Is it possible to have LS without itching?

Hi Sue, I have been fearful of getting biopsy or using Clob, for the same reasons, fear it may ignite a HSV problem For 2 years I have used nothing except water spritz after urinating.Mine started after a BLADDER procedure, when Betadine was used to sterilize the area. I am tempted to use a mild steroid for itching, such as MYCOLOG ointment.Itching came later. Living in Florida is brutal in summer.I am wondering if anyone has had success with the Mona Lisa Touch laser therapy being used widely now for atrophic affinities, which could be part of this for some of us post menopausal ladies.????

Hi Cynthia,

i replied quick as im browsing on here ATM.  I agree about post menopause. I've been it for ten years now.  I think steroid, biopsy injection has caused damage but sadly biopsy needs to be done.  We don't have that therapy here in uk or at least never heard of it.  I agree summers make you sweaty down there.  Interesting about the solution befor surgery I had that as well.  So if you think about it over years and years we use nothing then apply betadine, biopsy, injections, steroid, coconut oil all with atrophy, no wonder we feel sore there.  Do you wear skirts and no pants in the heat, I'm not one for skirts but can't wait to get nightie on every night 

Hi Sue, I had scraping done be a dermatologist in the beginning. He sent for culture. That spot has been a source of pain for 3 years. I had no pain before. For me, no biopsy! Another dermatologist who specializes in LS, said that's what this is and I need no biopsy. About clothing, I have long been a fan of skirts, especially long. They r so popular now anyway. I have rarely been comfortable in jeans or slacks. I also wear no underwear. If it is necessary, I wear a loose cotton. This has been going on all my life with this type of clothing. Pants have always caused irritation for me. I have had some success with a gauze pant, leggings because soft seams, or sweats. I am still trying to figure out what lubrication to use, r u saying coconut oil irritates you? Considering borax treatment.

That's good you have someone decent to recognise L S.  The coconut oil is nice and does feel better, I just think it's something new I've used to somewhere that had its own ph etc.

why do you think more woman are not aware of

Hi Sue,  thank you for replying.  Please let me know how your doctor appt goes today.  I have one as well this afternoon.  I am going to ask to try clobetosal without a biopsy to see if it helps.  I am sorry about your HSV1 possibly resurfacing. Did you mean that clob could have caused the reimerging of HSV1?

 

Hi,

Yeah about thirty two years ago I had herpes and had treatment, I've never had trouble again until after the biopsy about the fifth day after biopsy at each site wound I felt tickling, I thought it was the skin healing but apparently    

A trauma like the biopsy, the steroid and probably L S plus uncontrollable stress for the past year has made it re emerge.  I will of course let you know what they say after appointment tomorrow.  I just want it all to go away.  It's hard on all of us with these problems isn't it,

Would like to you all. Need support to.

Hi Cynthia

I have LS, confirmed with biopsy. Was given Clob. then found Perrin

Naturals Creme Complete. I didn't want to keep using the Clob because it thins the already thin skin in the area. Stopped the clob after 3 days of Perrins, with wonderful results, Very occ. itch. nothing bad.  Have used the Creme for a few months ( not sure exactly) but will keep using it. Also rec'd my first box of Borax, if I need it I will try it. But so far, thank God I don't need it or steroids.

Hope you find something that helps. Also, noticed the itch, if I get it is the same spot as the biopsy. Not sure if the biopsy contributed to the itching.

Hi Helen, I have never used Clob. for the same reasons, thinning. I am post menopausal. My question, after having looked up the Perrins, is did you have any irritation from it.? The information says depending on where your LS is, you can experience irritation. It has a lot of good stuff in it, but some seem.like it could cause burning in raw areas especially mucous membranes..I appreciate your input and wonder if anyone else has tried it. Thanks, Helen

Hi Sue!  How did your appt go at doctor?  Had a test for LS. It came back negative. My test results only took two weeks. All of my problems seem to be related to a severe case of atrophic vaginitis.  On vagifem and had first Mona Lisa Treatment five weeks ago.  I'm on a mission to feel better.  It has been a year of pain.

I hope you are feeling better?  Are you?

Hi Alexandria,

How is Vagifem?  Has it stung or anything?  I wonder why they thought you had LS.  My biopsy came back inflammation I aren't totally sure what it means does it mean inflammation from L S who knows I can't seem to get anywhere with this,  the specialist is adamant I don't have it contrary to the NHS consultant who said I have.  The other one said don't use the clob.  I am very atrophied also and have been told I need vagifem I'm very scared to use it if I'm honest I hate pills and potions as I always google side effects something I know I shouldn't do.  If I haven't got L S i asked why is area so white? To him mmm I'm scepticle.  I now have to have a biopsy done in another area which is badly red and ulcerated, I don't want it doing as it takes so long to heal on already thin skin, sorry to go on.  You sound better.

Cynthia

There was a tiny bit of burning, nothing much tho. It would also itch for a min. or two then it's ok. Rather use it than Clob stuff.

This is what my report says about my biopsy.

"Sections of the vulvar biopsy show irregular acanthosis with overlying parakeratosis. there is a dence superficial dermal chronic inflammatory infiltrate and focal disruption of the basal layer of the epidermis. There is no atypia and no malignancy.

The findings are those of a dermatitis with lichenoid pattern and likely represents early lichen sclerosis et atrophicus"

Lots of big words. I didn't bother looking them up. I was told it was lichen sclerosis.

When I first got the horrible itching, I didn't see a Dr. for months until I started feeling really sick from the scratching. The one area was raw from the scratching, I think that was what made sick, like an infection would do. I finally thought there must be something wrong, thought maybe cancer. Scarry when I went to see Gyno. I have a presc. for 2% Hyrocortisone I use maybe once every 2 weeks or so. No Clob

Just Perrin's twice daily. 99%  better than it was at first. Still a bit of itch, but I learned to leave it alone, it goes away. I hope you find something that works for you. This, so far is working. I just hope the lichen doesn't get worse.The report did say "early lichen" It's been about 6 years now, so hope it doesn't progress. Good luck too all who suffer from this horrible thing.