Is this a sleep disorder or nightmare?

Posted , 11 users are following.

I have been experiencing very weird sleep incidents for the 9 months. Sometimes when I begin to fall asleep, I feel this pulsing in my ears (kinda like when you yawn and you can feel the pressure in your head) this is the first symptom that happens. I then begin to hear this very high pitched ringing in my ears and its so loud that it becomes incredibly painful. I also cannot move my muscles and sometimes I feel like I am floating off of my bed and doing weird contortions with my body. I am completely lucid when this happens and I always tell myself that it will end soon. Last night was the worst and it happened multiple times in a row. I remember my arm being bent and I tried to put it down but the ringing only got more intense and kinda almost punished me for trying to make it stop. My doctor could not explain to me at all so I'm here trying to see if anyone else can relate. 

1 like, 18 replies

18 Replies

Next
  • Posted

    Yes, it sounds like sleep paralysis to me. We all seem to describe ours differently but with the same few multiple core patterns. I understand perfectly about how your body is feeling. Instead of pressure, I get a feeling of evil surrounding me. Then I get wave-like sensations through my body. I've had the strange feelings like you've described, but mine progressed to getting pulled out of my body and taken flying around the room or beyond.

    I actually sought help due to my nighttime symptoms only. I started having this happen every time I fell asleep. Got to sleep deprived I'd have seizures, but I was conscious through them. My sleep specialist told me right away I had narcolepsy just by talking with me, but I did all the testing to confirm. For me, it took me being properly medicated and getting some sleep at night, for me to see just how much narcolepsy was affecting my days also. I'd see if you can get into a sleep specialist to check. They will give you paperwork to fill out before your appointment, and if you have a sleep problem that paperwork is even an eye opener. Lol. They ask if you have all these problems and feelings and things that you thought were perfectly normal, and they are describing them as something wrong.

    Sorry for the long post, but IMHO, it would be worth a check.

  • Posted

    I'm surprised your Dr hasn't sent you to a neurologist at least. Ok well I don't have the same thing as you but I do suffer with insomnia and sleepwalking if I do sleep. The ringing intrigues me can you move at all at that point? Because it would be wise to try to sit up before your body has these contortions, not the ringing sorry the pulsing intrigues me.

    Have you or are you on any medication that may contribute to your sleep attacks? Have you tried different pillows? I now find using no pillow at all is more better for me to ease into sleep. It depends, everyone is an individual. Also are you under stress, I know that sounds silly but stress can make the body do the weirdest things. I've once sleep walked ten minutes away from an ex's house. Also woke up to find out id managed to unlock the door, go outside in the rain. You should try keeping a diary of the incidents and what had occurred that day, actually logically you should keep a diary anyhow no matter what kind of day so you can maybe spot a pattern, such as an external influence (something making you feel either more sad, happy etc) or it could be food, keeping a diary will help you spot a pattern if there is one. Also can be handy to show Drs or keep tally of fits. I wish you luck, also you might try to research over the net but its best to keep level headed do not think the worse and discuss findings with your GP.Nick.

    • Posted

      Hi sorry I should've included this in the original post but yes I have seen my doctor. She wanted me to take an EEG test because she feared that I may have had epilepsy (I don't).  I noticed that if I don't get enough sleep these attacks happen. With the pulsing, it happens right before I enter the rem state so I'm like half asleep and half awake. I go to the gym, eat healthy, and relatively don't have a lot of stress in my life. Its just strange that I haven't been able to relate with anyone else with my symptoms. I'm tempted to conduct an expirement and stay up late for 2 days and fall asleep and record myself. 
    • Posted

      No need to apologise, think Mary might be onto something there with the sleep clinic. Yeah recording yourself actuallys not a bad idea. I have a Dictaphone (I woke up to find myself screaming, apparently I was screaming in French) the only thing that's ever helped me is zopiclone.
    • Posted

      This is another sign of narcolepsy. I hate to keep bringing it up but all these things you have been saying are narcolepsy signs. I was 47 when I was diagnosed, but I can look back and I had symptoms since I was a child. They just didn't get debilitating for me until later in life. They have found now that there are links to getting narcolepsy (or at least triggering it) to infections, strep, and vaccines.

      I started getting the sound phenomena too. I had started to play those soft sleep time apps when I was first trying to fix my poor sleep by myself. It was just soft flute and rain sounds, but when my attacks came on it went from soft noise to loud, unbearable ringing.

