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aleakay aleakay

Just did my 1st Humira Injections

So I just met with my nurse ambassador and did my first round of injections for my HS. Firstly, do your research before considering Humira. Let me start off by saying I have A LOT of tattoos. One of which is a HUGE piece covering 3/4 of my top left thigh. I have no fear of needles. However, it is a completely different feeling pushing the button to do it yourself. The needle did not hurt at all. The medication on the other hand... hurt like a b***h. This is going to take getting used to for sure. I had to do two today and two more tomorrow. Then I have to do another two on the 15th. After that, I have to inject myself once a week for the rest of my life. (Hopefully not) I am not thrilled about doing these shots. I did not expect it to hurt soooo bad. But I will keep doing them. Dealing with HS is way worse than an 10 second shot. I will try to keep updateing the improvements as I go.

Stay awesome <3

21 Replies

  • anne52249 anne52249 aleakay

    Can I just ask what stage r you and how long do you have to do the injections for ??

    • aleakay aleakay anne52249

      I am in the beggining of stage 3. And according to my derm these disease never gets better it only gets worse over time. She said that I would likely have to take Humira the rest of my life. I hope not. Hopefully, more information will come about this disease. I did two yesterday. I have to do two more today and then on the 15th of August two more. After that it will be once a week.

    • anne52249 anne52249 aleakay

      I see , I can imagine it would get worse what with all the scaring and leaking channels , mines stage three in my groin and around my vagina so awful and painful , can't wait to see what the dermatologist says and see how your doing with this drug. 

      I didnt know it was such a long term treatment , but anythings got to be better than this, have you noticed any difference yet , or dud they say how long it takes to start.

       

    • aleakay aleakay anne52249

      I have the same problem areas including under my arms and inner thighs. I used to be very self conscious about it. I felt like I was a alien. None of my friends had this issue. From my knowledge no one in my family has dealt with this either. Humira is really a last resort. I went through all the creams and pills. Nothing worked. Birth control helped me a lot. I havnt gotten any new abcesses. But the ones that are there are a pain. I havnt noticed a difference yet. My nurse says it could take up to three months to really see a difference. The shot is really painful. I did the first two in my thighs. I am going to try my stomach tonight and see if that is less painful. This is pretty much my last hope. I will post if I see any improvements (: 

  • matt03271 matt03271 aleakay

    Hey again aleakay!

    Glad to see you are doing your first Humira injections, the drug is really a miracle drug! The medicine does have some pain to it when it is getting pushed into your system but it only gets easier from here and less painful. After doing it for a year I can say that after the first month they only get easier. Hopefulyl they do! I also hope this amazing drug works for you as it has worked for me! 

    • aleakay aleakay matt03271

      I hope so too! I am really looking forward to seeing results. I am going to try the stomach verses the leg today for my next two. Do you have and recommendations to make it less painful? Its not horrible but it deff. has a kick to it.

  • anne52249 anne52249 aleakay

    Hey 

    not heard from you in a while and wondered if you were ok and how it's going ?? 

  • levis1993 levis1993 aleakay

    Yeah i would be intrested in knowing this aswell.

    I have my brother under tratement,i think for stage 2 of the disease. He is getting zineryt for the cysts and as he cant get antibiotics at the moment till his liver parameters go on normal is getting twice a day a tea of turmeric , 250 ml water + 1 teaspoon of turmeric on each. Since 20 days getting medication.till now almost all cysts are closed,under his armit are almost desappearing (even the marks cs cysts got closed) . The medication of zineryt got given from his dermatologist,while the turmeric thing was sth i came across while checking on forums.

    He has this illnes since 4 years,only the last one even in other body parts appart his face, and only now we could get its name bcs before it would get misunderstood as acne.

    Anyway, i hope it gos away with time, even if now i saw that after medication turmeric can keep it under control. Till now he is getting deffinitely better. I will update later aswell.

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