Is there a spiritual side to narcolepsy?
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Hi everyone my name is Joel and I've been suffering with narcolepsy from at least the age of 12, I'm 28 years old and was only diagnosed 3years ago!
As as a young boy growing up I was always know for my sleeping and then became numb to the word lazy as it seemed that I lacked the drive to do anything I put my mind to, it became the norm to assume that I would start something and never finish it which was very disheartening at the best of times.
It started off with me falling asleep after meals and any time I was in a relaxed environment and as abnormal as this was it went unnoticed because I would spend most my nights up because of the amount of sleep I've had in the day so it looked like I was making up for lost sleep. (Wrong assumption)
My condition started getting scary and I noticed that I would stop breathing as I was sleeping and at the same time I couldn't move! It was like I was going to die and there was nothing I could do I could feel myself going and suddenly at the last moment I'd snap out fighting for breath, after months of this happening I soon got to grips with what was happening and could almost anticipate when it was going to happen because I would get this feeling like butterflies in my stomach as if the gravity beneath me got lighter and I was floating. I then noticed that 95% of these attacks occurred when laying on my back and at night only as I got older it would start happening in the day and in any sleeping position.
Over the years these attacks would vary between a couple times a day to a couple times in a week.
My dreams seem so real and vivid it's unreal and I often get scared in my home. I've had out of body experiences on another type of level and last night something weird and terrifying happended to me, before I fell asleep I felt a presence in my home and I was freaked out and scared to sleep, as I fell asleep I feel into that state of not being able to move instantly which is the norm for me but on this occasion I heard my door open and footsteps to my bed at this point I was helpless and jumping in my paralysed body, I felt my bed dip and something laid and spooned me from behind at this point I was hysterical and somehow managed to break free, as scared as I was I couldn't get the strength to get up and drink some water and get myself together this is not unusual for this to happen to me and it often can happen straight after an attack as I'm to tired to get up I get pulled straight back into what ever it is that is attacking me. Ive noticed that when I pray as I'm laying there helplessly it gets more violent as if I'm p*ssing what ever it is off and that where ever I am in my life spiritually mirrors how I'm effected in the night. I just really want this to stop I have no peace!! Is there anyone else out there that understands what I'm feeling. I don't want to seem like I'm losing my mind but this is just basic stuff that I've experienced a lot more has happened but I've just had enough I'm under no medication as the madaffinil had no effect on me and my condition stops me from keeping appointments with my neurologist I feel alone and without help or guidance and my quality of life is at an all time low as Im depressed a lot of the time and don't understand why. And tbh this is the first time I've vented about my feeing and I don't think I've come to terms with my illness.
0 likes, 21 replies
evergreen joel15659
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evergreen
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Lizzie46881 evergreen
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I just wanted you to know that your reply to Joel really helped me, I occasionally get similar events and knowing this makes me less scared of them.
xxx
evergreen Lizzie46881
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evergreen joel15659
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joel15659 evergreen
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muntma joel15659
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Yoga helped me with the sleep paralysis as it is very frightening and I had to learn to make myself relax through it.
Don't be depressed about it.... get some help.
What part of the country do you live in?
Best wishes
Meechi2 joel15659
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evergreen Meechi2
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topsmama joel15659
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gary64098 joel15659
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Your story is very like my own and I want to share my experience. Please bear in mind as you read this that it is also my first time venting this so if my story seems a bit scattered thats why.
Ok so I have had narcolepsy my whole life I guess and I am now 33., I was diagnosed two years ago officially which is also around the time I started to make some lifestyle changes. I was a full time profesional sheep shearer and that required a huge ammount of physical energy so being undiagnosed at the time I just told myself I had no time to be sleepy and kept moving to prevent any sleepy episodes, however as soon as I stopped moving I couldnt fight it. The scary ones were about 2 times a day at this stage. Unsatisfied in my career I chose to move to holland and to take some time out and reevaluate what I wanted. It turned out to be a really smart move as I am still here. This is where i discovered a slightly more spiritual view on things. I am still a very simple hard working guy but I discovered myself on a different level. I am not religious and never really was. I thought thers was something bigger at work but 'no man in the sky' is as simply as I can put it. My girlfriend Cynthia is a wholistic therapist and she obsereved me struggling with my sleep patterns and the night terrors. I began to open up about my experiences and she helped me get a better understanding of what happens to me from an outside perspective. My belief is that the terrors are your cataplexy kicking in before you are fully onto the full REM sleep frequency. What I am learning is the different kind of dream states exist on different frequencies. As I learn to accept myself for who I am, I realise now where I had been denying myself as narcoleptic. Shearing had no place for my narcolepsy therefore I just flat out said no to it. My paralasis and "my visitor" I think were very connected to this because as I allowed my narcolepsy to be there my terrors of the shadowy pressence sitting on my bed decreased to once or twice a month. Although I still fell into the same state of paralasis and the same state of sleep, the visitor wasnt there with me. Now I just had the fear of being stuck in my body aware and awake but with no control of it. -Please note this fear as a trigger for the next stage of fear ie the unwanted guest.-
Now then, I need to jump forward and then come back to this.
I want to tell you about what I began to explore in this state when the visitor wasnt there. So you said you know the feeling of being trapped in your body.... This is where I made my inner discovery. At this point as you view your body, there is a separation. You can put your attention to your fingers but cant move them so you get scared. I think this is a separation between consciousness and pysical body which is where the spirituality comes into play. I think that I am my consciousness and my body is just my vehicle. There is something bigger at work that we as humans cannot precieve. I think it was Einstien that said to understand the universe think in frequency and vibration. Consciousness works on so many different levels that we think we understand it, but we only understand it from behind the windscreen of our vehicles. Anyhoo not going to far down that road. So my next stage of this was when i was not affraid of this paralasis I found that I began to float, not only that but i could be anywhere I wanted to be, I only need to think about somewhere and I was there imediatly. And this also means if I only think of my body thats where I stay.
Get it?
Now going back to that trigger I mentioned (fear of being paralized). At this point instead of getting stuck and affraid of the visitor coming back, tell yourself its ok he/she isnt coming this time, I am in charge of what happens next. Which I connect to my awake life as I am in charge of my life as well and I decide what I do next. Your waking life is very connected to your dreams. So I guess my biggest point of this is: fear gives way to acceptance. This isnt based on anything other than my own experience with narcolepsy and I genuinly believe I am on the right track.
One last spiritual thought. If everything is connected and all is one surely the unwanted guest is part of the whole. Therefore it is part of you so what are you afraid of?
I hope this will help you out. If you have any more questions
I would be happy to help.
Kindest regards,
Gary
evergreen gary64098
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gary64098 evergreen
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LUXLUMENS joel15659
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All narcolepsy is is dreaming when you are awake and the sleep paralysis is because your body has gone to sleep before your brain has switched off.
Stress is what creates this, so you have to try to understand how to let go of the stress in a healthy way and let that be your focus.
Mr_shapes joel15659
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