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Just be diagnosed with fibromyalgia

Posted , 9 users are following.

kerry72921
kerry72921

Hiya. I'm new here. Just been diagnosed with fibromyalgia, didn't know what it was until I started to do some research and realised I've had the symptoms for quite a while and being overweight doctors put it down to that. Seen a new doctor and feel relief that someone is listening to me. The worst pain I get is in my neck and shoulders which is constantly there! But also elbow, hip, ankle and big toe! Has anyone been diagnosed then it's disappeared? Can anyone recommend treatment to ease it? Hubby saying "oh a good massage will do" however it's too painful for anyone to touch because he can't physically see what's wrong it's hard for him to understand. Trying to get a grip of things!

0 likes, 19 replies

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  • nevelyn31179
    nevelyn31179 kerry72921

    Posted

    Hi Kerry,

    So sorry to hear you was dx with this .. it is challenging some days we all have to find what helps and positve and people who support us do help us alot. Thank God for my hubby...

  • sukes
    sukes kerry72921

    Posted

    Hello Kerry,

    have you seen a Rheumatologist yet, if not ask to be referred to one as they are much more knowledgeable about the condition than a GP.

    The area's you mention are where most of my pains are, the hip being the worst.  To be totally honest, for me anyway, medication only really numbs it a bit, it doesn't take away the pain.  I recently tried hydroxychloroquine, but had to come off after almost 7 weeks as it was making me really ill.

    Not many people understand the illness, because they can't see it, but ?I'm one of the very lucky people that  have a really supportive hubby who does understand.  If you havent already seen a Rheumatologist, do it as soon as you can. x

  • jillian41791
    jillian41791 kerry72921

    Posted

    Yes, we find it hard for others to believe us as we look pretty fine on the outside...my suggestion is to find a Dr that knows about fibro and ask if they can refer you to see a rheumatologist.

    Good luck Kerry!

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