum.

cheers for that michelle

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i would take less ROM as not to antagonise the shoulder.

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hence why i have done less active weights (2kg) and band work. i have just maintained the muscles and stopped the spasms.

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now worried about the return to work

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got me meeting tomoz . went through me pain diary and day to day diary for bullet points.

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tell ya tomoz the out come. just settled down with 800mg anti inflammatory tabs. seeing if its just inflamed.

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cant be much else left i can do or just accept the ache as a constant. as long as there is no further damage.

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ho bang bang said the drummer boy lol

I'm kinda out of treatment options as I've had 3 steroid injections in 7 months & that's the max you can have in a year in one area. I'll just continue with physio and hopefully soon get to stage 2 🤞🙏 I'm on various meds for other issues and will be going back for more bloods in about 6 weeks to check my levels etc....

ho that went really well .

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i just read from the list of bullet points from the past 44 months listed all procedures and medication i have taken and the problems that happened

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and my companies attitude to work load. her opinion was you think in 5 weeks you can regain 1 years muscle atrophy from 2 operations.

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and start back lifting and twisting.

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if she had her way i would not be allowed back as a carpenter. as the shoulder is too fragile. no capsule no tendon so to speak .

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house cleaning any one . good rates.

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on a serious note where so i stand with a work place injury . company fully liable and accepting of blame. and occupational health thinks i should not go back.

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colin

Wow Colin, how do you feel about not going back to work at all?.would that mean that you are on disability pay or get a payout due to it being a workplace injury?.

That's a lot for you & your family to think about

morning piper

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yup knock me sideways. .

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she first said so what's wrong with you. i laughed where do you want to start.

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lucky i had me pain diary x 3 to go through and videos of problematic times at work when i re injured myself ( its all recorded ) . as i know its is a legal claim.

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being transparent as ever i mailed all the top of command at work. and warned them its a damning report against me.

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when i brought up tendon surgery and the atrophy she was quite clued up on shoulders and laughed at my expectations for work

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i had an email back from head of HR when the report arrives i have a meeting with my boss and bossboss and bossbossboss lol. they will set things up to support my return to work. being problematic we had 5 other carpenters now i am the last left . so all carpentry will fall at my feet.

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so its a company dilemma for them to sort out knowing they are the guilty party. and have contributed £6000 towards costs already.

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when i get the report i will pass it to the solicitor to read over and she can advise. i am worried about closing the case and getting paid costs and then my arm fails again

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it may be a october return

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colin

yeah definitely don't settle too soon, you need to know that you are fully recovered and won't have any further relapses.

the first time i met my physio back in 2019 . she said what every you do if you can dont have surgery.

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i asked her a couple of months ago why she said it ............. answer

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it leads to more surgery and a weaker shoulder........

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i was kind of push / directed this way by the people over seeing my shoulder issues via the insurance.

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yes its kind of helped . but has it caused other problems. the physio originally thought it was bicep tendon issues back in jan 2019 when i first saw her anout me injury to the shoulder .did this cause the FS.

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has the tendon issue arrived later. should i have would the clock back to dec 18. all ifs and buts along the way. when i did the injury

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we all fight to be ache free. and you get thrown life lines all be it operations. when you hurt its a dilemma you have to weigh up at the time. .

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why have i re acted so badly to FS and treatment ????!.

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still chasing the dream of ache free life.

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colin

I really hope you get to that ache free life, you more than deserve it after all that you have been through

Hi Piper and Michelle ( the posse )

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went back this morning to hospital physio for that ache again.

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they put the tendon under load ( now 12 weeks + ). its working that's a bonus.

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the ache is all down to the sub scapularis. it has no direction and has forgotten how to work lol. mmm sounds like me.

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back taped up again. lisa will love that. have a new set of exercises to do and isometric exercises to engage the shoulder.

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on a positive note i have herd through the grape vine work is trying to get a office place for me. either supervisor ( been there done that ) or a surveyor ( been there as well ).

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applied for both posts in the past 18 months and they have gone to friends of management ( its who you know ) not what you know !!!!.

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now i can start to re build some volume to the muscle again yay

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colin

tape time again . get some tan lines again

glad to hear that they are looking into an office job for you, I know that you are finding it tough being home for so long.....I mean there's only so much countdown that one person can watch!!

lol seen every police camera action. game shows are more painful the frozen shoulder lol

got the surgeon calling tomorrow at 9.30 to check in on the problems.

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thats a bonus. wonder what he will charge for a phone call

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c

hey folks sorry for the silence, just been away for a few days.

Oh Colin 😕

Where does it all end?

Have you got a solicitor involved for HR advice? I assume they have to pay your same salary etc? Thing is, if it is a workplace injury, it's not just about keeping "a" job is it?

You're a tradesman, no doubt with years of skill and expertise, surely they can't expect you to be placated with an office job?

I would get someone who knows that side of the law for some advice.

In terms of your arm, I'm at a loss!

Good that your medical team aren't writing you off and it's encouraging that your surgeon is checking in tomorrow. Let us know how that goes.

