just been diagnosed as having copd and only 40
Posted , 7 users are following.
Hi I have just been diagnosed as having copd i am only 40 and been told i am quite young to have this but my question is this i get chest pains sometimes very bad to the point that if feels as if some very heavy weights have been put on my chest is this normal as i do get upset when i have these thanks for reading
0 likes, 17 replies
Chikin62 kimberley_34076
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if it persists get it checked out with your doctor or respiratory team.
jude65855 Chikin62
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DawnDedee jude65855
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michellehyams kimberley_34076
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kimberley_34076
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michellehyams kimberley_34076
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jude65855 kimberley_34076
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Try and find one in your area, I can assure you it's well worth it
susan71068 kimberley_34076
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jock9250 kimberley_34076
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DawnDedee kimberley_34076
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If you are sure that your heart checks out alright, then it is quite normal to feel the symptoms you describe. Since I was born with bad lungs and am now 56, I have grown used to the sensation. One wonderful thing you can do for yourself is to practice breathing techniques as with yoga and meditation. When you exercise, count your breaths in and count out the exhale. Teach yourself to remain calm so that during your worst spells you will retain control, not the disease. Never cry during a spell because it makes it 10 times worse. Body massage helps relax tremendously, even informally when someone can rub your neck, shoulders, head and the long muscles down the back.
If you have medication to take, do it faithfully. I sure hope the best for you and am sorry you have to suffer so.
Dawn
jude65855 DawnDedee
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Go to the experts on this, it's too hard to describe in writing, but basically it's about NOT trying to fill your lungs to full capacity, breathing from the WAIST not the upper chest and focussing on breathing OUT fully rather than how much you breathe in
DawnDedee jude65855
Posted
One group teaches one way and another teaches another way. For every expert scientific study there are dozens more experts that say the opposite.
After living for 56 years with diseased lungs from birth and having never known what it is like to breathe normally due to no fault of my own, I have seen trends come and go.
The reason why I suggest breathing exercises to others is so they can learn about their lungs and become able to train themselves to keep a regulated breathing pattern during tough times so that they can avoid complete panic. It is one way to take control over the disease instead of it doing all of the controlling. Breath control is so powerful that it can make childbirth go easier without drugs or spirals.
In those breathing exercises one must do what they can do just like any exercise program. I have not asked anyone to breathe deeper than they can and exhaust themselves. Everyone has a depth of breath that feels comfortable to them and there is nothing wrong with maintaining what good lung function is left. By doing breathing exercises the diaphragm is also being strengthened which must be so in order to breathe out, as completely out as possible which as you know is crucial.
When I was young I wrote songs and sang at the piano and recorded them at a studio and now they are like a gift because I designed them to exercise my lungs so completely with long notes for exhale, that if I sing along with myself today, I literally breathe better! There are many forms of breathing exercises and keeping the lungs moving.
For instance, when I take a walk I count my breath in with each step I take, usually to the count of 6, then I hold it for 6 counts and then I count to 12 on my exhale because I naturally have longer exhaling. Everyone else's numbers would of course be different. But it works! The more I train myself within my limitations the easier it becomes to exercise and stay calm and bring myself to calm during bad scary exacerbations.
Exercise will never undo the lung disease, but it helps the body become accustomed to movement using less oxygen which also creates a sense of calm.
Breathing exercises are totally beneficial.
Jude, this is a forum of sharing, caring and supporting each other through one of the scariest sensations on earth; not being able to breathe normally. It is not a place to insult another as you have me.
Look at my picture. Medically I should be blue and have had more than one specialist marvel that I am not blue or dead. I am not blue because I have fought, researched, had the very best pulmonary specialists the United States has to offer, I have experimented, I have been on every single medication science has to offer for my condition from 1958 till now. As a baby/toddler I was used as a guinea pig for clinical experiments that have developed the excellent lung function study machines that the world still uses to determine if disease is present and to what degree and I have lived about 65% of my life in hospitals as a patient, even recently, and I decided early that this disease would not get the best of me so help me God! And by God my efforts have paid off!
Jude, I AM an expert in my own right. I would advise you to never ever take the advice of just one expert or group, and to remember the world is full of teachers who teach about something they have never experienced themselves and also, when it comes down to it, there are always exceptions to the rules.
Sincerely,
Dawn
jude65855 DawnDedee
Posted
I was merely passing on the information I was given by physiotherapists who specialise in COPD, which was that trying to fill the tops of the lungs is tiring and pointless and that emphysema patients would be better to breathe with the diaphragm because there are actually muscles there which can be strengthened, unlike the top of the chest.
hypercat kimberley_34076
Posted
You are young to be diagnosed with copd and you need to tell your doctor to check you for Alpha 1. This is a rare genetic disease and as only 3% of copders have it you probably don't. But it should be standard to be tested for this because you are young for this diagnosis. It is only a simple blood test. Tell your doctor you should have this test.
You can also get this done online free but not sure of the site but have a google. x
hypercat kimberley_34076
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