just come out hospital following attack pancreatitis, any tips for recovery?

Your the first person I have heard of that has Sam condition as me,can I ask has your cysts caused pancreatitis in you?

Cathy

I'm not sure if you got my message I am early days of using my iPad. If you didn't I will send it again.

Hi wuldyou send message again please.very interested in your journey so far,you are the first person I know who has serous adrenomas and pancreatitis like me. So any tips,thoughts advice so welcome.feeling pretty rough at the moment. Thank you

I'm sorry to hear your feeling so unwell. I was 59 years old when the condition started, I had severe pain on the left side of my ribs, I had lost a considerable amount of weight in weeks. So I knew I needed to see the GP who sent me straight to the hospital. They first thought I had pancreatic cancer with the first set of tests, thankfully It wasn't. That was when they found I had 5 systs and pancreatitis. When the specialist spoke to me he said there wasn't much they could do. I was given Creon, tramadol and morphine. It was when they tried to take a biopsy that the first systs burst, the second one burst around Christmas. You have given me a thought, because I have not connected the last episode with the systs bursting. The last 5 years I had no idea other people was also suffering the same as me.

Thank you.

Hi,I'm sorry to hear all the suffering you've experienced.I'm all a bit new to this.diagnosed year ago with serus adrenomas in pancreas,then gallbladder stopped functioning correctly removed march2012,then lots episodes abdo painbloatting,vomiting and eventually so badaditted hospital and diagnosis acute pancreatitis given.so far no scarring and no other origins involved I don't drink having very low fat diet and supplements trying to do as much as I can to stop/reduce further attacks,its all very frightening and so much conflicting adviceevn Drs have different ideas keep in touch please,as your the only person who has same as we would be good to support each other.cathy

Cathy it would be good for me also to keep in contact. I think I don't know as much as you. I was so happy to be told that it was not cancer, that I didn't ask enough questions about the pancreatitis or the cysts. By the way I also have a gallstone that is small and nothing to worry about. The specialist I saw was very kind and said,I could via her secretary, make an appointment or ask questions over the phone. The time is right and I will ask what questions I need to know, naturally I will tell you and others the outcome. It seems to me we are struggling without the facts we need. Keep your pecker up.

Thanks for your helpful advice.ratting little and often,not much appetite as only came out hospital yesterday. So exhausted and belly still enormous,swollen and uncomfortable.pain mostly OK,which occasional spasms still on tramadol and other drugs. Will take time to settle.

I am a 13 months on from my last attack that nearly finished me. I am still in pain and have bouts that give you pain torerettes.

I was lucky to meet two others in hospital who gave me more advice than the doctor's.

like you havr have to learn to live with the pain. And the level of your attack is important for damage and pain bouts.

the worst thing is talking to people that haven't had the attacks dont understand. remember that the enzymes travel in your blood and attack liver lungs etc . Be aware of things like regular chest infections etc. I have been getting them every four to six weeks and turns out to be caused by the above.

Thanks robin, I have found that only folk who understand this illness are folks with it.discharging Doctor said stop drinking and take no fat.I don't drink,seems everyone thinks that anyone with pancreatitis is a drinker,

its amazing how many times they ask the same question. Do you drink? NO ITS ON MY NOTES PLEASE READ before you end up chopping my leg off lol

Loved your reply,so very funny.

Last time i looked had two legs.

lol I am double buggered as I have a 22 month old and an eight years old. And my wife has bipolar and Brugada syndrome which is a heart condition that causes sudden death syndrome.

I thank God for tramadol and paracetamol and COFFEE. In true British spirit onwards upwards.

The comical side is the involuntary swearing when you get a sharp pain and people look at you

Mmmmmm morphine oramorph paracetamol and coffee are some of my best friends. The first i see twice daily the second only when a crisis occurs but the third is always at my house lol I too suffer from involuntary spasms of bad language from pain. where do these words come from???? i dont usually use them.(only when no one can hear me anyway) Also agree with the stiff upper lip expectations of people who dont understand I think cause you cant see the damage and pain that pancreatitis causes they dismiss it. If I had an actual disfigurement from it they would probably just stare and tut or say oooh bless you lol