Piper, any change or improvement with you? Are you getting any respite/sleep?

glad to hear you had a few days away,hope you had a lovely break 🌞

I don't know whether I'm fooling myself or not but I think I may have gained a couple of cm of movement when doing my physio exercises, I'll keep persevering with it that's all I can do.ive also changed my HRT meds to night time and that seems to give me a slight sedative effect so I'm sleeping a bit more, every extra half hour counts!!

hope that you are doing ok too

hope you have a useful phonecall 🤞

my GP charges for phone calls not as much as apt to actually see them but not far off it

Hi Michelle / Piper

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he called just as i was going into physio ( typical ).

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he was in agreement it is the subscap muscle. and do as directed by spires progress.

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he was interested when i mentioned i am not allowed back via occupational health at the moment.

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but he kept on Reiterating how important phased return is as the fragility of the joint.

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i am awaiting the report from work so i can pass it to the solicitor for her opinion and what direction this takes.

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c

I hope he didn't eat into your time with the physio too much.Its good that you have a plan & that you are so on top of all your paperwork etc...so they know exactly all that you have been through

thats all really positive Piper, great news. Im sure you will continue to improve with the right care and medication 🙏💟

the hospital re taped my shoulder back into positive position pulled back and up.

she used KT tape.

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at this point i am prepared and have a shaved shoulder front shoulder and back

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to say the tape was aggressive compared to rock tape.

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i now know what a waxing feels like lol.

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OUCH

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colin

How are the shoulder posse doing this week?!... At least the sun's out, so getting lots of walking in and swinging my arm dramatically as I walk- it's all about the motion!

hi piper

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still here watching the grass grow lol

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had something last week worse than FS. you guessed it a man cold lol. first time me and lisa have been out to a venue in years. and i caught a cold. would you Believe it.

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all good now took a few days off work " ho i am not at work". there ya go then.

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went to see me work mates this morning just to get out the house. the occupational health report is in. my boss cannot print it off !!!!.

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have been working the joint. the muscles have a long way to go to be any where near capable of carpentry. if i am allowed back.

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the worst position is the stop position ( like a policeman ) holding his arm up.

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i can get to the position and have zero strength. .

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in the garden with the weights and bands doing me stuff. nice week ahead.

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how are you doing in the Emerald isle. any improvement in the joint piper.

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colin

man flu thats serious!!!.....glad you are feeling better now.

thats nice that you saw your work buddies

I can't get my arm that high to do the policeman stop.... I say that to make you feel better about your arm!.

im just trying to do my physio exercises as many times a day as i can, trying hard to get better ROM, no great difference so far but I'll keep persevering...

hey comrades!

I have been wanting to check in but with not being in pain or discomfort I didn't want to peev either of you off, so I thought I would keep quiet.

Piper, last night when I was doing my exercises, I was throwing my arm round like a pendulum, full on going for it. I said to my hubby, look at this! who would have even dreamed this would ever be possible from where I came from.

My point being, keep the faith, push as hard as you can, collapse in pain, break down in tears, vent your frustration to anyone that will listen, you will get through this.

How are things in general? I know you had other bits and bobs you were going through. I hope you're having more brighter days than dark ones.

Colin, my friend. Your unwavering spirit is truly inspiring. Never woe is me, no matter how hard it gets, and I know it is hard for you right now.

Good to see you haven't lost your sense of humour and that if nothing else, you're at least enjoying some good weather.

With you both on this journey 💪💟

am so delighted to hear that you are doing so well, never feel that you can't post about being pain free sure that is everyone's goal here I'm delighted for you 😀 wow full pendulum swing - that's amazing.

I'm just trying my best to put the disappointment of hydrodilation not working for me behind me and move forward with physio and just keep arm moving as much as possible as often as possible.

other health stuff is being worked on too-middle age sucks!!

congratulations again delighted that you are having such progress and it gives me hope that I too will be able to lift my arm above my head in the future 😀

Hi my fellow posse

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got the OC report finally this morning. had a major strop getting it.

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had fellow workers telling me whats to happen. my boss told them instead if sending the report. absolute waste of time as a manager.

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summing up the report. OH states recovery time is up to 26 weeks. i am coming back at week 16.

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recommendations are i am UN FIT to work at this time. but if i was to return there would have to be strict rules of how not to work adhered to by my company .

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also had spire rehab this morning. they would like to send me to work once fit. not nearly fit so i re injure my self again.

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so its really down to see if i am fit enough. to be honest looking at late sept in me own heart. got the third week off then as hols .

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up your manor Michelle that week. lisa is booked to go on " Just Jane ". now there is a cryptic note lol

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at least its positive news and i still have a job. how is everyone sun tan doing this week.

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c

your boss doesnt sound the best a communication!.just make sure you dont go back to soon,its easier to extend a sick note rather than going back & then getting signed off again....if you know what i mean.

I'm a typical pale freckled Irish woman so my tan is non existent.....I just go varying shades of red!

hi piper/ michelle

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got the operation costs through this morning at last . just paid the loan off from may's op. that is two they have paid for.

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got the surgeon this friday. rehab on following tuesday. private physio tuesday and the GP wednesday.

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see if i am clear to return to work by all.

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colin

glad to hear you got the money through.

let us know how you get on with all your appointments