Just want answers!

I do not drink, smoke, I do not drink coffee or tea (if I do it's pure peppermint)

Hi there, I get waves of dizziness too. Its a co-incidence you mention looking down because I have had this problem too. It feels like I am falling and quickly have to stop myself. This only lasts for a few sseconds too but it makes me jump all the same. I get it in bed as well. Feels like I am either moving to the side all of a sudden or like things are spinning inside my head and it always happens all of a sudden! I have already posted on this site about dizziness during take off and landing in a plane. Also I think I mentioned waking in bed one morning severely dizzy! Never been as scared. Yet that only lasted 30 seconds. Thing is you think it wont stop dont you. But it always does. So yes I experience this minor dizzy episodes and I think they mostly started with the severe one in bed about 5 years ago. Doc told me that was BPPV.

Hey smiles,

I think that I am leaning more towards bppv as well. Sounds very similar to my story. My ENT's originally diagnoses was labyrinthitus. I went back to see her and now she is insure so she gave me a referral to a neurologist. Waiting on that appointment. I have done eye tests, MRI with the injection, couple doctors visits, blood work, blah blah blah. Everything came back normal. One of the original doctors I visited said that she thinks it's bppv. Maybe I should start doing exercises for my ears now. Have been thinking possible migraines as my ENT pointed out that potential diagnoses. She also said that it could be a pinched nerve in my neck. Who knows

I just dont understand... I knew vertigo (which they are guessing) with tinnuitis comes and goes but holy... a week in Nov, twice in Dec.. Jan and Feb pretty much straight then thought I was better.. spins and dizzy gone just this falling feeling, or almost like a headrush only dizzy.. quick.. standing, laying.. dont matter what Im doing it just happens quick and gone... very tired the past couple of days..

It might be worth asking for a referral to a neurologist for an MRI scan, just to rule out any neuro causes. The only other things which I know about are Meniere's Disease which might fit with what you describe, or labyrinthitis. Hope this helps, but I am no expert, just someone who has experienced dizziness and labyrinthitis. It would cost you about £500-600 to see a neurologist privately I think, and that's if you needed private MRI scan. I did this due to another neurological problem which has now been fixed. Good luck Smiles.

I have an eye exam in week to cross that off.. waiting on ENT in May.. on cancellation list... am hoping if nothing than the ENT will do MRI.. I hate that vertigo etc cant be diagnosed w/out guessing..

Hello

Dizziness has been the bane of my life for almost 16 months now. Ive managed to get myself back to work but its been a real struggle and some days I barely know how I make it through the day. I too have these little half second dizzy zaps, mine feel like someone has grabbed the back of my head and they are pushing me forward and sometimes I feel like im leaning to one side or my feet are sinking into the floor. My head zaps also tend to happen either when Im looking down or up or sometimes when I move my head but not all the time. When I was first diagnosed with BPPV I was getting about 50 of these per day and all my GP had to say was 'that sounds nasty, i wouldn't like to have that'! I saw an ENT consultant last April and again in January this year to be told that I had had BPPV but now Im left with psychological vertigo due to hypersensitivity to movement and anxiety. Doctors dont seem to see the wider picture with inner ear conditions. I was told that I would be 100% better in 10 weeks max even without treatment and yet here I am almost a year and a half down the line and I still feel well below par and feeling off balance and faint most days. Because of this ive developed a serious health anxiety and have pretty much convinced myself that something really bad is going on with my health.

There seems to be no answers and not much help out there for inner ear dizziness. My confidence has hit an all time low, I go to work, food shopping, which is a nightmare due to panic attacks, and then I go home and thats been my life for the last year and I hate it. I dont go out, I dont see my friends and even some of my family anymore. I want my life back but the medical profession arent listening.

Im sorry for the rant but its been a bad day and Im feeling particularily low today.

Lisa, that sounds absolutely awful. I've not had even a fraction of your problems and yet I know how unpredictable dizziness can affect you. Really feel for you and do hope that you may be able to get some answers by perhaps going privately? I've also experienced this withdrawal from normal life and friendships due to another neurological condition and I know how emotionally blunting it can be. I am very lucky in having had surgery (brain!) and am now fully fit again and never dizzy. I wish you all the luck in the world in finding a good diagnosis and then a cure. I honestly don't believe that anxiety causes dizziness - that just doesn't stack up. Take care and don't give up eh.

Lisa were you diagnosed with lab or bppv before you had brain surgery? I am just wondering if you were mis diagnosed? I had an MRI done and it came out normal.

you had brain surgery? My dr did some neurological testing.. you know with the eyes, the reflexes.. blah blah.. says nothing shows to worry him yet.. til I have hearing test..

Sorry if my post was misleading in any way. I had brain surgery for hemifacial spasm (and dizziness was part of the package, but just a very small part of it). I am not suggesting that anyone else on this site needs brain surgery. But, it is a good idea to rule out anything neurological as part of the process of elimination. Dizziness is so debilitating and I really feel for you. I have a friend who has Meniere's Disease which she seems to control quite well with medication....... but, you need a proper diagnosis before you can address the problems eh. Good luck.

Hi Smiles,I've had dizzy- giddy for 3 years,I suffer from tinnitus had that 8 years now, went to ENT and consultant ,got me a hearing test same day,On that outcome I was given an MRI scan all came back fine,they say I have hyperacusis tinnitus . This year I had eye test told optitician about my balance problem, she checked me out thoroughly,my eyes had not changed in 4 years no change in prescription.when I'm sat down it's not to bad,it's at its worst when walking ,looking down or up.and standing on a chair is a no go ,wait till you get a hearing test and eye test but I'm sure ENT will want done what I had done .your be fine but do tell ENT about the balance the tinnitus is an on going thing I'm afraid I do try to ignore it but with difficulty,in the early days it has been known to just go, like it came .so keep your chin up .best wishes x