Is this the end?
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I've been told there's nothing can be done to improve my situation. I have permanent atrial fibrillation and atrial flutter and although I have a pacemaker that does all the work I feel ill all the time. I had an AV node ablation in 2005, and had a Star Edwards valve put in to replace my mitral valve in 1985.
1 like, 10 replies
BStanding56
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Mags71
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BStanding56
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David_B
Posted
Tenbells
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BStanding56
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David_B
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I take 100mg of amioderone every 2nd day and am ok and it keeps me out of AF and have done for 12 months. I was on 100mg a day and 200mg a day before that. David B
BStanding56
Posted
David_B
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You really need to discuss your dosage with your cardiologist before you change it, there may be reasons for the dose you are on that you are not aware of. Suggest your plan to him and give him your reasons and see what he says. I have found that you have to be your own advocate as no one else can do it better. Remember everyones problems are different in some way so what is good for one person may not be good for another. In saying that it is still really good to be able to compare other peoples experiences with ones own as sometimes there may be a common denominator that proves helpfull.You are not alone believe me.
Because my chemo did my kidneys in I haven't drunk alcohol for 2 and a bit years. It also changed my sense of taste so wine , beer and spirits taste absolutely horrible to me still. Also I haven't been able to stand the taste of coffee untill recently and am just "learning" to like it again so I can't really say if those things trigger AF. What I can say is that I haven't had AF since I spontaneously reverted to sinus rhythm quite a while ago. I also haven't worked since my treatment. Can one deduce from this that the reason I haven't had AFis due to the fact I haven't had any alcohol, coffe or stress, I don't really know , probably not, who knows but you could give it a try, you have nothing to lose and your overall health would benefit from abstaining from them anyway. Be kind to your body, walk every day and your heart might just reciprocate, mine did!!. Be good and keep well. Remember ,the cup is always half full and never half empty!.
David
BStanding56
Posted
Regards
Beth