Posted , 5 users are following.
Hello all. Had an atrocious night of pain starting in both ankles shooting up to knees. Currently hovering around knees / calves.
Gets worse after eating. I don't know if this is PMR related. I'm diagnosed PMR & Diabetes 4 months.
The Internet tells me lower leg pain is not typically PMR? Would so much appreciate advice. ?
0 likes, 20 replies
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EileenH Sars77
Posted
And this "internet" is going to say this isn't typical of PMR - lower leg problems are usually something else. I'm mystified - especially the "gets worse after eating". How very strange!
If it were one side I'd wonder about sciatic pain - it can get to ankles but usually you would have felt it higher up first. Time for the GP methinks.
Sars77 EileenH
Posted
Thanks Eileen ..Yes I'm in & out the docs all the time at the moment. Lots of pain returning with a vengeance, lumbar, legs, hips & pelvis bad. Recurring urinary tract infections, throat infections. Heavy periods every 10 days... wiped out. Doc says will do more blood tests.
I initially felt positive on diagnosis of PMR as it explained so much & the steroids worked but now it's all going haywire again!
EileenH Sars77
Posted
Sars77 EileenH
Posted
The only referrals I've had are to an Osteopath & physiotherapist. I've had ten years of back & forth GP.
EileenH Sars77
Posted
What - for these symptoms?
PMR is the name for the collection of symptoms - but they can be caused by a lot of things. And some of those things may respond to pred, especially when the doctor uses high doses. There isn't a definitive test for the PMR we talk about - so they should be rulling out the others first. But oh so many don't - and later the patient comes up against the buffers.
Sars77 EileenH
Posted
Symptoms increased gradually over the 10 years & in April GP diagnosed PMR.
He told me...Take these steroids for 2 wks, your condition is very curable & you'll be pain free in a week & won't need your cocodamol any more!
I'm so glad I found this site & now I know why my nurse friend looked shocked & confused when I told her, she treaded carefully & didn't comment 😂
EileenH Sars77
Posted
Where do they get these ideas from? All they have to do is use Dr Google and they would find REAL information.
It is very MANAGEABLE - but that isn't the same as curable. Two weeks? Two years minimum - but if you've had creeping symptoms for 10 years - the chances are, I'm afraid, you are one of the 5%. Like me...
Sars77 EileenH
Posted
Yes thanjs Eileen I'm mentally preparing myself for the long haul! Having had a few flares already along the way I've realised these are coinciding following camping trips, that also involve alcohol, music & dancing! I'm thinking the best way to manage this is to keep a more restful stable routine & hope it'll shorten the PMR journey 😊
EileenH Sars77
Posted
I've given up hoping for shortening it - I'm just working on making it acceptable all the way :-)
Michdonn EileenH
Posted
Hang in there Lady, EileenH you have helped so many of us. I accept the fact that I may be on Pred for a long time or maybe for ever; just like my diabetes, a bump on the journey of life. Some days of rougher than others, but you are made of the right stuff. Got a smile on my face, working on the path. 🙂
Sars77
Posted
Came across diabetic neuropathy, it says pain can spread up legs. I'll check that theory out with the GP.
Michdonn Sars77
Posted
Oh Sara77, believe it can. Diabetes who do not control their Blood Sugar lose the feeling in their feet and legs. Sometimes the feet are so numb, they hurt themselves are unaware and they end up losing part of their foot. They have pain all the time and cannot distinguish their pain. Diabetics who do not control are in for a very rough journey. 55 years and one month still on the journey and smiling. 🙂
Sars77 Michdonn
Posted
Thanks Michdonn. I've joined a diabetes forum now. I didn't have any blood tests for 10 years so not sure how much damage done. Since diagnosed I've drastically cur sugar & carbs & the pins & needles have subsided. Is type 2 actually reversible in an ideal world?
EileenH Sars77
Posted
Type 2 diabetes is said to be reversible by a group of Newcastle, UK researchers. Google "Type 2 diabetes Newcastle study" for links. Not even an ideal world!
Unfortunately, physical damage done over years of poorly controlled glucose levels isn't always revesible but you can stop it getting worse.
Michdonn Sars77
Posted
Sars77, I would say yes for some people. I am from a family of Diabetics and I afraid not for me, but I keep trying. Get a test kit, check your blood several times a day 2 hours after eating, you will discover what is making your blood sugar to jump. Switching to a low carb diet normal helps to lower levels. Keep that positive attitude and smile. 🙂