Itching Unbearable

"I also know there is a dietary component for me but haven't gotten that part figured out yet"

From your description, I would say you need to take drastic action immediately! Most women with LS do get relief from the creams you are being prescribed, however as it appears this isn't working for you, you need to analyse and review your diet.  

Not everyone has to reconsider their diet, however unfortunately, many women most definitely do.  You should start, by removing as much sugar from your diet as possible (remember we don't need extra sugar, as sugar is already in so many things that we eat anyway) and give this a try first. 

This means no sweets, cakes, deserts etc and stick with it rigidly. Sugar is actually one of the worse things for Lichen Sclerosus, however if after a couple of weeks or so, you are not having any relief, then you should try another approach (but don't go back to consuming sugar again) like going Gluten free, again if there is no relief there than I would suggest then removing Dairy products from your diet.   

When women such as yourself are in such pain and discomfort, as you have described in relation to your current condition, it always surprises me, that they will try many different things, however will not change their diet, which quite often, and actually more often than not, can either be the sole cause, or a major contributor to their flare- ups.

Hi, I know how you feel, I find if you can keep the area as dry as you can eg after urianating, bathing etc,a small dusting of talcum powder seems to help, and prevent the itching, hope this helps

I found the ointment worked for me when the cream did not. Clobetasol/Dermovate that is. I hope you can work out what works for you. Definately diet is a contributor. I also found aloe vera gel helped to calm the itch along with an anti-histamine. There are several types on the market so try various ones till you find one that works for you. Cetrizine hydrochloride, loretidine, and chlorohydride pheneramine. or something, anyway look at all the meds on the pharmacy shelf there are many different types which all work for different things. cetrizine hydrochloride is considered good for reduing inflamation and may be the one you should try first. There are many makers of this. hppf ;ivl/

Kimmiesue, glad that the benydrl worked for you along with the sitz bath.  I remember as I walked out of the gynea's office..the nurse told me to keep the area dry.  I use cornstarch for that...as I've said before.  Good luck to you.

 

A big, bad scenario for me is sweat! Twice now I've been in a situation that I was really sweating. (This weekend again and I'm still fighting to get on top of my skin's angry protest!) When I'm home I tend to quickly go shower the area off and can avert the reaction but it's more difficult when gone. I need to learn to use my little bottle of spray in those cases. (Water; many use baking soda solution in a small spray bottle)

Body fluids need to be kept off the skin as much as possible. I spray off my lower regions after lunch generally and apply some soothing oil or cream. Also I apply an oil or Vaseline or emuaid after many but not all bathroom visits.

And, good for you to limit sugar. It's really worth it. I also cheated in that too much recently and combined with the sweat I'm paying for it. Add a bit of stress to that mix yet, and it can produce an LS storm!

You might consider an oral antihistamine like benedryl. I take it at night sometimes if I  have a flare up.  It's not a cure but does suppress our autoimmune response by blocking histamine production in our bodies. The histamine is what makes you itchy.