Posted , 9 users are following.
Thought I'd introduce myself, as I've been reading through the forum and gained a lot of insight from it so far.
I was finally diagnosed with mono last week, after a nightmarish month of labs and diabolical symptoms that didn't seem to make sense. But my PP has now confirmed Epstein Barr - and in my case, the second time I've had it (the first was when I was a teenager, and it was nowhere near this awful).
I'm past the acute sore throat and fever, but to be honest that was a breeze compared to the joint pain, muscle pain, lack of appetite, and my GOD the anxiety. I've never experienced anything like it, and I have to say that it did a lot for my sanity to find this forum and discover that this is prevalent amongst lots of people battling this illness. I honestly thought I was losing my mind. I told my PP last week that I was convinced I was dying and that I wouldn't get to watch my little girl grow up.
Since the diagnosis I've been able to manage the anxiety a little better - I know what it's stemming from now. But I have to say, the pain and the shaking are REALLY freaking me out. The shakes aren't too bad at night, but there's always this low-level 'hum' in my muscles, especially my hands. I also get muscle twitches out of nowhere, and have a hard time convincing myself that these things aren't just a bigger problem hiding away beneath the mono (the paranoia isn't very pleasant either).
Has anyone else had the dreadful shakes? I had pins and needles in my hands at the very start, but that went away. Now it feels like my nervous system is just shot. I've asked my PP if I should maybe see a neurologist for peace of mind.
Thanks for listening - hoping for a speedy recovery for everyone living with this hideous illness.
0 likes, 18 replies