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just been diagnosed with cervical spondlyosis

Posted , 14 users are following.

susie7777
susie7777

I have it in a number of levels.... feeling a bit low as not knowing what to expect or do about it as my doctors dont tell me anything. Im 46 and really worried and feel alone.  

1 like, 20 replies

20 Replies

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  • philm45
    philm45 susie7777

    Posted

    Hi Susie,

    I wish I could respond, but I am also a newbie here and recently diagnosed so just sharing a word of sympathy and assuring you that the knowledgeable folk in this group will certainly give you no nonsense, strait forward opinions, as that is what I received. Give it a day or so and the group, I am sure will respond, probably with further questions initially but with some comon sense answers thereafter.

    All the best,

    Phil

    • Brevis
      Brevis philm45

      Posted

      Hello Susie.. This forum is brilliant for people with similar problems, Everyone is really supportive. Did you have an MRI scan? Is that how you were diagnosed? You may be offered epidurals which can often help to ease the pain.  Have you seen a specialist as yet? What are your symptoms?  You are not alone!!

    • susie7777
      susie7777 Brevis

      Posted

      I had a spinal MRI scan and it shows i have it at levels C5/6  and C6-C7 causing narrowing of the neural on both.... my symptoms were pain in my neck and on lifting my arms up, burning feeling in back  shoulder blades and stiffness. im also getting sharp pains in my neck/throat too.
  • Benggo
    Benggo susie7777

    Posted

    Join the club Susie,it does get you down and it's painful with it.I always think there is some one a lot worse than myself,I just know how you mean with doctors,some are really good but a lot could be a bit (a lot) more sympathetic.

      Myself,I just keep taking the painkillers,as few as possible otherwise that leads to another problem.

      Be assured you are not on your own,if that is any comfort.

  • pauline87
    pauline87 susie7777

    Posted

    Had CS for a long time and managed to live with it but the last year it's been very painful had a X-ray and it showed severe CS. Get no joy from my doctor he says you have to live with it you can't get a new neck. Some days it's so bad and I have to take the strong painkillers. I have Amitripline at night it helps you sleep but dosnt do much for the pain. There is a very good website for CS on face book as well. They are wonderful on there everyone is very supportive. You can get lots of info about CS on there. Don't feel alone there are lots of people with this condition. If you want info there is always someone on here who will help you good luck from Pauline xx
  • juliet10258
    juliet10258 susie7777

    Posted

    Hi Susie

    i normally just read other people's post on here rather than write my own but I thought I would reply as I also have spondylitis in C5/6 and C6/7 and C7/8 and have the same symptoms as you.

    I am now 42 but was diagnosed when I was 35.  I'm sure that your doctors and consultants will offer a wide range of treatments and hopefully some will work for you.  The one thing this site does is make you realise that everybody's experience is different.  Some get periods of no or little pain while others have constant pain.

    After 7 yrs of seeing doctors I do t think there

  • juliet10258
    juliet10258 susie7777

    Posted

    Sorry got cut off.  There aren't any straight answers everybody's experience is different.

    i do understand about feeling alone.  I had to give up work because of the spondylitis 6yrs ago and still feel very isolated.  The only people I talk to are my daughter who is 22, my husband and my dad.  Things were made worse when my mum died of cancer last year.

    try and stay positive and take some of the good advice given by members of this site who have more experience and knowledge than me.

    hope this helps.

    juliet xx

    • susie7777
      susie7777 juliet10258

      Posted

      Thankyou juliet :-}  yes that helps alot and im sorry about your loss of your mother. I dont have much support family wise as my son is 17 and living the teen life bless him. xxx
    • tracey64776
      tracey64776 juliet10258

      Posted

      hi juliet, sorry to hear of the loss of your mum, its hard isnt it, my dad too died of cancer last year, its a terrible illness, but please dont feel like you are alone ever, none of us might know each other personally but we all have something in common, so if you ever want to vent please feel free to pm me, maybe i could even give you my number or email , that if its allowed, all the best love tracey x
    • juliet10258
      juliet10258 tracey64776

      Posted

      Hi Tracey

      thanks for your reply.  It has been a tough year.  I find it hard to make my family understand how I feel as it is hard to describe the constant pain.  I have often wondered if it is ok to give out email addresses, maybe someone could let me know as I would like to have someone to contact and talk to.

       

  • juliet10258
    juliet10258 susie7777

    Posted

    Hi

    yrs, I understand teenagers.  There are always people on this site who will talk to you.  I would be happy to.

  • lesley1954
    lesley1954 susie7777

    Posted

    Hi Suzie. I am also a sufferer of cs, and have been since I was 30yrs old. I am now 61 and mine has steadily progressed. I am due to have a CT scan tomorrow as I have bone spurs that need removing. I have not been able to work since the age of 42 as it has now become really bad. I also have it in my lumber spine as well, and it is really painful. I am taking a concoction of medication at the moment, 32 tablets a day, and I am still suffering. I have never been offered the injection though, why, I dont know. Keep on posting on hereand you will get plenty of advice. You take care and good luck
  • jeanette43594
    jeanette43594 susie7777

    Posted

    Hi susie

     You will not be alone as long there are sites like this to offer other suffers help and guidance or maybe just to be there when you want a bit of a rant. I have sufferd for 50yrs (60 now) and I have learned to live with it it has not been easy I wont lie to you it has been hard some days are worse than others but when you know there will be no change but it will get worse in some cases you do and can survive. As for your son I have been there and done that three times give him time and he will come good for you lol. Next time you got to the drs make a note of what you want to ask him believe me it works,and dont be fobbed off!!. I found if you are going to do anything take your pain killers before you do it it helps to keep the pain down. Try heat, see about accupuncture as well also physio. your posture changes because we stoop when we are in pain it is a natural thing to do dont as it makes it worse.Try a pain clinic if there is a one near you and your gp can refer you as you will see a pain consultant there. If you just want some one to talk to I am here if needed. So take care hun and hope to read your next post soonsmile

  • Iwan
    Iwan susie7777

    Posted

    Hi there

    i have cervical spondylosis from c3 /c7 and stenosis with myelopathy and was diagnosed last yr after 14 yrs of thinking it was muscular ended up in a and e and was finally diagnosed after x ray what I would advice is push and push to see a specialist get their name and get a cancelation I would be still waiting now  if  I didn't push the issue ... And don't think your alone share your thoughts and issues with people who understand and never forget there is always a light at the end of every dark tunnel 

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