      You also stated how these happen when you are first going into REM sleep and are half awake and half asleep. This is a HUGE sign of narcolepsy. When you fall asleep, the "normal " thing is to go through two layers sleep, which take generally 1 1/2 hours. REM is the third stage, and you should be in your deepest stage of sleep as this is when your brain paralyses your body so you don't physically act out your dreams. What you describe is going into REM sleep right on falling asleep, which is how narcolepsy is diagnosed. It's what can cause hallucinations, sleep walking which they call automatic behaviors in narcolepsy as it can happen day or night, whenever you fall asleep. To diagnose narcolepsy they first have you do an overnight sleep study to get a baseline of how you sleep and to check for sleep apnea. Then they keep you the next day and you do a series of naps, two hours apart. On these naps, they measure how long it takes you to reach REM sleep after falling asleep. Five minutes or under is diagnostic for narcolepsy

  • Posted

    Yes, it's a sleep disorder. Doctors know little about it but it's experienced by something like 5% of the population.

    I started to suffer from it in my early 20s, in a time of great stress in the run-up to my final nursing exams, and I've had it ever since. That was 50 years ago and it hasn't got me yet! It tends to start in the teens or early 20s but can appear at any age. Fortunately, it tends to diminish with age.

    It's down to a minor (and harmless) brain glitch. Our brains secrete a hormone that keeps us paralysed during REM (dreaming) sleep to prevent us from jumping up and acting out our dreams. In some individuals the hormone continues to be secreted for a couple of minutes after we wake, or kicks in before we're fully asleep. The unconscious mind can sometimes produce hallucinations involving any of the five senses in this state, though this doesn't happen to all sufferers.

    The condition is strongly hereditary so it might be worth asking family members about it. However, a word of caution here. When I asked my parents about it, in a state of some distress, my father remained silent while my mother accused me of sexual misdemeanours! It was only 20 years later that I discovered that my father and several members of his family had suffered from the same thing, but it had been hushed up for fear that it was a sign of insanity. Which it isn't, of course.

    Try to identify, and avoid, the triggers. For me, it's sleeping too much or getting too hot during my sleep. However, for others it's not getting enough or sleep or dietary factors. Do your own research.

    If you want more information, you can send me a private message by clicking on the envelope icon under my avatar. Private messaging on this site doesn't expose the email address or personal details of either party.

  • Posted

    I got this a few times when I was very upset and stressed about 20 years ago.

    One night the pressure feeling ringing in my ears was so horrible painful and I couldn't move. I drifted into a dream the ringing became a dentist drill and he was drilling painfully into my eye teeth.

    I struggled to get away and suddenly popped out of my head flew over towns and countryside ended up at home (I was away from home at the time due to marriage separation .

    I felt awake but in a dream everything around was static electricity and weird greenish light. I went to one of my cupboards and was distressed to find all my camera and equipment missing, went downstairs and the washing machine had overflowed causing a flood.

    I told my daughter about the dream on the phone the following day we were both shocked as there had been a break in at home and my camera had been stolen also the washing machine had gone wrong and flooded the kitchen.

    I've had it bad a few times since but nothing as weird as that.

    I have horrible insomnia on and off and also wake within half an hour or so because I also begin dreaming too soon after falling asleep.

    I have asked for a sleep study to be done but my doctor just asked my husband if I snore and said sleep study places only check for sleep apnoea and if I had that I would snore loudly.

    Sorry I can't help, it's always nice to know others have similar experiences.

    I've found the less stressed I am the less likely it is to happen.

  • Posted

    is the ear ringing tinitus?

    just a guess.

    rich

    • Posted

      No I don't believe so...it's not constant and only happens in the little episodes I have. It is very intense and is like almost having an insanely loud dog whistle inside each ear.
  • Posted

    I think the others are right then it's a sleep disorder like narcolepsy. Seems more likely from the evidence given.

    rich

    • Posted

      Might be narcolepsy...Thing is tho that I don't feel drowsy or have "sleep attacks". I've never had cataplexy or anything like that. I'll ask my doctor what she thinks next time I see her. I still plan on doing my own kind of sleep study and see what happens. 
  • Posted

    I agree, you need a sleep assesment in a sleep disorders ward to see what the problem is.

    rich

  • Posted

    Hi Kevin,

    I'm a former neuro nurse and a sleep paralysis "sufferer" for 50 years. I recognise everything you're describing.

    Just to clarify a point that's been made in this thread. Virtually all narcoleptics have sleep paralysis (SP). Conversely, only a small percentage of those who have SP are narcoleptic. If you don't fall asleep unduly easily during the day or suffer attacks of cataplexy (when you suffer temporary paralysis and drop to the ground when laughing or in the grip of any strong emotion) then you're not narcoleptic.

    If you have either of the symptoms described in the foregoing paragraph, you need to see your doctor and get yourself referred to a sleep lab. This condition can be controlled (though not cured) by medications.

    Most doctors are amazingly ignorant about SP so I'm not surprised your doctor couldn't explain it to you. I never went to a sleep lab - partly because I'm not sure they even existed 50 years ago.

