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Is this going to get worse??

Posted , 6 users are following.

kate288a
kate288a

Hi everyone

Im fairly new to my diagnosis of fm, in my case it is secondary to 2 autoimmune disorders. I feel shattered all the time and sometimes I can't lift my head off the pillow for days. Im 33 and had a disc removed when I was 27 and so have struggled with chronic pain for years anyway. Im on immunosuppressive medication and also medication to tKe the edge off the pain plus I can take tramadol or dihydracodeine. All of my joints and muscles hurt everyday but I am still more mobile than most on here, it seems. What id like to grasp, is how can I expect this to progress as I get older, in others experiences? It is possible I will remain as mobile as I am currently or is it more likely to get more and more difficult? I only use a walking aid when my lower back goes but it does effect my neck and shoulders to the point where I cant turn my head properly or lift my arms, but this isnt every day or even every week. I am still clearly less able than 'non sufferers' but I would just like some idea of what I can expect for my future? Any advice or to learn of others experiences-although I appreciate everyone is different- would be really appreciated. Im feel like im gradually going downhill and its effecting my career and life overall. I know im not dying but I dont feel like im living much fibrat the moment either.

0 likes, 18 replies

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  • alison37384
    alison37384 kate288a

    Posted

    hi kate      its good to see someone that has the same as yourself but not in good circumstances. i too have had a 2 discs taken out my spine in 1997 then in 2009 had to get plates and bolts in my spine ie lower back.  i have fm but only just been diagnosed with fm after sufering for 3 years. i am under the pain managment clinic at my local hospital. i am there every 4/5 months for injections in my head. this only works for about six to eight week with only slight pain. but when its time to go back to the hospital you need the injections again because i am that sore.like the rest on here i embrace the good days. im on a few tablets also morphine patches which eases the pain. i too are apprehensive of the future. :-)
  • hugh07153
    hugh07153 kate288a

    Posted

    hello there, ive just joined this myself, can you please read my discussion called do i have fibromyalgia and let me know your thoughts as i have many of the same issues as yourself. i have had bo back surgery but have sufferes for a few years now with severe back pain. how did you go about getting surgery on your back was it a result of xrays or? any info would be a great help thanks
    • kate288a
      kate288a hugh07153

      Posted

      Hi there

      I'm at work at the moment but will try and have a read this evening. In relation to my back surgery, I was lucky enough to be working for a health insurance company who provided health care to their employees. I basically got fed up with my GO fobbing me off and telling me I was too young to have problems that I 'told' them to refer me to a private orthopaedic surgeon. Once referred my surgeon sent me for an mi which concluded I had a prolapsed disc with an annular tear..They tried 2 epidurals in the space of year but these failed to give any long term relief so surgery was the only option.  

      Hope this helps

      Kate

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