Just told I have copd. I'm freaking out!!!!

Posted , 10 users are following.

Went in for a consult for sleep study today and they did a breathing test because I smoke. Then I was told I have moderate copd. I'm only 37 and want to see my kids at least grow up. Now understand I have panic disorder also. I didn't really push myself on the test because I wasn't there for that anyway. I didn't know I was seeing a pulmonary doc anyway. It said sleep doctor. I didn't know I was suppose to give it all I had on the test. I was in such shock I didn't really get many answers. All I remember was he said 80 to 100 was normal and I was at 61 which he said was moderate. I'm so lost and in tears because I'm so scared I won't see my kids grow. He gave me a inhaler blue one I have had before for mild asthma. Also gave me a once a day breo I think it's called but I am worried about that one because I have a higher then normal heart rate. Always have had that. Can someone please help me. Tell me what to do because I don't see this doc again till April. That's a long time for someone with anxiety panic disorder.

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  • Posted

    Go and see your GP  They will give you something for your understandable , panic disorder There is a brilliant man called Derek Cummings who you can find on line He knows more than any of the doctors about COPD  It is not a death sentance at all as long as you keep active and keep your lungs working as well as you can.  Good luck.  
  • Posted

    Ok just wanted to give a update. I have to wait till I see the doc in April to talk about redoing the tests. Now I have STOPPED smoking cold turkey. I am currently almost at the 48hr mark which is huge for me because I have not went that long without a smoke in over a decade. I am starting to question my doc though. I had to pick up a enrollment thing for online portal and I asked for a copy of my tests. They didn't seem to like that. Also the lung doc was very pushy the day I took the test to get me into a paid medical trail right across from his office. Which come to find out the lung doc is the same person who is running these tests. Maybe a little odd or that might be normal. What would you think of that? Also on my tests can anyone help tell me where I stand by the numbers. I tried looking them up but I can't find a exact answer. In fact everything I found says that even if your fvc and fev1 are lower then normal, your fev1/fvc number is the one that actually says yes or no. So needless to say I am confused. Any help with the numbers would be helpful.

    FVC 72

    FEV1 61

    FEV1/FVC 84

    DIFFUSION ALL IN HIGH NORMAL RANGE

    • Posted

      As I said earlier. Its highly unlikely for you to have COPD but the numbers say that you have asthma. Your FEV1/FVC seems normal. Stopping smoking is the best thing that you did. You may never get COPD if you eat right, excersise. Stay away from smoke and dust. You should be good.
    • Posted

      Oh I forgot to add that it also says under dlco part and svc part "Caution Poor session quality. Interpret with care" which goes with the fact I wasn't feeling good and didn't give it my all. Now under the FVC part session quality just says "pre"

      From what I was just told by another doc was that lower numbers you are suppose to then use a bronchodilator and do the test again to look for a huge jump in the numbers. If there is one then he said that's asthma.

      Anyway since they don't really want to work with me on this I went ahead and scheduled a retest with a second opinion for next week. This time I know to give it your all and don't play around with this test.

      Either way no matter what the numbers say I can say at least it got me to stop smoking.

    • Posted

      Good for you it's stressful to quit for a while some get over it faster than others me it took 6 months to get cig out of my system.  As for the bronchodilator that is or should be a part of the test it does not confirm asthma you have to do another pulmonary function test, it's called a methocholine challenge test, the make breath in some so called harmless stuff to make your 02 drop by 20 percent.   They will repeat this up to 3 times if they don't get you to have a asthma attach.  This is done at the hospital, I have one coming up February 5th. I really want to pass it's bad enough to have copd but asthma is like icing on a cake.  You should ask your dr to schedule you a test and gets your meds in order.

    • Posted

      Yeah Pam it is not fun quiting smoking. It is almost the hardest thing I have done. But it's much harder looking at my kids thinking I won't be there for them.

      I am going to see how this retest does and quiting smoking does also. While I know I won't really feel the benefits from quiting physically wise for months I can get through it thinking of my kids.

      You see I have been in a sedentary lifestyle for about 4 years since my accident. I still haven't went in for my other surgeries because I lost enough of my leg strength and range of motion in my back when I broke it and they did emergency surgeries.

      But this has got me out walking also. I'm starting at a mile which doesn't sound like much but is a lot when you have legs that seem to have a mind of there own.

      I do want to thank everyone here because it has really helped. And I hope will help as I go through all this. It's just nice to know your not in it alone.