    Some sleep doctors do treat SP in the absence of narcolepsy, but this is by prescribing antidepressants rather than the amphetamine-type drugs used for narcolepsy. Once again, this is management, not cure. Up to you whether you want to sentence yourself to a lifetime on antidepressants.

    Most people with SP just learn to manage it. Terrifying though it can be when it's going on, you won't be harmed by it and it's not a sign of anything sinister. Have you asked anyone in your family about it, btw? It's strongly hereditary. As is narcolepsy, of course, and I'm not denying the two are vaguely related. But they are different conditions and need to be handled quite differently.

    Fortunately, triggers for SP - unlike some sleep disorders - are quite easy to identify. There are almost as many triggers as there are sufferers, but common ones are: not sleeping enough; sleeping too much; getting too hot while sleeping; anxiety (especially about getting another SP attack); all kinds of dietary factors; drinking alcohol too late at night; too much cerebral stimulation late at night; sleeping too close to electronic equipment or electrical junction boxes, or directly under high-tension power cables; geographical orientation of your bed. This list is by no means exhaustive, just a few suggestions. Try keeping a diary to identify what it might be that's causing your attacks.

    Like narcolepsy, it's due to a minor - and harmless - electrical glitch in the temporal lobes of the brain, hence the electromagnetic and geomagnetic triggers in some people.

    You may find it helps you to break out of an attack if you can concentrate on the position of your real body, as opposed to the "other" one. I can sometimes do it by making an effort to wiggle just the tip of my tongue or the ends of my fingers.

    By identifying - and then avoiding - your triggers you should be able to bring it down to manageable levels, though SP is definitely for life. The good news is that it tends to improve with age, though I still get one or two mild attacks per month now and I'm 72!

    Feel free to private message me if you want to (click on the envelope icon under my avatar). PMs on this site don't expose the email address of either party.

    PS: Why did I put inverted commas around "sufferer" in my opening para? Because once you calm down and accept it, all sorts of interesting phenomena like lucid dreaming tend to accompany SP. I quite miss it these days!

    • Posted

      Just wanted to say thank you for putting the other side out there. I can get overzealous when I hear symptoms like this. I thought I was going crazy all my life, and you don't feel safe going to most doctors and telling them you are seeing things and feel a sense of oppression. Most doctors think there's nothing wrong and that everyone is tired and has sleep paralysis occasionally. Which that part is true. It just took me 45 years of going through this and not being able to talk about it. It finally got to the point where I got less than an hour sleep a night, and that was broken sleep, until my life was so miserable I went to the doctor. Sleep specialist was the third doctor I saw after my EEG with a regular neurologist. He knew what was wrong right away but the tests proved it. I just want to save anyone from going through that he**. It's not curable, but Medicine really helps. You forget what it feels like to wake up after a good rest. I panicked the first time it happened to me after starting my meds.
    • Posted

      Hi Mary,

      Yes, I know how terrifying it can be. Mine started suddenly in the run-up to my final nursing exams at a London teaching hospital in 1967. I ended up being frog-marched in front of the head of the hospital's professorial psychiatric unit, who gave no explanation, just threatened me that if I ever breathed another word about it I'd be prevented from taking my finals for all time. I somehow managed to get through and opted to spend my obligatory "staffing" year taking the hospital's internal course at their specialist neuro unit. It was there that I finally stumbled across a one-para reference to the condition in a neurology text book. Till then I'd never heard of it. I never thought I was going crazy, but although I've always been of a scientific bent, my hallucinations (mainly tactile and very painful) were so convincing I'd even started to wonder whether this was something supernatural!

      You're right in saying practically everyone experiences this once or twice in their life. About 15 years ago I spent a couple of years in an informal on-line counselling service for people, mainly youngsters, who'd started getting SP and were terrified. There were a couple of psychologists in the group (or so they said, though one never knows on-line, of course). One said that everyone experienced it all the time but, like dreams, they never remembered it. That would make sense to me, as it's associated with REM sleep, like dreams. Most people have very poor dream recall, with many insisting they never dream at all, yet experiments have proved that if you wake a so-called non-dreamer immediately after a period of REM sleep, they'll be able to tell you what they were dreaming about.

      It can still freak me out even now. Most of my attacks have always happened either towards the end of the night or during afternoon naps, when I'm in a lighter sleep. I can manage these as I'm immediately all there and know what's happening. But I still get occasional attacks very early in the night, when I'm going into my first REM period and am very deeply asleep. These can be a problem, as I tend to take them for real!

      I really enjoyed the lucid dreams I used to have when I was younger. These go hand-in-hand with SP. However, as the SP has faded, so has my lucid dreaming ability, which I find rather sad.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.