Is this going to get worse??
Posted , 6 users are following.
Hi everyone
Im fairly new to my diagnosis of fm, in my case it is secondary to 2 autoimmune disorders. I feel shattered all the time and sometimes I can't lift my head off the pillow for days. Im 33 and had a disc removed when I was 27 and so have struggled with chronic pain for years anyway. Im on immunosuppressive medication and also medication to tKe the edge off the pain plus I can take tramadol or dihydracodeine. All of my joints and muscles hurt everyday but I am still more mobile than most on here, it seems. What id like to grasp, is how can I expect this to progress as I get older, in others experiences? It is possible I will remain as mobile as I am currently or is it more likely to get more and more difficult? I only use a walking aid when my lower back goes but it does effect my neck and shoulders to the point where I cant turn my head properly or lift my arms, but this isnt every day or even every week. I am still clearly less able than 'non sufferers' but I would just like some idea of what I can expect for my future? Any advice or to learn of others experiences-although I appreciate everyone is different- would be really appreciated. Im feel like im gradually going downhill and its effecting my career and life overall. I know im not dying but I dont feel like im living much fibrat the moment either.
0 likes, 18 replies
doris7 kate288a
Posted
I was diagnosed with fm when I was 30, but I have been ill probably all my life. I also have 2 other autoimmune conditions (hypothyroidism and PCO, which are manageable and not very harmful). I can say I got a bit worse over the years.
I've had low pain threshold and hypersensitivity all my life but now I'm clearly more often in severe pain and have some mobility issues, though I don't use walking aids as my doctor told it would damage my spine.
I haven't found any information on how bad it can actually get, however, most doctors say our physical status doesn't change.
I'm not extremely optimistic about the future, I'm worried about not being able to work or to fend for myself, but I do everything I can to postpone that moment. And the hope is that if I've managed to survive 34 years in a relatively good state, I may be able to plod on for another 30
kate288a doris7
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Thank you so much for getting back to me. It sounds like we're both worried about similar things, namely our futures. I too have always been a bit more sickly than most but just always put it down to bad luck. It's true what you say though, I've struggled through this long so who's to say we can't do another 34!
terig kate288a
Posted
i live in Toronto Canada, i used to winter in West palm beach florida, but could not make it down this year from all the aches and pains.....please enjoy your summer, use hot water bottles and freeze packs for your aches and pains it really helps...good luck to you.
kate288a terig
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Thank you for your kind words. I live in South of England, so not too hopeful about a great summer but our winter has been much milder than yours I bet. I expect.my toes would drop off if i had to live in such a cold place. I have some family in Toronto. What an amazing place and super hot summers if I remember rightly ( I visited when I was 17 for 6 weeks). There isn't much to miss where I live but I feel for you being in such a wonderful place and not being able to fully enjoy it.
I will try and remember your words when I'm having 'good day' whatever that is
terig kate288a
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i know what you mean about not feeling as though you are living much. I have not been to any social events for a long time and keep vowing to at least o to a pub quiz
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kate288a Xxxxxtttttttttt
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Don't worry about the spellings! We have bigger things to worry about
It sounds like everyone finds their own way of coping with things...even when they get worse. I suppose I'm still fairly new to all of this and am trying to get my head around it all before I can start figuring out what makes me feel a little better. I've noticed my job has a particularly bad effect on my stress levels and I seem to be going around in circles with it..feel better, go to work, get stressed, pain gets worse and tiredness unbearable, go sick again. It's awful. I've struggled so far to get to level I am at in my job but I think I need to find something that has less stress related to it.
I suppose I need to start a diary or something and note what make me feel worse and what doesn't make me feel so bad. I also need to lose weight but have out most of my weight on due to different tablets I have been on for the last few years...anti depressants, amitriptyline for nerve pain and plus the tiredness makes you think you're always hungry. I'm lucky to still be a size 16!!
Having to default on any payments is always a worry, especially when you can't physically change anything about your situation.
I have a mortgage too and highly suspect I will be in a similar situation in the foreseeable as I have just been signed off for 2 weeks after I have a week self certified. I'm struggling with work and home life especially after just being involved in a minor car accident. All the hassle of having to deal with insurances and buying another car etc. My job is really stressful but I am sure they won't let me reduce my hours as it's a full time role. Everything is just very 'what if' at the moment. I just want to be better equipped to cope so am getting some counselling next week.
Kate
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I have decided that whatever it costs I will have a holiday soon so that will be nice to focus on! We all need to dream! Lol
take care x
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terig kate288a
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nice to share with you.
Xxxxxtttttttttt terig
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