Posted , 9 users are following.
How does everyone function with this, I have 3 tears, and now everything is on hold no procedures to help.
I cant believe the pain and feel totally ruled by this. I cant imagine going out, even when we can. I am following all the guidance but seems no progress and I'm so scared I'm stuck with this for life.
How do you life/cope??
thanks
C
0 likes, 25 replies
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barbara19257 CS1234567
Edited
I also have several tears. Absolutely horrendous. Is your diet good? Lots of fibre ? Lots of oil and water? Stool softeners? Hot baths a couple of times a day? Instillagel? Apart from doing this and applying all the creams I'm not sure there is anything else. I also am waiting surgery. Life is just awful. I really feel for you
Lajger CS1234567
Posted
get the LIS!!!
mak14989 CS1234567
Edited
hi
I completely understand want you are going through.
I have this constant burning feeling. I've literally modified my life. stopped my life and more so stopped the gym which is my life.
it has affected my life tremendously...dont do much anymore...
I'm a gay man and i always think i will be alone forever cause of this
CS1234567 mak14989
Posted
hi
i feel like my life has totally stopped.
in a way lucky we cant go put at the moment but i hope i can get out once the time comes!
also worried about relationships
x
natasha54195 CS1234567
Posted
im 3 years fissure free however im still taking movicol x 2 daily
still dread every bowel movement
GTN cream is what finally helped me wiyh lots of other things
sitz bath
veggies
dont use loo roll
Will5560 natasha54195
Posted
Hi Natasha, i know this is an old post but i was reading your past comments, very helpful thanks! i had a question about your miralax use /movicol, you said you used 2 doses a day "one in juice through day and 1 at night." my question is how did you drink it through the day, in a separate drinking bottle did you sip on it for 10 hours? thanks.
natasha54195 Will5560
Posted
hi
hope your well
yes i take movicol 2 - day
1 sachet in my juice bottle
and one before bed
im oain free at present
are you ok ???
sarah06475 CS1234567
Edited
After almost two years and botox and diletizam not healing my fissures- nitroglycerin cream and stopping taking fiber supplement helped me. I continuing to take 1/2 cap of miralax every day. I feel for you. I did not think things would ever get better but trying the nitroglycerin cream changed my life. bad headaches but worth it.
mak14989 sarah06475
Posted
Hey how long have you been on the dilt I am on week 5 and it's not helping. how long should I keep trying this for???
I have noticed if I take fiber supplements it makes my stool too bulky that may be delaying healing.
I should ask about nitro cream...
sarah06475 mak14989
Posted
I tried the diletizam for 3 months at a time a few times. I thought it was helping a few weeks in each time but my colorectal surgeon said it was only partially healing each time.
mak14989 sarah06475
Posted
yea frustrating for sure
I've read studies and they say there is no real difference in healing among the 2. but I guess it what works or not works for that person.
how long were you on the gtn? and when did it actually heal your fissure? taking it twice a day? did you just apply the cream outside or did you go in with your finger?
thanks for your time
sarah06475 mak14989
Edited
I read the same thing, that there's not a difference in healing rates between the two. Then my colorectal surgeon said the next step for me was the LIS and I requested to just try the rectiv cream. You use it twice a day and insert it inside. I started to feel better after about 8 days, with feeling back to normal after a few weeks. I continued to use it a few more weeks to be sure it healed.
mak14989 sarah06475
Posted
that's great. anything else you did differently....???
my issue at the moment are my stools are too bulky...so bought restorolax today. I have a phone app with my family doc on Monday ...not sure to ask him.to stick with dilt a little longer or try gtn....
so desperate here....I stopped wiping...been doing sitz bath twice a day if not working....
and stopped any physical activity
curtis59654 CS1234567
Edited
Get the LIS. like a couple others on here the fiber supplements made mine too bulky. my routine is 12 ounces of prune juice every night, a colace stool softener, and a bran cereal in the morning. LIS while not perfect seems to have helped me. I'll still get some itch, but I'm only 11 weeks post surgery. The nitro cream might be worth a shot, but in my personal experience non if the creams worked. I would get better a couple days then back to square one.
barbara19257 curtis59654
Posted
Does everyone go to the loo each day. I am doing and I wonder if this is why I'm not healing
mak14989 barbara19257
Posted
yea I am for sure...
but they tell you to drink lots of water...make sure you eat well with fiber etc...and somewhat be active....which all would make you go to the washroom. but key is to not strain and make sure stools are soft.
I'm actually thinking to stop eating and drinking just water for a few days. I know drastic
Lajger barbara19257
Posted
as long as it is soft....toothpaste like.
mak14989 Lajger
Posted
yea mine are too bulky....not helping my situation....just bought restorolax......and stopped psyllium fiber