JUST FOUND OUT GOT LS!
Posted , 7 users are following.
Hi Everybody,
Just joined today and in need of a sanity check.
I have recently experienced lots of pain during sex and also bleeding. My skin has been splitting and sore so decided to go to GU Med the other day, saw a lovely consultant who diagnosed LS. Sent me home with steroid cream, leaflet and emolient to wash and go back on 4 weeks. I have noticed considerable shrinkage of my labia minora and frightened to death that everything will disappear!
She said had I come in 6 months it could have been so much worse. I am also taking oral chemotherapy for a kind of blood cancer. been on the medication now for 12 years. Feel a double whammy thrown at me now and really rocked me. My partner said to me ' ah well at least its not life threatening' !! I have now fallen out with him after 5 years and he has not even been over to see me this week! So not impressed with his support or lack of.
I hope to get a response please
Denise
0 likes, 61 replies
pammy1
Posted
pammy1
Posted
deni_deni
Posted
Thank you for your reply! So sorry you are still suffering.
I go back next we'd to see consultant. I am sure its gone even whiter in certain areas. My partner has walked away from me after 5 years and not heard a thing since I told him. I am in shock and deeply hurt. I am scared its going to get worse. Has yours?
Thanks for taking the time to reply
Denise x
pammy1
Posted
deni_deni
Posted
Thanks for your kind words! He is a spineless snake and my family are so upset what hes done to me. Just feeel sick and angry. I am not lowering myself to contact him. Trying to remain positive but feel no one will ever be interested in me with an abnormal labia that is painful to have sex.
D x
pammy1
Posted
pammy1
Posted
deni_deni
Posted
Take care for now
D xx
LS_sufferer
Posted
deni_deni
Posted
Thanks for your reply! So sorry that you think you have this disease. Been diagnosed now 3 weeks and paranoid that getting worse, certainly more white patches. I shall let you know how I get on next week.
Hope you're not too down.
D x
pammy1
Posted
LS_sufferer
Posted
It's the waiting that's the worst isn't it...too see what can be done to help us. Yeh my symptoms even "floored" my GP, she was so shocked how bad it is, as soon as she saw it she knew straight away but obviously you've got to go through the proper channels so to speak. If only they could actually pinpoint what actually caused it in the 1st place. I know there is no cure & I can accept that (begrudgingly) but i'm just so perplexed by it all. Admittedly I haven't had the healthiest of lifestyles due to my previous occupation for the last 20 years, but i'm not overweight, relatively fit. It just makes you wonder if you've done something wrong to cause this in the 1st place.
So many questions, & so few answers is what I find the most frustrating. Keep in touch & GOOD LUCK for next week xxx
deni_deni
Posted
Yes the consultant diagnosed LS in less than 10
seconds! She's not tested me at all just given me
Steroid cream and a leaflet! Came out walking
Like a zombie . I am not sure if my chemo has
Contributed to having the disease as it plays
Havoc with my immune system . My haematologist
Says not but not convinced, likewise let me know
How you get on, nice to know not on your own,
D x x
LS_sufferer
Posted
deni_deni
Posted
Sorry it's taken soooooo long! For you, yes we
Know our own bodies and what is normal and
What's not . The consultant said to me it's a Good
Job I didn't go to the gp is she said they would
Have just said it was thrush ! Can you believe
That???? I am scared going to close up completely
As read some really scary cases!
DX