Is it Hip or is it Spine :( :(
Posted , 16 users are following.
Hello I'm in my 70s, limp painfully all the time and just had a good old cry. I'm very anxious to know if all you kind people who have been through hip agony can identify with the pain I'm goingthrough to be MORE hip related than lumbar please.....
I'm in East Anglia UK, I have seen both a hip surgeon and a spinal one but at the moment both are depressingly undecided whether this horrendous leg pain is coming from my hip or my spine. I don't get any "grinding noise" and no cervical issues but I can't walk at all some days. Today all the pain seems to be centered in one bit of my outer bum cheek. Don't get it here a lot but it's agony. I'm having to use a rollator to just get across my lounge!
I'm currently wearing 2 morphine patches - not helping- but after taking 400mg iboprufen, amitriptyline and paracetamol the pain lessens and I can sometimes walk alright. Those times are absolute heaven!!!
I'm a normal weight and eat healthily but when groin/thigh pain is horrendous I can't get in or out of cars or onto a bed without physically lifting the leg nor can I lift that leg even a millimeter when lying flat. I can no longer manage to go up and down steps & I've learnt not to get anywhere near floor level because I just can't get back up! Sleeping? there is no way I can turn over unless I grip the bedsheets between my teeth to stifle the crying out. And in the night I get bad bi-lateral shin/knee pain. Every bit of my pain disappears when I sit. And lessens considerably when I lean over a supermarket trolley.
Two years ago I had a lumbar MRI showing some spinal stenosis. A month ago I had 2nd Lumbar MRI. I had a hip Xray months ago which showed a marked less space inside one hip than the other and a bit of a bone spur. This coming Wednesday I'm getting the results of this 2nd lumbar MRI and the following day I'm having a hip injection into the (groin??) - a day hospital admission. The hip surgeon I saw months ago suggested I had this before any THR because, i quote, "At least, if it works, we will know your pain is coming from your hip".
Both surgeons at the moment are undecided where exactly the leg pain is coming from. So your opinion would be most welcome please. Ive been in such bad pain for so long now it's as if I'll never get to the bottom of it so I'd really appreciate your own opinion going by what you yourself went through.I know you're not medically trained but just need to know if any of what I've written sounds familiar.
Many many thanks in advance,
Sarah.
2 likes, 29 replies
jean95000 sarah22500
Posted
Your symptoms are exactly what I had I thought all.my pain.was coming from my back i have slippage in the spine and stenosis had mri scan on back it was the specialist I saw who said it could be my hip I saw orthopedic surgeon who confirmed my hips were bad I had the injection in the hip which did ease the pain for about 24 hrs had hip.replacemeny last August and due to have the left leg u done 26 of this month I do have injections into the spine but can't have any more till after the hip replacement. The.pain.is horrendous at times but keep your chin up I'm sure they will sort you out soon hugsxx
sarah22500 jean95000
Posted
Ohh sorry you are still in pain Jean. So why did surgeon say problem was your hips if you are currently having to have spinal injections? Or is your pain due to problems in both areas? I'm a bit suspicious that that may be my outcome too......
jean95000 sarah22500
Posted
I didn't think it was my hip causing pain but when I saw orthopedic surgeon and he examined me he said had very limited movement in my hip and severe arthritis in the hip he also said the left was worse than the right but the right was terribly painful so he replaced the right first but over the past 12 months the left has deteriorated and is causing pain I can tell you the pain went as soon as I had the hip replaced I still have back problems but the awful pain went as soon as I had hip replaced the pain after the op was minimal
sarah22500 jean95000
Posted
Ohh that's good to read
beth2509 sarah22500
Posted
I'm afraid it will sound familiar to most of us - but the same or similar symptoms can arise from both the spine and the hip. I know - like you I have both.
The issue with the injection is that there is no guarantee it works .- so it wouldn't be conclusive.i had two. The first time it worked like a dream for a year. The second time, absolutely nothing at all. Not one second.
Of course, the real fact is that it's probably both! But certain aspects of this are definitely the spine - sitting or leaning forward relieves neuropathic pain which comes from the spine. That leaning over the supermarket trolley is exactly what I do to relieve the spinal stenosis, and my doctors told me it's an archetype posture for people with this problem. But the lifting of the leg bit, that sounds to me like the hip. I went through a lot of that, and it would wax and wane - sometimes better, other times not.
The pain you describe today sounds like bursitis, which is commonly something that goes alongside the hip problems.