    • Posted

      A mile is a good place to start, and right now I'm not even back up to that after repeated exacerbations! Sometimes we're thrilled to make it a quarter of a mile.

  • Posted

    First, TRY to calm down!I imagine every person you've told has said "Quit Smoking" if you say you don't, they probably won't believe you. I know about having to wait so long between appts. You might be able to get a consultation appt., but write down your questions.

    I was diagnosed at the height of my career and personal life. It shook my family to the core. Yes, your life will change, but you have a lot to do with the change. Stop smoking, start exercising and keep a very positive attitude. Hope this helps - I'll check up on you soon.

    • Posted

      Thank you for the comment. I am on day 4 going into day 5 completely smoke and nicotine free. While I wish I could say that after the 72hr mark things got easier like a lot of websites say it will. It really hasn't. I can say it's easier today then the first day but it's another day behind me. I have to take this quiting smoking one day at a time.

      I have been trying to exercise as much as my legs will let me (due to the back damage) but I keep trying.

      I have calmed down some after getting my actual numbers and some things point different then what the doc said. I'm still treating it like what the doc said because it can't hurt to quit smoking and be healthy.

      Second opinion and testing is Tuesday if I don't catch the cold that my kids brought home this weekend at least.

      Thanks again everyone because I really only have my wife to talk to and people on here. I tried to talk to my but she just got angry because I quit smoking. Sounds strange but she gets mad because docs blame everything on smoking. Don't mean to dump that on the forum but really don't have anyone to tell but really wanted to get that off my chest.

      Again thanks everyone and I will keep informing as I find out more.

    • Posted

      Sorry didn't proof read that. It was suppose to say "talked to my mom" She is who I got the negative reaction to quiting smoking and exercising.

    • Posted

      I know right but that whole relationship is for another forum. A very long drawn our forum.
    • Posted

      My husband feels the same way. "Dr.s blame everything on smoking. It's just their excuse because they don't know what is really wrong!!!". My best trick was Chanticleer. Never thought a pill could take away the craving, but it works 😂

    • Posted

      Hey LouAnne

      My new pulmo says that here in the US, 25% of folks with COPD never smoked. I smoked & was surprised that this disease screws such a huge number of non-smokers. Just FYI

    • Posted

      Hi Keith

      Fantastic on the improved numbers. Whoever gave you the first test was not a pulmonologist and possibly was just a technician or perhaps a neurologist. Clearly the person wasn't really qualified. Stick with what the pulmo says.

      They used to tell us that there were 2 kinds of COPD: emphysema and chronic bronchitis. My pulmo now says there are 6 kinds, and he includes bronchiectasis in that 6. I have chronic bronchitis & nowI have bronchiectasis too. I'll try to remember to ask him what the other kinds are next time I see him.

      At any rate, any website which says you can't have COPD unless you .have both emphysema & chronic bronchitis is WRONG and should not be trusted for any medical info. Since you're in the States, stick with sites run by WebMD, the Mayo Clinic, Johns Hopkins, Harvard, or the American Lung Association - or just stick with this site, patient info. There's a ton of bad info out there so be as smart about what you read as you are about quitting smoking.

      Congrats & keep up the good work on avoiding cigs/nicotine.

      Th

    • Posted

      Yeah the first test was just done by the nurse at that docs office. She just followed what it said on screen and that's about it. It was a lot different this time at the new docs. It was in a big room with a lot of machines hooked to her computer. Oxygen tanks everywhere and even had the me use a inhaler to see what difference. She was able to watch as I went through the tests and tell me what I was doing wrong and what I was doing right. It seems this is her only job is to run those tests. That's why I had to wait till today because she is only at that location certain days.

      Anyways I was glad to see better numbers. They even had me do other tests also. Defiantly more information while it was all going on also.

      As far as the smoking. I'm still free and still having cravings but they seem to get easier each time. I'm guessing it's gonna take awhile. Not really to break the nicotine but more like it's harder to break the habits of when to grab one. I caught myself today turning to my side table to grab one while I was doing something and went they weren't there, I remembered I don't smoke anymore lol. That's what I am going through now of that makes any sense.

    • Posted

      That makes tons of sense, Keith, about situations. For many of us who spent too much time out drinking & dancing, or just drinking, it was automatic to light up at the table. That, I think, was hardest for me, having a beer or glass of wine without.cigarettes.

      Some people crave forever but I hope you'll be like me: the only thing is watching tv or movies where characters smoke a lot of cigarettes. You are very self-aware so I think you'll be fine & learn what to avoid.

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