IS IT OK TO USE E45 WASH VULVA, ANUS WITH LS

Yes, I also use Dermol 200 shower lotion on the sensitive bits. So far, so good! Good luck, it is such a nightmare to find what gives relief but also what cleanses the most too.

Thank you ladies very much. I'm off to buy some Dermol tomorrow.  Thanks Norma for mentioning the handy squeezy container for shower as I was like a juggler this morning using the pump dispenser in the shower !  I used the E45, which felt weird as no foaming of course but soothing and then panicked that I maybe should not be using it even though it is for dry skin conditions etc. SOOO glad I found this site. 

Can I just mention for anyone who hasnt listened to Dr Goldsteins lecture on LS , I can really recommend it. So informative and although the terrifying subject of cancer does rear its ugly head, the stats are good if you continue to use steroid cream even when NOT having a flare up.  Just google  Lichen Sclerosus: The Unspoken Pain and you'll get the video link.  Make sure you have a decaff on hand, its 90 mins.  It also gives us a good bit of ammo for our gynaes/dermatologists. 

Thanks again you lovley ladies,

bless you  all and big hugs xx

Thanks bettie, will have as look for that now. I have to say Im not a great fan of the E45, it's caused no harm but is so greasy feeling and again i do not feel clean after use. It also leaves the floor of the shower slippery, its lethal. Any alternative is going to be most welcome.

Gosh bettie, I am sure Lye soap is ok but at what a cost to us in the UK. Amazon UK sell it but at what a price plus shipping. Sellers are US based so if you are buying in the US I hope it is much cheaper there. 

Hi Susan.

Stroll on ! Back to the drawing board. Dermol it is then , hope that's not the same price. If it is will have to stick with EA45 I guess. Thanks for info.

Hi caroline, I use Dermol for it's dual purpose as a soap substitute and moisturiser plus I get it free on NHS presciption.

If you just want a soap bar that is free of aditives you could try "pure simple soap". I have used both " pure simple soap and "pure simple shampoo" and no problems. Sometimes when I wash my hair in the shower with simple shampoo I use some of the shampoo like a shower gel to wash the rest of me including the neather regions. Like I say no problem for me.

They are available in most stores at a cheap price.  

Thanks Norma

I was using a feminine wash thinking PH balanced and gentle etc but was told in no uncertain terms to stop using forthwith by consultant. Hey ho.

Thanks again, will look at ingredients and see if they are similar to Femfresh., if they aren't will have a go.

Thanks again

You can only but check it out and may be give it a try.

The suggestion from a doctor would be only use water because the vulva is self cleaning through natural secretions and a light wash with clean water is enough. That doesn't psychologically feel right after a life time of lathering up with the soap, does it. I can't see a gentle cleaner doing any harm but I would add a little bit of moisturiser after patting dry.

I do like dermol.

You're right they do but when you are weeing all day, persiring etc i don't think just water is going to deoderise and freshen. Maybe it's just me being paranoid. However, just come upon Aveeno shower wash and remembered my friend being told by her dermatologist to use this range as a moisturiser and she suffers terribly with LS. Just noticed on Amazon there are 2 4 1 so have ordered that. Don't mind using E45 as moisturiser as well as Aqueous cream both great for that. It's just the washing bit. As you say years of foaming products pre LS have spoilt me. Ahhhhh those were the days ...... sigh........ 😢

thanks for all the info Norma,i`m going to try the pure simple soap,and also mention to my GP and try to get a prescription as i don`t pay for mine!! there has to be some compensation for all this suffering,lol

You'r welcome susan.. Absolutely, if you are entitled to free prescriptions then why not...It is a consolation to recieve repeat free prescriptions for an ailment when the time scale is indefinate.......but it's one I would rather not be benefitting from.

 

i get free prescriptions cos of my under active thyroid,i thought i would only get those tablets free but i get all of my tablets free now!! saves me about £50 a month! stupid prices

Saw that people were recomending Aveeno products so I have bought the body wash to try.  My pharmacist tells me it is available on prescription so fingers crossed that it works and then I can persuade my doctor.  Thank you for reminding me off it.

Hi Pam, well that's with knowing, ill be asking my Dr too !. If we get no joy I bought the big 500 gram wash for £9 on Amazon. And worth every penny. It's marvelous. So gentle, foams so you actually feel clean after a shower ! HALLELUJAH!. That E45 is certainly non irritating etc but how can a greasy cream CLEAN you ? Also there were greasy marks everywhere . Id spend longer cleaning the shower than I did ME every morning I'm one happier bunny I can tell you. How sad is it that you can get excited about foaming yer bits ! 😏😁 Hubby is using it as shampoo as he had sensitive scalp and it's been brilliant for that too. Hope you and anyone else who tries it is happy with it too. A friends dermatologist recommended it to her for her LS so I'm confident of it's suitability for the condition. Good luck Pam x