I have to say, my pain medications were similar to yours, and the pain felt as bad as yours if not a little worse - and it was actually osteonecrosis, probably as a result of the osteoarthritis. It can come on very quickly, and an xray will spot it. Mine was "ok" in March 2016 but I was thinking that the time had come for thinking about hip replacement - in June I collapsed in sudden and excruciating pain, and when rushed into hospital, they found that the hip had died and was crumbling away!
sarah22500 beth2509
Posted
Beth that is awful!! Poor you. I'm so sorry xxx I too am thinking I have probs in both areas. Last January, only four months ago but it feel like years, I was actually sitting in a supermarket on a chair crying in pain. I was so frightened. I've been through childbirth but never had pain like I did that day.. Later in January, by experimenting, I found that if I walked on the very OUTSIDE of my foot I could get the pain to diminish whilst I walked home. I must have looked strange limping along on the outside of my shoe but it was the only foot position I could use to reduce the pain. Now that doesn't work of course. That was only four months ago. So much pain since and so quickly....
AnnieK sarah22500
Posted
That's so tough, all of that pain and disability, Sarah! I have a couple of questions. You said the hip x-ray showed one hip with less space between the ball and socket and a bone spur. Is that the same side where you are having all of the trouble with your thigh/groin pain and cannot lift? And am I correct that you have pain when lying down and trying to walk, but not when sitting?
I am 69, and have had both hip and spine problems. I had a total hip replacement on the right hip. Then, when I wasn't able to walk without a severe limp and pain many months afterwards, they checked out my spine with x-ray, MRI and a sacroiliac cortisone injection. None of them showed any problem. I had no reduction of pain with the injection. Had to go for second opinion when original surgeon had no clue, and it ended up that I had torn gluteus medius and minimus tendons, which needed to be surgically repaired.
Then in between the two surgeries, I had a compression fracture of a thoracic vertebra, which was agonizing and required a surgical procedure to fix.
I know that sometimes pain from the spine can be referred to the hip, butt and/or legs. But that wasn't my experience. My spine pain was in my spine. My hip pain was in my hip. And my gluteal pain was in my butt.
With your hip x-ray findings showing loss of space (meaning degeneration of cartilage) between the ball and socket, (plus a bone spur), that sounds like hip trouble to me. I remember the bone-on-bone pain in my hip joint that I suffered before my hip replacement, and it was horrible. I could not put any weight on my leg, and had to use a walker during those times.
Hope your doctors can figure it out for you. I have seen a number of people on this forum and in another where spine was suspected, even though pain was squarely in the hip, and precious time was wasted exploring spine issues, when a hip x-ray clearly showed significant damage.
sarah22500 AnnieK
Posted
Hi Annie,
Thank you for all that interesting info. and In answer to your first paragraph questions, yes to both.But I have no back pain at all. My leg pain is unbearable when I weight-bear/try to turn over in bed/ get in and out of cars/ walk. Rarely & suddenly I find I have NO PAIN AT ALL. .Last week I walked quickly past a friend in her garden and she stopped dead in shock. But that is rare. AnywayI have told both surgeons I don't get back pain, so why all this indecisiveness I don't know....
AnnieK sarah22500
Posted
It sure sounds like a hip problem to me. By the time I got my first hip x-ray, I had been having some pain, on and off for years, nothing too horrible. The orthopedic surgeon was amazed that I was able to walk on the hip, since it was clearly bone-on-bone, with the ball and socket smashed into each other with lots of jagged edges, and he recommended a hip replacement. Even then, I wasn't having the bone-on-bone pain. A month or two later, I had some horrible episodes of excruciating pain. They came and went, and I decided to get the hip replacement, as it wasn't going to get any better.
It would have gotten to the point where I was in that awful pain most or all of the time, like you. Some people who have the really bad pain don't have the most awful x-rays, and the full extent of the damage is only seen after the surgery is done.
Find out exactly where the injection that they want to give you will go. Find out what they will be recommending if it does not help with the pain. Will they then suggest THR?
sarah22500 AnnieK
Posted
julie49207 sarah22500
Posted
Hi Sarah
Firstly I truly empathise with the pain.
I had a hip injection which worked for about 3 weeks it was marvellous. Then it wore off!!! Went back to see Consultant who said as the hip injection worked that meant I needed a new hip.
June 2016 I had my new hip and never looked back.
Prior to my new hip I had pain in the groin the hip lower back ...keep persevering and hòpefuly you will get sorted.
Please keep us posted and good luck.
sarah22500 julie49207
Posted
Anne68156 sarah22500
Posted
Sarah, I'm so sorry that you are in such pain. I can understand why you need to cry. I do believe that the hip injection is a good idea. I've been getting them for a couple of years and for me they really work wonders. You don't want to undergo THR if that is not what is causing your pain. I know that others will have more helpful information for you and I look forward to hearing whether or not the hip injection helps.
Anne
sarah22500 Anne68156
Posted
linda80011 sarah22500
Posted
sarah22500 linda80011
Posted
How did you discover you had a torn ligament as I've read that doesn't show up on an xray??